Hi HVAC,
Oh my, sorry to hear :( I've seen alot of posts from you here, and you seem such a nice strong person, it is flooring to hear you have terminal cancer, i pray you have many many more years ahead of you...and we see many more of your posts
I don't know really how to get upset, know that sounds strange, but it just isn't me. I always believe theres some people out there who have it worse than me so try to be content with everything in my life, and those who have a lot in life that is worse than my lot I find inspirational.
My step father died of cancer of the bowel, he was such a happy go lucky guy, even at the end he joked with me, he always had a smile on his face and a kind word even though we knew he was suffering. I guess I get my demeanor from him lol
My partner is going to the appointment with me, he comes to most appointments with me because I forget things often, specially when with my neuro..i call em brain farts lol, even got my neuro calling them brain farts haha...i insisted (she was hesitant) lol
I am taking the afternoon off work for the appointment, my boss was soo rude to me, she complained that she might not be able to cover my shift.
Later before she left she apologised saying she was insensative..
Thank you HVAC for your encouragement, I am saddened about your diagnosis but inspired by your resilliance and selflessness when encouraging others here on this forum
Will keep all posted :)
Hi aspen2,
Glad it was a minor one, though I can't see anything minor about a cancer diagnosis :s I certainly hope it does not return for you! Well wishes for your next check up. :)
Thanks aspen,
How are you now? Cancer free? I hope so! Must be hard having the M.S on top of the cancer..
The shadow on my jaw was incidental also, am kind of glad I have all the weird symptoms now, or they may never have found it. Glad my neuro ordered an extensive MRI of the head/base of skull.
I will keep all posted :)
Thanks JJ,
Sorry to hear about your daughter, I can understand how she might feel.
Parts of me is saying I should be terrified and a nervous wreck, but that just
is'nt me.
My partner had prostate cancer, and is now free of it for two years.. but when dealing with it, his Drs kept saying that we myst be the most cheerful patient
and couple he has met yet.. also says our demeanot and sense of humor played a roll in his eventual remission.
But that is just how we roll, yes we are worried and were for him initially, but you move forward.. as we say "As ya do" plus who couldn't laugh, when after getting female hormones to aid in his treatment, he was crying at movies and having mood swings lol.. it was his time of the month lol, plus my gawd his hairy legs were smoother than my waxed legs because he lost the hair on them...i was jealous lol
We laughed alot, and I believe it helped.
We will continue to laugh
Well wishes for your daughter
:) :)
As i was reading your post and i got to the bit about your GP calling you in, i knew you were going to say in might be cancer, the same thing happened last year to my daughter on her first pap test results, she definitely doesn't have your calm head on her shoulders though, freaking out is kind of expected when your GP sits you down and mentions the big C......hugs
All i can say is hang on to that calm, it's not cancer until it is and it may not be, so keep a hold of your happy go lucky outlook during the tests to come!
Wishing you luck and good health.....JJ
Hi Alex,
No, my neuro is specialised in stroke, but she has some experience with M.S
New update:
I went back to my GP on friday because he called me back in after my neuro called him up with new results from my latest MRI. At first he wanted to see me at 3pm, but I start work at 2pm, so he said to come in right away before I go to work.
Indeed I was a little concerned, it sounded urgent, and he has never called me back in on the same day before. So, I finished my coffee, because i thought what ever it is, I'm going to need the coffee hit lol, then headed back in.
Background info:
On a previous MRI don for trigeminal nerve symptoms they noticed a small shadow in my mandible close to my alveolar nerve that they were worried about, and for which I had to have two teeth out for. The dentist didn't see any infection in the sockets so said my symptoms were neurological.
Back to update:
I got to my GP, and he proceeded to tell me my latest MRI has shown this shadow area of my jaw along the nerve area has gotten bigger, and both he and my neurologist are very concerned about it.
Theybelieve that this is the cause of my facial pins and needles and suspect it is cancer of the mandible along the nerve area that is pressing on my nerve..they also suspect cancer because I am a long term smoker..(I know, bad habbit that can lead to cancer, but I useto be addicted to drugs when I was younger, smoking was my last vice, and for months I have been weening myself down off of them)
They are sending me to a head and neck oncologist / professor, who is supposed to be very good at what he does, one of the best in Sydney Australia, to determine if infact it is cancer as they suspect, or something else.
Apparently if it is not cancer, it could be something like bone death in my jaw that will or might need extensive treatment/surgery.
So I am seeing the oncologist on Friday this week, and am pretty sure I will need a biopsy soon after that to help determine what it exactly is.
None of this though explains my other symptoms, so my neuro is still schedualing an appointment in the near future. She wants me to get the jaw figured out first.
So now I may have cancer.. yippee..not! But I have a happy go lucky outlook / perspective on life regardless what it throws at me, and figure, eh, well, lets just get on with it and see where things lead.
A saying I learned early in life is if you can't change something, you can change how you respond to it. So I am in an upbeat mood as per usual lol, more worried about my partner because he is a softie and a worrier.
I just want to make sure he knows I am not worried regardless of the outcome, and that I am happy.
Yes I would've rather an M.S diagnosis than a possible cancer one, or ultimatly even back to limbo a little but you roll with the punches hey ;)
So might come back Friday afternoon to make another update :)
I guess you just have to wait to see the neuro. I know that is hard. Is the neurologist a MS Specialist? If so it can take months. There are so few of them. There are 5 for a large portion of NC.
Alex