Hey all...it's taking all I have in me to type this today! I have been feeling pretty rough for about 2 weeks now but just knocked it up to the usual spring time problems.
However, I have been dealing with severe bladder cramps the last two days and then yesterday, later in the day it was like I was peeing 1/8th of a teaspoon when I could go although my bladder felt like I had drank a case of beer! This constant "full" feeling is rather aggravating! I don 't have any pain when I go...just don't go a whold lot and feel full pretty much all the time! This is my second go around with a possible UTI in the last 3 months and I am wondering if I should be very concerned. I don't have any leakage or anything like that and I had a cystoscopy done a year and a half or more ago and I was emptying my bladder according to that. Can my bladder change that quickly or perhaps I should say, can my brain change so quickly? I am sooo tired that I am having a tough time understanding much at all! This is so aggravating! I would appreciate any information I can get from anyone that has dealt with a situation similar to this. Thank you for all the help you have given me in the past...I just don't know what I would have done without this site!
Thank you for getting back to me! Well, I just slept for about 2 hours and prior to my "nap" I called my neuro. He is away until Thursday but if it is a UTI there isn't much he can do anyway short of what my gp can do. So I called my gp office and they are going to have a requisition for a urine test for me to pick up tomorrow.
This is just so strange! Yesterday I had such a problem passing water and yet my bladder felt full all day. Today, I have the fatigue and the pain in my head and face but so far my bladder doesn't feel too bad. Wouldn't it be wonderful if we coulda gotten something that at least had easier symptoms to decipher...this is driving me nuts.
Paula, I have been dealing with the MS fatigue for a while now off and on so it doesn't seem strange to me and I had my vitamin levels checked a few weeks ago and we are working on increasing my calcium and protein...not sure why they are low. I guess I will wait to get the results from the urine test and then make an appointment to see my urologist again.
Val, I live in Canada so I am not sure I can get those test strips here but our tests are paid for by Health Care so I think I will stay with that. I may eventually look for something like that here if these infections continue and thank you for letting me know that there actually is something like that.
I will let you know what the results are tomorrow and then take it from there I guess!
My vitamin d levels keep dropping and when they do I get extremely fatigued. More so than I am on a normal basis but extreme fatigue is usually the first sign of a relapse so I am getting everything checked out first before I contact my neuro.
I told my doctor and she said she hopes it is my vitamin levels versus another relapse and I told her I couldn't agree more.
I hope you get some answers with your urine test. Keep us posted.
Okay, now feel free to laugh when you read this... but I've only had minor bladder changes with MS, but do have that feeling of needing to go not long after I go... had someone else give me the following suggestion... just make sure you lock the bathroom door so no one can see this regimen in action :)
Once you pee and think you are done, lean forward like you are bending to pick something off the floor in front of you.... hold that for maybe 30 seconds... then lean all the way to the left, hold again, then lean all the way to the right.... think of when you get to the last of the laundry detergent and you tilt the bottle around to get the last bit of liquid :)
Sounds funny I know, but it does work... when I am having the urgency issues, I do this everytime I go and it helps to drain the bladder more....
As for the ongoing UTI, how about adding cranberry to your daily drinks? Several years ago I had two UTIs in a row and my gyn back then suggested drinking / eating cranberries daily... that really worked too! My neuro did encourage me when I told her about the urgency issues to drink cranberry juice as well because starting to pee and not going completely, does mean some urine is 'backwashing' into the bladder taking with it bacteria from the ureathra which is possibly where the UTIs are coming from.... the cranberry kills the bacteria naturally and reduces the chance of UTI...
The cranberry / apple and cranberry / blueberry juice combos are actually quite tasty... I do not care for cranberry straight, so drinking the combined juices works for me :)
Thanks for the tip about the 'empty laundry detergent' regimen! I knew about the forward bend but not the side to side. But I am definitely open to suggestion.
I buy unsweetened cranberry concentrate at the health food and add it to Perrier. I like it, but my family thinks it is awful. I guess it is an acquired taste :) Supposedly the sugar in juices can cause a problem and I just happen to like really tart things. It seems to work, so far I've only had false alarms, but I hate not being able to tell the difference.
Well I am no better than I was when I started this and if anything I am a whole lost worse!
SURPRISE! I DON'T have a bladder infection! So I don't know why I am having periodic trouble emptying my full feeling bladder or why I am cramping soooo much.
My left eye is pretty much drooped closed and last night the pain was horrible...worst I have had to date. The trigeminal neuralgia has lightening bolts of pain shooting down my left cheek and it is horrible! My left side of my face is otherwise very numb...as if the dentist froze it.
My legs are giving me a lot of pain as well. On Friday night I had an episode of excruciating pain that was so forceful I almost cried. It only lasted about 10 minutes but I was happy about that...it was horrible!
I am having a lot of trouble with my speech in that I sound like I am drunk most of the time and if I don't conciously concentrate on what I am gonna say it comes out brrallbldoncerjl...or something similarily difficult to understand. I also feel incredibly weak in that my voice is really shaky and my legs and arms feel like cooked spaghetti. I went to the supermarket with hubby yesterday and by the time I got home the TN pain was horrible and I felt as though someone drove over me with something very big! I have been having a few paresthesias here and there and right now it looks to me as though the print on the computer is on an angle. I haven't felt this bad since probably 2007-2008 when I first came on here and I am feeling pretty down about it.
However, I did get in touch with the MS nurse (yahoo!!!) and she is awesome!! She is covering for the nurse that is usually there and I am happy because this one really seems to give a darn! Anyway, she said they pulled a few strings and my neuro wants me in to see him tomorrow afternoon!
I am, of course, having mixed emotions about this because for me at least, if I have to have steroids...this cure is worse than the cause! However, the last time I had really bad TN like this, my neuro said that the only thing more he could do for it is brain surgery to cut the nerves.
He he...my hubby is sitting behind me asking if I am typing the way I am talking cause if I am I may as well forget it...he is the only one that can really understand me! too true! hehe (I think for every word I have to backspace for at least two letters!)
So I guess the rest will be known tomorrow afternoon. I will let you know how this is going when I get home. This all seemed to start the day my hubby and I took my Mom to the casino about 3 weeks ago...it has worsened considerably since then.
Hey I've been digonosed with a uti and I can't stop peeing I got it when I was pregnant bt miscarried and as a result I had a small break down and threw all my tablets away I had only started the course 2 days b4 my miscarrige so didn't finish now I'm on trimethoprim to help it go away
we will be there with you in spirit! hope all goes well
I discovered something after I had my kidney stone blasted and it may not work for everyone but worth a try. It has worked for me. I developed a UTI after my blasting and afterwards started using baby wipes instead of TP as it was starting to irritate my sensitive area and was doubling my TP use. It FELT much better for sure! To this day I use baby wipes instead (even the inexpensive ones will do) and that was 6 months ago and I have not had another repeat of UTI. I do hang heavy with my friend, urinary frequency, but no more irritation and no more UTIs.
After hearing the explanation of how urine contaminated gets sucked back in, I am wondering if I should wipe before and after? hmmm, food for thought.
This is one irritating symptom I would love to "ditch" as I am sure you would
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