I am Back

[missy72450]

I've been gone for time started a new job teaching nursing school and working on a masters in nursing. This takes alot of time.

I miss all of you I hope everyone is good. Can't log in without a question...... Anyone have loss of feeling in one or both legs but only in the front or back and or have one or both eyes deviated toward the center?

[missy72450]

I am enjoying school Red however i am not enjoying stress. This summer was hard and hot.

I really had a good time without major smptoms except fatigue and then bam here we are again.
I am hurting but you all are so nice. I have a great husband but I can't keep hurt ing him.

I really am better today thanks to you all

missy  

[RedFlame]

Hi Missy.  I can relate to the 'if I don't talk about it ---it's not real' thinking. It's a way to deny.  It's nice while it lasts.  Crying and yelling sounds like deep hurt to me---and a release of how your body feels.  I'm sorry you are feeling so poorly!

Quix is right of course!  Living alone is not a good idea.  Unless you have extrordinary help everyday.  It's too dangerous I think, if you fell or couldn't see or something like that.  

Im sorry you are having such trouble with your meds.  

I hope you have been able to have some fun in the masters program.  It can be a blast.  

Red

[missy72450]

The Beta?????? how are the side effects on that one. i have a friend on Avonex and she is sick every week with that one.

missy

[jensequitur]

I was on Copaxone, and now I'm on Beta.  I had to stop taking the Copax because I kept getting the immediate post-injection reaction... and it looks like I'm becoming allergic to Copaxone.  

The good thing about Copaxone is that you don't have to mix the solution.  The negatives are the IPIR, the lipo-atrophy, and the knots at the injection sites.

[missy72450]

Such a wise woman you are. I will stop looking for a hideaway. I do see my neuro friday. What do you think of Copaxone?

I am also gonna ask for Provigil. I really think if I were not so freakin tired all the time my depressed state would lift (maybe).

If I am not crying I am yelling. Not a good combo.

You are right about the Ostrich method. I was kicked in the behind all weekend.  And speaking from a personal level I can see whi suicide is 7 times higher in the MS population.


I found out today the last eye doc prescribed the wrong glasses because my nerves were prob inflammed at the time so that is prob the reason why so many stupid headaches. My script has not really changed in the last 2 years.

I had to change eye doctors last year due to ins changes but got to go back to Dr. laura this year.

She has been seeing me for almost 10 years.

[Quixotic1]

Missy, in general the idea of living alone is not a great one unless you have an excellent and proactive social support network.  Depression is a major problem in MS and is caused by the disease itself, plus also caused by the problems that MS causes.  Suicide is 7 times more likely in MS than in the general population.  The greatest factor in suicide in MS is social isolation.

I would recommend some family counseling or even just some frank talk about what the disease does to your emotions that are beyond your control.  The MS Society has a brochure on this topic and your neuro might have more.  Sometimes if they can see that the depression is part of the disease and NOT just your reaction to it, there can be a greater compassion and tolerance.  You might consider some counseling and/or treatment if it is getting the best of you.

The Ostrich-Method of dealing with the diagnosis has been tried before, lol.  But, while the head is in the sand, someone is always kicking the behind.

Quix

[missy72450]

Thanks, I really love the job. Teaching has always been a passion of mine.

Depression is a problem right now that is why the thinking of living alone. I am not real good for my family.

I have always been the eternal optimist. I have always relied on my faith. Been a tough year.

This too shall pass.

Love and prayers,

Missy

[HVAC]

Welcome back. Good on the job!

Alex

[missy72450]

Quix,

Having a bad week, had solumedrol last week, fell twice this morning getting ready for work, thinking of living alone.

Love my new job, I love to teach. at least there are notes in front of you so you dont have to rely completely on memory.

Rhuemotolgy ruled out everything else and back TO THE MiSerable diagnosis. See a Ophthamologist tommorro for the eye thing, colors are skewed.

I think I will ask for Provigil and maybe Copaxone?????

Julie,

It is numb patch that run the front of my bad leg from mid thigh down the calf. Dumb feeling but scary.

i do miss the communication. I went through a period of if I don't talk about it it will go away. Stupid talk for a nurse huh?

i will keep in touch.

missy

[Sarahsmom46]

It's good to see you log back in too.  I hope you are finding your job rewarding and good-luck with going for your masters.  

I don't have total loss of feeling in my legs, but do have numb patches mostly on the front/side of my right let - the bad one.  

What else is happening with you these days?  

Julie

[Quixotic1]

Hi, Misssy, great to see you back!!  No and No, but still wonderful to hear you are doing so much.  How is it going?

Quix