Again. I am extremely new to this disease. I dont understand much yet. Please.explain relapses or.flares??
Take me for instance. I have a vision issue that bugs the stew out of me. It may last.a.week to month then go away for a long time. To reapear out of no where. Then lets discuss the jerks as I call them. I can and will.jump jerk.for a week or so. Then no jump jerks for months. Then it starts up.
But the fatigue. Now that one is ongoing. Or for a long long time. Then I will.feel better fo.a couple of.months. Than bam. Back.down.
I dont understand. Does this disease go into.a.remission of.sorts then comes back. Or is it a steady downhill decline?? Please help.
Or is it going to be one day at a time??
Please.forgive my ignorance. I just joined this wonderful site. And recieved my diagnosis wed.
Will I continue to have what I am used to experiencing. The come and go.things I have lived with for a very long time or......
this is a very good site that can help answer some of your questions about your relapses or as some doctors may call them exacerbations even some physical therapists will call relapses excerbations as they have done with my stepmother who has has MS for over 20 yrs when she had her last relapse this past Easter hope this helps you with the information that you need to know about MS relapses and how MS progresses are you on any medications to help with the flare ups with your MS at any beta-interferons such as Avonex or Copaxone and if so what type of MS have they diganosed you with my stepmom has RRMS which is Relapsing Remitting MS. http://www.nationalmssociety.org/index.aspx
If you have relapsing remitting MS, I think The Book says there needs to be 30 days, symptom free, in between for a new relapse to be occurring. I don't know if there are any limits to how long a relapse can last.
By the time I figured out that I have MS, mine had moved from RRMS to secondary progressive MS. This means I may still have relapses, but some of my symptoms are around for keeps.
I am told.RRMS i dont really know.what the.diffences are yet. I am going to see.another specialist. We just recieved the news this week. My doctor told me my nero. He always thought thats what was wrong. I always said no. Lol. I just have had enough other health issues to.deal.with. However when i had a knee replacement last may my body went weird. I.started with.this wild jerk. I.can be sitting still and my whole body jerks. The vision issue has been underlying.for years back. I just blamed eye strain. Computer screens reading. However i.am.and have always been super light sensitive. I love to.sit in the dark. As my son says my house is a.cave. And.always has been.
And over.the course of.the last.five.years. The last.two.my memory is changing. I tend.to.forget.very easily. Again always blaming that on my pain pills. And then my weight changed.drastically the last.two.years. I.went.from.245. To 175. And constantly shrinking. Muscle.change is noticeably different. Along with this.tingle burning.pain. Along.with my base of head pain. Again.i blamed.stress.
Sometimes i.feel.bad.for.week.to.month. Then.it.goes.away. Sometimes.for.a.long period. Six month break. Then i.get all.the symptoms again. And now the periods of weird stay longer.
My doctor fought me. I would.say no.....i am just ok. And he would.shake his head and say ok. Yet constantly keep.writing. My husband was the one who told on me. Lol.
I am.very active. Work.exersise. All the regular.stuff. However lately my energey level is.zero. And pain is bad on some.days. Somedays i.feel like ive.ran a merathon and have done nothing. And somedas
Sorry. And somedays i.cant move. Then that.goes away. And i am back to.good to.go. However. I am.41. And my doctor is.cautioning me that the disease is progressing. My mri came back with signs of brain change. I.dont.really understand the lessions?? He said its my brain isnt firing up.correctly. Again when i was in the nero office wed i zoned out. I didnt want to hear it. I have no response to this yet. R
bama88 one of the things with RRMS is that if you over do it you can trigger what is called a relapse or an exacerbation this site tells of the differences between the different types of MS that there are yes for it to be a true exacerbation there has to be 30 day window in between your last attack http://www.msdecisions.org.uk/ now when my stepmother had her last relapse this past easter they gave her predisone commonly known as sera-medrol for the relapse and for the inflammation from her MS
1: Relapsing Remitting (RRMS)
At diagnosis, the majority of people have this form of MS - relapses (also known as attacks or exacerbations) occur on average once or twice a year, with good or complete remission in between, but with a tendency for symptoms to persist or increase over time.
This is the most common form of MS at time of initial diagnosis. It affects approximately 85% of everyone diagnosed with MS.
Relapsing Remitting diagram
Some people with Relapsing Remitting MS have a type of MS which is known as rapidly evolving severe relapsing-remitting MS (RES). This can also be known as highly active RRMS. This is defined by having two or more disabling relapses in one year and disease activity shown up on an MRI scan.
2: Secondary Progressive (SPMS)
People with this type of MS experience an initial period of relapsing remitting disease, (see above) but this is followed by a steadily worsening disease course with or without occasional flare-ups, minor recoveries (remissions), or plateaus.
The majority of people with the RRMS, but not all, will eventually develop SPMS; however the time taken varies enormously. After 10 years, 50% of people with RRMS will have developed SPMS. By 25 to 30 years, that figure will have risen to 90%.
Secondary Progressive diagram
3: Primary Progressive (PPMS)
People with this type of MS experience a slow but steady worsening of their disease ('progression') from the start, with no distinct relapses or remissions. But there are variations in speed at which it progresses. There are also occasional plateaus and temporary minor improvements.
This type of MS is relatively rare - only about 15% of people with MS will get this form.
Primary Progressive diagram
Benign MS is not a 'type' of MS, as such, but in some cases, people experience very occasional relapses, usually early on, with complete recovery - or remission - in between. They don't have any serious disability and further relapses are infrequent - in fact they can sometimes happen a number of years apart. These people are said to have 'benign' MS. By its nature, benign MS can only be diagnosed after a long period of time with little disease activity. Estimates on how many people with MS turn out to have benign MS vary, but range from 5 - 20%.
there are 4 different types of MS :
Most commonly, multiple sclerosis begins as a series of attacks followed by complete or partial remissions as the symptoms mysteriously lessen, only to return later after a period of stability. This is called relapsing-remitting (RR) multiple sclerosis.
Primary-progressive (PP) MS is characterized by a gradual clinical decline in function, with no distinct remissions. However, there may be temporary plateaus or minor relief from symptoms.
Secondary-progressive (SP) multiple sclerosis begins with a relapsing-remitting course followed by a later primary-progressive course.
In rare cases, patients may have a progressive-relapsing (PR) course in which the disease becomes progressively worse, with acute attacks flaring up along the way. Primary-progressive, secondary-progressive, and progressive-relapsing are sometimes lumped together and called chronic progressive multiple sclerosis.
Benign Types of Multiple Sclerosis
In addition to the four main patterns of MS, 20 percent of the multiple sclerosis population has a benign form of the disease in which symptoms show little or no progression after the initial attack. Patients with benign MS remain fully functional.
Malignant Types of Multiple Sclerosis
A few patients experience malignant multiple sclerosis, defined as a swift and relentless decline resulting in significant disability or even death shortly after the disease begins. Even so, MS is rarely fatal, and most people with MS have a fairly normal life expectancy.
here are a few of the medications that they use to treat MS my stepmother is on the Avonex which is 1 shot once a week for her RRMS.
bama88 are you taking any medications for your RRMS? what is happening is that the myelin sheath is being torn away commonly known as dymelinating this happens when your body sees itself as a foreign body and starts attacking your immune system and consequently your myelin which is what is causing the misfiring in your brain with your neurons During a multiple sclerosis attack, inflammation occurs in random areas of the white matter of the central nervous system. These areas of inflammation are called plaques. This process is followed by destruction of myelin, the fatty covering that insulates nerve cell fibers in the brain and spinal cord. Myelin facilitates the smooth, high-speed transmission of electrochemical messages between the brain, the spinal cord, and the rest of the body. When myelin is damaged, transmission of messages through that part of the nervous system may be slowed or blocked completely, leading to diminished or lost function.
here are some videos about MS that you can watch at your own pace that tells alot about of MS the disease http://www.youtube.com/watch?v=qgySDmRRzxY
this is also an excellent site that talks about the current research about myelin repair clinical trials have not been done yet to see about doing myelin repair on human subjects yet http://www.myelinrepair.org/
http://www.youtube.com/watch?v=UzDPWrv8D2g&feature=related this last video is a good one for you to watch on your time and is very informative
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