Thank you for posting this information. I must admit I didnt know much about fibro. What little I have heard about it, there always seems to be a bit of a stigma attached to it, a bit like when diagnosing and everything comes back normal, they just say fibro, or they just say migraine.
But its good to see just exactly what the symptoms are.
This forum is the best for such a wealth of information for all us limbolanders. Thanks again.
Sonaya
Why did you have to take so many MRIs and CTs how long did it take you to get a diagnosis? I am going through the same thing right now. My doctors are struggling between Fibro, MS, and Lyme. I am having a Lumbar Puncture on Monday and if it comes out negative I don't know what I am going to do. I am really at the end of my rope. I have been dealing with this for about 5 years and have been out of work and in bed for the past 1 year. feeling helpless...Jo
Just another thing to throw in the pot....lymes disease. There is thought that some portion of fibro pt are undiagnosed lymes. I received literature from my doc on lymes and dx. It has a discussion on how to try to tease the 2 apart.
My mom has chronic lyme and all her inital test came back negative. PCR urine finally picked it up 2 years after onset of symptoms. They had thought fibro initially.
Rebeccah
Thank you so much for all your help, everyone! I am new and I will definitely remember this site when I need help. You're all wonderful.
Bless You All,
Marion
I have both FMS and MS along w/several other Autoimmune disorders and it is true that a lot of the symptoms of FMS and MS overlap eachother.The one thing that sealed the MS diagnosis for me was having several MRI's and CT's of my brain done and finally they told me that it was both of the illnesses which really bites but it is something that I have to live with.If u think or feel that u have both then u should talk to ur doctor about it and let them order the proper test to help either rule it out or diagnose it.Good Luck.
I agree with Heather. If some of your symptoms seem to fit with MS, do a little research and find out if an MRI is possible. God bless you, Amy
If you think you have symptoms of MS, by all means you should have testing by a Neurologist. He can order all the necessary testing. You primary care doctor can set you up with a Neuro in your area.
I haven't seen you post before, so please let me welcome you to the forum.
Best Wishes, Heather
I was diagnosed with Fibromyalgia in June. But I wonder, since MS has so many similarities, how do I know I don't have MS? I get really weak in my legs at times. I get pins and needles very easily. I've been noticing that I'm getting really sensitive to certain temperatures. And I've recently started having new bowel problems. Should I ask my doctor about gettting an MRI and running more tests?
I have fibromyalgia too. My advice to you, say this: "I have fibromyalgia which is a central nervous system disorder that affects all the muscles in your body." Leave it as a statement of fact and do not worry (easier said than done) about what others may be thinking. There can be extreme guilt with an invisible condition and I know I used to feel like I needed people to understand that it is real . Then l realized that whether they think it is or isn't, doesn't make it any less real. I always tell my daughter "everyone has "stuff". Sometimes you can see their stuff, other times you can't. But everyone is dealing with "stuff". God bless you.
No doubt - 2 MRIs, 1 spinal tap and many many tests later - I am labeled with Fibro. I hurt - no answers. It may sound ridiculous - a diagnosis of MS would be stressful and I would cry my eyeballs out - but at least I would know what I am dealing with, how to treat it, and people wouldn't look at me as though I am looney or a faker when I say, "they say it is Fibro". That carries such a stigma! Oh well, screw them;0) I will work with the diagnosis I have and try to be healthier! I hate exercise, argh...
This is important information. Many people that have symptoms of MS may indeed have Fibro lurking in the background, just as I did... Not trying to diagnose anyone, just think that putting the information out there, can help.
Thanks Hun that was really interesting
Iv also read that it is a neurological disorder and chronic as well not according to my doctor thogh LOL maybe ill print this off so she can read up on it.
They seem to be looking for a neurological condition with me but no-one has mentioned fibro and i often wonder if its that and not MS.
Samantha