I saw my new neurologist Monday, and I really like him. He did a very thorough history and physical/neuro exam. He listened carefully. He's letting me keep the same Tysabri infusion center. I told him I willing to switch centers to where he's affiliated, and he said, "no, you can keep going where you have friends, and know the nurses". Yes!!
I asked him about my word scanning, cog-fog, and lack of creativity. He told me it was the meds I'm taking for TN and spasticity. Already, I've weaned myself off Soma and Trileptal. Starting next Monday, I start weaning myself off Gabapentin. If my TN fires up again, well, I'll have to ramp up again. Oh, well.
Woohoo! Iadore hearing neurologist love stories. A - it's great for any patient and B - I've never met one I didn't like and didn't treat me with professional competency, so I wind up feeling side-lined and a bit of a freak in most of the 'let's bash the neuro' threads (though I completely concede some are not on the ball and shouldn't be tolerated).
Great news on this fine Friday! Fingers crossed the TN takes a permanent vacation.
Med wise speaking, There are others you may be able to swap in for the gabapentin. It stopped working for my neuropathic foot pain so I's just switched to Lyrica. Tomorrow is the end of first week on Lyrica alone. Relief is pretty good and no side effects.
I got off all the nerve medicines. I was on 4 at once and felt out of it. I have not had to go back on so may be you will not. I did not want to bring up that I went off them if you needed to be on them. With everything it is benefit/risk. They had me on so many medications I was at the pharmacy all the time. Now I only go twice a month. Doctors would add and no one subtracts. There is a lot of trial and error.
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