Hi, Friends!

To: All
I have had a syrinx for years after an "insignificant" work accident.

Now diagnosed with spinal MS.  Lots of biohazard and toxis chemical exposures related to employment.  Only about a dozen punctate outer-area brain lesions visible with intractable migraines (complicated, othaloplegic, status, thuderclap, classical and common with prolonged aura) and autonomic dysreflexia.  Hit by car as pedestrian and messed-up lower back last year.  Now, took a bad fall on face hitting underside of jaw with neck bent back on unforgiving-surface breaking tooth vertically and loosening other teeth.  Complaints of vision problems, headaches, shoulder to hands problems for months.  Several trips to ER for migraines and given about a week of doses of 125 mg steroids after regaining vision post horrific migraine.  Then another dose following month after extreme n/v and low bp.  Month of abdominal problems and optic blurriness.  Much pain in arms to hands at night and a  couple times awakened thinking I was about to aspirate on my saliva which I could not swallow.  Rolled on bed to allow postural drainage.

Now discovered an enhanced posterior C7 and slightly flattened cord causing a stenosis-effect and the previously enhanced central cord syrinx is gone!  New lesion at top of spinal cord.  Did the syrinx fluid come out the top or at the level of C7 posteriorly and cause the enhancement or is this new MS flair?

Hard to know for sure.  Any thoughts or other postulates?  

Thank you for reading all of this!

[COBOB]

Many times, spinal MS lesions are mistaken for a syrinx.  You might want to have your old MRIs reread by a neuro-radiologist.   Syringomyelia is very rare and normally do not resolve on its own.  

Bob

[jujuminx]

Geeez, Bob, how is it that you know so darn much about just about everything?!

Impressive.

Julie

[needanswers54]

Thanks for the comments.  Yes, I realize that.  However, mine was the full length of six-seven vertebrae with a centralized cyst with what appeared to me WITHIN the spinal cord cavity.  And my spinal cord was round.  Now, after hitting the hard constructed surface flat forward with my head bent backwards I am wondering if the cyst [if that is what it was--or transverse myelitis?] could have been forced into the spinal cord as the posterior of it is now lighting up  and my spinal cord is flattened (which of course is now causing stenosis).  Med people said it is a wonder I did not break my jaw--Thanks be to God.  Had this all been lesion I probably should have been diagnosed with Devic's they thought.  But, the highlighted area was inside the cord and the NMO tests all came back negative multiple times.  And they said I should have been dead by now.  And I now have a new lesion at the posterior top of my cord and unseen(?) increased brain stem problems with autonomic dysreflexia.  I had actual syrinx temperature symptomology such as I had set my arms on/near the cooking surface and received second degree (at least) burns and did not know that I had them until I hours later when someone showed them to me.  I could not feel them.  Never did.  Yes, I too, wondered if this was a long inflammation and a lesion or a lesion blocking the flow and causing a syrinx or what.  But, it was not something new.  This has been at least six years or possibly over ten years that I had it--even when the possible cyst area did not enhance.  Just kind of weird.  Top MS specialist also said it was a syrinx.  Just wondering.,,Perhaps the whole lining was inflammed--Who knows?

Thank you for the comments and thoughts.

[needanswers54]

Oops, forgot to mention that they were read as syrinx by several neuro-rads and rads.  I thought the large area was lesion  which may have caused the syrinx or was an accumulation of the fluid due secondary to other problems.  I am guessing if the impact could flatten the cord it could certainly have squished the syrinx fluid out the top.  I am just questioning if this is a new lesion, trauma posterior to the enlarged area due to the fall, or the lower syrinx fluid being pushed into the spinal cord.  Neuro-rad is wanting immediate new films and 3 and 6 month and 12 month repeats and possibly others.  They are considering neurosurgery.  They are wanting MRIs done at at least two different facilities for comparison now.   I guess repeaat films and time will tell.  If it was a syrinx, perhaps the damaged teeth saved me from a possible sunt down the road.

Thanks for reading my post and commenting.  I usually get too wordy and was trying to keep it brief.  Thanks, again!  Take care!!