Aa
I am afraid.....
I've been trying not to think about it... but I scared myself terribly today.
I left the burner on the stove on for a very long time, because I forgot to turn it off. I've been doing this more and more lately, but I've always caught it, but today it was on a very long time becuase no one was home and the fridge was hot by the time I got it turned off.
I've been trying to just stuff it all, you know ,the strange things mentally. The fact that I can't remember from one minute to the next what I should be doing, or remember what happened yesterday, last week or 4 years ago. I can't add or say my abc's, and please don't ask me to repeat back to you what you just said. I finding it hard to hold a conversation without sounding like a dummy becuase my words aren't there anymore. I find it harder and harder to type without spelling everything wrong, and I simply try not to handwrite anything becuase I leave so many letters out of words. It is scaring me. I even have mispelled my own name on occasion. I get lost in places i've been all my life, and I can't place faces or names of people and friends who know me
I got the results from my latests MRI on friday and the nurse read it off the fax and said on "it's fine to me".
So if nothing wrong structurally with my brain, and I'm not taking medication that would cause this, WHAT IS HAPPENING TO ME????
ok, I understand that you can't Dx me, but I just need some hugs, as I'm trying not to lose it here.
thanks
~Sunnytoday~
I left the burner on the stove on for a very long time, because I forgot to turn it off. I've been doing this more and more lately, but I've always caught it, but today it was on a very long time becuase no one was home and the fridge was hot by the time I got it turned off.
I've been trying to just stuff it all, you know ,the strange things mentally. The fact that I can't remember from one minute to the next what I should be doing, or remember what happened yesterday, last week or 4 years ago. I can't add or say my abc's, and please don't ask me to repeat back to you what you just said. I finding it hard to hold a conversation without sounding like a dummy becuase my words aren't there anymore. I find it harder and harder to type without spelling everything wrong, and I simply try not to handwrite anything becuase I leave so many letters out of words. It is scaring me. I even have mispelled my own name on occasion. I get lost in places i've been all my life, and I can't place faces or names of people and friends who know me
I got the results from my latests MRI on friday and the nurse read it off the fax and said on "it's fine to me".
So if nothing wrong structurally with my brain, and I'm not taking medication that would cause this, WHAT IS HAPPENING TO ME????
ok, I understand that you can't Dx me, but I just need some hugs, as I'm trying not to lose it here.
thanks
~Sunnytoday~
Interesting idea - I've worn sunglasses, but they're usually just the dark gray kind.
> Forgetting names, driving automatically toward work, leaving appliances on - it's all a part of normal life also.
That's absolutely true, and we have to be careful not to blame everything on the MS. I'm pretty sure that my recent difficulties with memory are because of the MS. However, my mom has always been absentminded, always leaving things on the stove, always forgetting where she put something - it's gotten to the point that I can't trust her not to lose my pencils! (We're both artists, and often share supplies.) I'm not sure if she's gotten worse, or if she's the same as she always was.
> Forgetting names, driving automatically toward work, leaving appliances on - it's all a part of normal life also.
That's absolutely true, and we have to be careful not to blame everything on the MS. I'm pretty sure that my recent difficulties with memory are because of the MS. However, my mom has always been absentminded, always leaving things on the stove, always forgetting where she put something - it's gotten to the point that I can't trust her not to lose my pencils! (We're both artists, and often share supplies.) I'm not sure if she's gotten worse, or if she's the same as she always was.
I just got back from the low vision specialist a couple days ago! He done more test on my eyes and vision, tried different prisms, carefully checked my eyes for nastagmus, deviations, ocular motor problems ect... and found none.
I kept trying to explain to him that I cannot keep my focus on any object without it feeling like something is drifting my focus away from the target. I also explained about the glare, especially in Walmart( they need to get rid of those florecent lights) LOL!!!
Anyway, he says that the problem is definately not in my eyes, this is what all my eye doctors have said! Well at least they all agree on something anyway!!!!!!!!! It definately is in my brain. I ask if he had ever had a patient with weird problems like mine that could not be explained by an eye exam! He first said no, and then said only MS patients or similar problems!
He said I have a stignatism and that I am have hyperopia( far sightedness) but not enough to require correction. He is ordering me some filters that wrap around to help me in the stores and in bright places. he tried three different shades , orange, yellow, and amber. The amber worked best because it cut out the glare of the lights, but lite the room up enough to make it clear and not too dark!
I can't wait to get the filters, so I can go into places like Walmart and not be driven crazy by the flickering and glare!!!!!
Maybe this will help this problem, I hope anyway!!!!!!
~Santana~
I kept trying to explain to him that I cannot keep my focus on any object without it feeling like something is drifting my focus away from the target. I also explained about the glare, especially in Walmart( they need to get rid of those florecent lights) LOL!!!
Anyway, he says that the problem is definately not in my eyes, this is what all my eye doctors have said! Well at least they all agree on something anyway!!!!!!!!! It definately is in my brain. I ask if he had ever had a patient with weird problems like mine that could not be explained by an eye exam! He first said no, and then said only MS patients or similar problems!
He said I have a stignatism and that I am have hyperopia( far sightedness) but not enough to require correction. He is ordering me some filters that wrap around to help me in the stores and in bright places. he tried three different shades , orange, yellow, and amber. The amber worked best because it cut out the glare of the lights, but lite the room up enough to make it clear and not too dark!
I can't wait to get the filters, so I can go into places like Walmart and not be driven crazy by the flickering and glare!!!!!
Maybe this will help this problem, I hope anyway!!!!!!
~Santana~
Thanks Quix... a year ago it was me catching my mom who had left the burner on.... while this may be strange.... i never did that. BUT not to say that I wouldn't have even if all the other stuff wasn't going on in my life.
Gotta admit, your post did make me laugh, but how terrible it must have been to try on those rings, steam burns hurt the worst!
I'm going to try wearing a cap next time, what a wonderful idea!! I wrote in my other post this evening about my muscles how my Wally-Whirled trip went.... it wasn't too great to say the least. I always come out of there a mess! It doesn't matter if i'm not walking, I'm exhausted and just tired mentally too after that shopping trip. blah!
ooh, gotta run,
bye
~Sunnytoday~
Gotta admit, your post did make me laugh, but how terrible it must have been to try on those rings, steam burns hurt the worst!
I'm going to try wearing a cap next time, what a wonderful idea!! I wrote in my other post this evening about my muscles how my Wally-Whirled trip went.... it wasn't too great to say the least. I always come out of there a mess! It doesn't matter if i'm not walking, I'm exhausted and just tired mentally too after that shopping trip. blah!
ooh, gotta run,
bye
~Sunnytoday~
Fluorescent lighting often has subtle flickering that can drive a person with poor balance nutz! I recommend getting a long billed baseball cap to wear in stores like that like Jen says. Otherwise the dizziness, disorientation, and nausea will drive you out. Wally-Whirled is one of the best examples! (though I hate it for other reasons).
My sis, who cares for me, is always leaving a burner on - or putting something to simmer for an hour and turning the wrong burner on. Melting Tupperware stinks!
When I was at the height of my mental prowess I left a copper kettle on a burner on high and burned the bottom right off. That was okay, until ole brainiac here thought I should cool it off with water. The steam burned my left hand so badly!! And that was just two days before we were to go to Tiffany's (yes, Tiffany's) to pick out my engagement ring. Sliding rings on and off hurt so much, not to mention that the hand was a mess!
Now, I don't take ANYTHING of the stove until I have first turned off the burner. It was a lsow habit to develop, but I Never leave anything on now.
When we have cause for concern about our mental powers we tend to blame everything on them. We forget that in our better days we did many of the same things and made light of it. We have to be careful not to be too hard on ourselves. Forgetting names, driving automatically toward work, leaving appliances on - it's all a part of normal life also.
Quix
My sis, who cares for me, is always leaving a burner on - or putting something to simmer for an hour and turning the wrong burner on. Melting Tupperware stinks!
When I was at the height of my mental prowess I left a copper kettle on a burner on high and burned the bottom right off. That was okay, until ole brainiac here thought I should cool it off with water. The steam burned my left hand so badly!! And that was just two days before we were to go to Tiffany's (yes, Tiffany's) to pick out my engagement ring. Sliding rings on and off hurt so much, not to mention that the hand was a mess!
Now, I don't take ANYTHING of the stove until I have first turned off the burner. It was a lsow habit to develop, but I Never leave anything on now.
When we have cause for concern about our mental powers we tend to blame everything on them. We forget that in our better days we did many of the same things and made light of it. We have to be careful not to be too hard on ourselves. Forgetting names, driving automatically toward work, leaving appliances on - it's all a part of normal life also.
Quix
I think you will get better. I did - I'm not 100%... (just got done with my neuro-psych, I'll post in another thread to talk about that!) But I'm able to go to work and get stuff done, which is much better than before.
Man, Wally-Whirled... I have a hard time in there. I get confused and have a hard time remembering what I'm looking for, and then I get dizzy and off balance... I don't know if it's the bright lights or the multitudes of product on the shelves.
If you have the same kind of hard time I do, try this - shade your eyes when looking at the shelves. Blocking off the lights and the excess information around the shelf I'm looking at helps me concentrate on what's in front of me.
Man, Wally-Whirled... I have a hard time in there. I get confused and have a hard time remembering what I'm looking for, and then I get dizzy and off balance... I don't know if it's the bright lights or the multitudes of product on the shelves.
If you have the same kind of hard time I do, try this - shade your eyes when looking at the shelves. Blocking off the lights and the excess information around the shelf I'm looking at helps me concentrate on what's in front of me.
I'm going to wallyworld tonight to find a timer... hope that doesn't end up in a laughter/tears like the last trip did. Grins.
I had my last MRI on a 1.0 or a 1.5 Tesla machine. the nearest one that is better is about 2 or 3 hours away, but if they do push for more i will look into that one.
This thread continues to make me feel better....I just hope that this is a phase and I will ease out of it some soon. I was putting my number backwards today, and would see them once one way and say them another and look at them a third and see them in a different order. Frustrating when working with records and numbers for hours.
Thanks to all!
~Sunnytoday~
I had my last MRI on a 1.0 or a 1.5 Tesla machine. the nearest one that is better is about 2 or 3 hours away, but if they do push for more i will look into that one.
This thread continues to make me feel better....I just hope that this is a phase and I will ease out of it some soon. I was putting my number backwards today, and would see them once one way and say them another and look at them a third and see them in a different order. Frustrating when working with records and numbers for hours.
Thanks to all!
~Sunnytoday~
That's right, Sunny, hang in there. Everybody's given you lots of great ideas on how not to burn the house down. I always set a timer, no matter what thing it is I'm doing, so I'll remember that it's going on. Watering the yard, cooking, washing clothes, if I don't set a timer, I'll forget.
Your cognitive problems sound very familiar to me... I had similar cognitive difficulties last year. You're going to think you're going insane, but you're not. All the problems you're having are documented neurological difficulties. Even the facial recognition and not being able to say your ABCs - a bit of your brain has freaked out, so you're not able to make those connections.
Don't give up on your diagnosis. You have all the classic signs of MS. If I were your doctor, you'd be diagnosed. But this is why I'm not a doctor!
Pursue getting better MRIs on a higher Tesla machine - I don't know what your MRIs were done on, but see if you can find a 3 Tesla machine, as they show a lot more information. There's also clinical studies being done that use optical coherence tomography to look at the optic nerve, so your nerve atrophy can be tracked without the MRI.
Your cognitive problems sound very familiar to me... I had similar cognitive difficulties last year. You're going to think you're going insane, but you're not. All the problems you're having are documented neurological difficulties. Even the facial recognition and not being able to say your ABCs - a bit of your brain has freaked out, so you're not able to make those connections.
Don't give up on your diagnosis. You have all the classic signs of MS. If I were your doctor, you'd be diagnosed. But this is why I'm not a doctor!
Pursue getting better MRIs on a higher Tesla machine - I don't know what your MRIs were done on, but see if you can find a 3 Tesla machine, as they show a lot more information. There's also clinical studies being done that use optical coherence tomography to look at the optic nerve, so your nerve atrophy can be tracked without the MRI.
I almost burned our house down earlier this summer. I didn't leave the stove burner on, I left the gas grill on - which is direct piped to the natural gas at our house - for an entire weekend while were were gone!!!
I had grilled out on a Thursday evening, then left for the lake on Friday morning. Got home on Monday morning and when out to cut the grass and felt the heat from the grill (left on high) 10 feet away. The grill is only about 6 feet from our house - God was really watching out for us! Needless to say the gas bill was terribly high that month, but other than that there was luckily no "damage". My hubby now checks the gas each time after I grill - just to be sure!
I saw a psy a few months before my ms dx - I thought I was loosing my mind - forgetting things, not following through, etc, etc. They dx me with adult ADD- tried some ADD meds and didn't see any improvement. now I am sure it is the ms cog fog thing - wish it had been ADD, at least for that there are meds you can take - doesn't seem to be anything to help it. I may try some different ADD meds to see if they might help, but the concerta the started me on did not help at all.
Best of luck to you. It does help me to know that I am not alone in this - there are many others with the same or worse issues. But I too am scared of what the future holds if this is how bad I am now at 45. I do not have bad "physical" symptoms/problems with my ms - mainly eye issues and the cognative problems. I know the "grass is always greener", but I personally I would rather have the physical problems that to loose my mind and go blind. I guess that is why we don't get to choose!!
jewski
I had grilled out on a Thursday evening, then left for the lake on Friday morning. Got home on Monday morning and when out to cut the grass and felt the heat from the grill (left on high) 10 feet away. The grill is only about 6 feet from our house - God was really watching out for us! Needless to say the gas bill was terribly high that month, but other than that there was luckily no "damage". My hubby now checks the gas each time after I grill - just to be sure!
I saw a psy a few months before my ms dx - I thought I was loosing my mind - forgetting things, not following through, etc, etc. They dx me with adult ADD- tried some ADD meds and didn't see any improvement. now I am sure it is the ms cog fog thing - wish it had been ADD, at least for that there are meds you can take - doesn't seem to be anything to help it. I may try some different ADD meds to see if they might help, but the concerta the started me on did not help at all.
Best of luck to you. It does help me to know that I am not alone in this - there are many others with the same or worse issues. But I too am scared of what the future holds if this is how bad I am now at 45. I do not have bad "physical" symptoms/problems with my ms - mainly eye issues and the cognative problems. I know the "grass is always greener", but I personally I would rather have the physical problems that to loose my mind and go blind. I guess that is why we don't get to choose!!
jewski
Hi Sunny, I'm undxed like you, but I could have been the one writing your post!!! It is very frustrating and scary at times I totally agree.
Rena's suggestions are great. I too bought an iron that automatically cuts off, much safer for me. Still having problems with the curling iron, but I don't use it much cause my arms don't work. Guess I will have to check in to one of those that cuts off by itself.
Left the oven on just the other day, but luckily it was the weekend and hubby cut it off for me. I am notorious for leaving burners on, especially if they are on low heat.
As far as conversation, I go through weeks of not being able to talk. Actually been going through this now for over a month. Names are no longer in my brain, makes me feel like such a dunce. Typing and writing too is awful. Used to could type like 98 wpm without any errors, now it's having to stop and correct every other word, takes me forever when I answer a post here.
My husband and I used to be residential home builders and I worked on the jobsites and did all the paperwork. Now I can barely keep our check book balanced and pay bills. I have messed up our bank balance, I don't know how many times...not subtracting a check....forgetting to write something down....etc. I am almost paranoid every time I have to pay bills cause I'm afraid I'm gonna mess up again.
Like Rena, I have a running list of notes just to get me through the day. I have to write things down the minute they enter my brain or they will simply disappear. I have decided to buy one of those small recorders so that I don't even have to write things down, (because sometimes I forget where I put my notes) I'll just record things as I think of them and maybe I can manage better. I can keep a recorder in my pocket all the time(maybe I won't lose it...ha...ha...).
As for getting lost. Well, haven't exactly gotten lost, but have had brief episodes of confusion while driving. Like be going to a familiar place and just all of a sudden not know where I am, then just as quickly (maybe a minute) recognize where I am again. This has happened maybe 5 or 6 times in the past year.
My scariest thing is I can be somewhere, most often grocery shopping, and totally zone out and not know where I am. I'll just stand there for a couple minutes and my senses will slowly come back. Happened just recently at Wal Mart while buying groceries. Makes me afraid to go anywhere by myself anymore.
Well, I didn't mean to run on so long, but I just wanted you to know you are not losing it or going crazy. I totally agree with Rena that we just have to find a way around the things that are happening to us and find new ways to handle them.
You take care of yourself and I'm sending bunches of (((((((((((((hugs)))))))))))))))) and prayers.
doni
Rena's suggestions are great. I too bought an iron that automatically cuts off, much safer for me. Still having problems with the curling iron, but I don't use it much cause my arms don't work. Guess I will have to check in to one of those that cuts off by itself.
Left the oven on just the other day, but luckily it was the weekend and hubby cut it off for me. I am notorious for leaving burners on, especially if they are on low heat.
As far as conversation, I go through weeks of not being able to talk. Actually been going through this now for over a month. Names are no longer in my brain, makes me feel like such a dunce. Typing and writing too is awful. Used to could type like 98 wpm without any errors, now it's having to stop and correct every other word, takes me forever when I answer a post here.
My husband and I used to be residential home builders and I worked on the jobsites and did all the paperwork. Now I can barely keep our check book balanced and pay bills. I have messed up our bank balance, I don't know how many times...not subtracting a check....forgetting to write something down....etc. I am almost paranoid every time I have to pay bills cause I'm afraid I'm gonna mess up again.
Like Rena, I have a running list of notes just to get me through the day. I have to write things down the minute they enter my brain or they will simply disappear. I have decided to buy one of those small recorders so that I don't even have to write things down, (because sometimes I forget where I put my notes) I'll just record things as I think of them and maybe I can manage better. I can keep a recorder in my pocket all the time(maybe I won't lose it...ha...ha...).
As for getting lost. Well, haven't exactly gotten lost, but have had brief episodes of confusion while driving. Like be going to a familiar place and just all of a sudden not know where I am, then just as quickly (maybe a minute) recognize where I am again. This has happened maybe 5 or 6 times in the past year.
My scariest thing is I can be somewhere, most often grocery shopping, and totally zone out and not know where I am. I'll just stand there for a couple minutes and my senses will slowly come back. Happened just recently at Wal Mart while buying groceries. Makes me afraid to go anywhere by myself anymore.
Well, I didn't mean to run on so long, but I just wanted you to know you are not losing it or going crazy. I totally agree with Rena that we just have to find a way around the things that are happening to us and find new ways to handle them.
You take care of yourself and I'm sending bunches of (((((((((((((hugs)))))))))))))))) and prayers.
doni
Hi.
Thankyou for your kind welcome.
I too haven't been dx yet, have an mri next week. I left the stove on too last week. My partner asked me if i was cooking anything and i said no, i'd made the children food a while before and he told me the stove was still on! I forget things so easily, i'll go to the shop for something and completely forget what i went for, or i'll forget what someone has told me or asked me to do. My partner asked me the other day to put petrol in the car when i went out, and forgot, when he took the car out later in the evvening, he broke down!!! he yelled at me, saying " i told you to put petrol in the car" but i'd forgotton... i felt terrible. And i find i'm stammering alot too when i'm talking and i can't get my words out.
I know how you feel.
Lots of hugs to you,
Nicola
Thankyou for your kind welcome.
I too haven't been dx yet, have an mri next week. I left the stove on too last week. My partner asked me if i was cooking anything and i said no, i'd made the children food a while before and he told me the stove was still on! I forget things so easily, i'll go to the shop for something and completely forget what i went for, or i'll forget what someone has told me or asked me to do. My partner asked me the other day to put petrol in the car when i went out, and forgot, when he took the car out later in the evvening, he broke down!!! he yelled at me, saying " i told you to put petrol in the car" but i'd forgotton... i felt terrible. And i find i'm stammering alot too when i'm talking and i can't get my words out.
I know how you feel.
Lots of hugs to you,
Nicola
thanks too all who posted! This caring posts made me feel so much better- and not alone!
Nope, still a clear brain MRI, and C-spine according to nurse, and haven't had anything lower on the spine yet.
I must run and go to clincals, but I will be back this afternoon.
Have a blessed day!
~Sunnytoday~
Nope, still a clear brain MRI, and C-spine according to nurse, and haven't had anything lower on the spine yet.
I must run and go to clincals, but I will be back this afternoon.
Have a blessed day!
~Sunnytoday~
My dear girl, when I read your post, I thought that I was reading about myself !!!!
What a releif to know that I am not the only one with these problems. I cannot type wothout making heaps of typo errors and I am a terror for getting my letters back to front, sometimes even whole words, especially when speaking.
I too lately have left the electric frying pan and oven on too. It really scared me the first time it happened. Now my hubby checks on them after I have finished cooking to make sure that I remembered to turn them off.
I am waiting for my MRI appt so I have not been officially diagnosed with MS as yet but my doctor is fairly sure that I do have ti woth all the symptoms that I am having.
Take care and hhhuuuuuuuggggggggsssss
bearsmum
What a releif to know that I am not the only one with these problems. I cannot type wothout making heaps of typo errors and I am a terror for getting my letters back to front, sometimes even whole words, especially when speaking.
I too lately have left the electric frying pan and oven on too. It really scared me the first time it happened. Now my hubby checks on them after I have finished cooking to make sure that I remembered to turn them off.
I am waiting for my MRI appt so I have not been officially diagnosed with MS as yet but my doctor is fairly sure that I do have ti woth all the symptoms that I am having.
Take care and hhhuuuuuuuggggggggsssss
bearsmum
Hang in there girl it is all so much i know, and well we all understand here. I also have same cognitive problems so much so i cannot write much and even typing i make many mistakes and get too tired then to correct them.
I just wanted to Hug you and say we care
love
sarah
I just wanted to Hug you and say we care
love
sarah
I read that your MRI didn't show any lesions, Is this correct? I have about 10 brain lesions on MRI that have not changed in two years since the attack. Some of your symptoms that you mentioned, I have had or still have slightly now!
My lesions are in the Corpus Collosum, Parietal and Occitpal lobes mostly! I done some studying on Brain Anatomy and different deficits that are caused by lesions in different parts of the brain. I found a lot of my unexplained symptoms when studying the Parietal lobes, in a condition called Gerstmann's Syndrome. Gerstmann's Syndrome is caused by left Parietal damage.
This syndrome consists of :
Right/left confusion { I have this}
(Agraphia) inability to write
or
(Dysgraphia) difficulty writing { I have this}
(Acalculia) inability to do mathematics
or
(Dyscalcula) difficulty doing mathematics { I have this}
(Finger Agnosia) inability to name fingers
MY deficeits that I have traced to the lesions on the Right Parietal lobe are:
(Dressing Apraxia) inability to dress one's self { I had this at the beginning}
I know your MRI didn't show lesions, but you still may have some here or other places in the brain. I am telling you this because I don't want you to think that you are loosing your mind. I had and still have trouble thinking, holding a thought or concentrating at times. I have memory problems now and sometimes feel stupid , as I never had these problems before my attack. It helps somewhat to know that these are the result of the damage that the lesions caused. It doesn't make them go away, but having a real reason that these things are happening cancel's out the theory that we are loosing our minds.
Aquired Gerstmann's Syndrome has no cure, but can improve over time, as I have seen happening with me. The deficeits are not as bad as they were at the start and seem to be trying to go away with time!!!!
Just wanted to let you know that there are reasons that you are having these strange symptoms and you most definately are not loosing your mind!!!!!!!!!
Let me know if you need to talk about anything, I am always here to listen!!!!!!!!!
Friends,
~Santana~
My lesions are in the Corpus Collosum, Parietal and Occitpal lobes mostly! I done some studying on Brain Anatomy and different deficits that are caused by lesions in different parts of the brain. I found a lot of my unexplained symptoms when studying the Parietal lobes, in a condition called Gerstmann's Syndrome. Gerstmann's Syndrome is caused by left Parietal damage.
This syndrome consists of :
Right/left confusion { I have this}
(Agraphia) inability to write
or
(Dysgraphia) difficulty writing { I have this}
(Acalculia) inability to do mathematics
or
(Dyscalcula) difficulty doing mathematics { I have this}
(Finger Agnosia) inability to name fingers
MY deficeits that I have traced to the lesions on the Right Parietal lobe are:
(Dressing Apraxia) inability to dress one's self { I had this at the beginning}
I know your MRI didn't show lesions, but you still may have some here or other places in the brain. I am telling you this because I don't want you to think that you are loosing your mind. I had and still have trouble thinking, holding a thought or concentrating at times. I have memory problems now and sometimes feel stupid , as I never had these problems before my attack. It helps somewhat to know that these are the result of the damage that the lesions caused. It doesn't make them go away, but having a real reason that these things are happening cancel's out the theory that we are loosing our minds.
Aquired Gerstmann's Syndrome has no cure, but can improve over time, as I have seen happening with me. The deficeits are not as bad as they were at the start and seem to be trying to go away with time!!!!
Just wanted to let you know that there are reasons that you are having these strange symptoms and you most definately are not loosing your mind!!!!!!!!!
Let me know if you need to talk about anything, I am always here to listen!!!!!!!!!
Friends,
~Santana~
p.s. Sunny, he indeed was correct. Was the large one in my spinal cord causing all the problems.
Shell
Shell
Hey Sunny,
Did you have an MRI of your spine yet?
I have had so many of those problems too, and my Dr said he suspect I had a lesion in my c-spine.
I'm sorry this is happening. You have every right to be scared. Please be as careful as you can. Can you have anyone double check you from time-to-time until you see some improvement. I really thought improvement was not possible, and while I'm not 100% it did happen to some degree where some of that is concerned.
Stay w/us,
Shelly
Did you have an MRI of your spine yet?
I have had so many of those problems too, and my Dr said he suspect I had a lesion in my c-spine.
I'm sorry this is happening. You have every right to be scared. Please be as careful as you can. Can you have anyone double check you from time-to-time until you see some improvement. I really thought improvement was not possible, and while I'm not 100% it did happen to some degree where some of that is concerned.
Stay w/us,
Shelly
thanks all... these are some great suggestions... I will try to put some of them into practice tomorrow. Mom and I will shop for an iron and a timer, and I hope no one will look to closely at my hands, they are about to become a human post-it note.... I used to write on them all the time until I started to work and folks thought it looked a little unprofessional. Smiles.
I'm so glad I posted, i feel much better now knowing that I'm not going crazy. Smiles....
~Sunnytoday~
I'm so glad I posted, i feel much better now knowing that I'm not going crazy. Smiles....
~Sunnytoday~
Actually I just bought a Sunbeam Iron last week that shuts off automatically after 1/2 hour of non use and it was one of the cheaper ones...only $19.97! There are other appliances that you can invest in that turn off by themselves that might be worth looking into as well. I like Ada's idea of writing on the back of your hand but like she says...what if you write flush the toilet on your hand and it transfers to your forehead??? he he he
Rena
Rena
I always just thought I was going insane. My husband always says he is going to do something or says something and I have no clue what he is talking about. He says I have selective hearing, and that may be so......... :) however, on many occassions I just completley forget a whole conversation I had with someone. The thing that drives my husband more crazy than that is when I start a conversation it is like I never even say anything, I just said a whole bunch of nothing. I always thought maybe I had adult ADD or something but maybe it is the MS. Very interesting........
I know one thing that helps me with my memory is that anytime I have something going on I have it in 3 places. I have a regular wall calendar, my microsoft calendar and a palm pilot that is linked to my computer and it reminds me. People think I am crazy but it really works. If I think of something I have to write it down or do it right then or it will never get done. Man, I am so glad I am not the only person out here that is crazy. LOL!!:)
I know one thing that helps me with my memory is that anytime I have something going on I have it in 3 places. I have a regular wall calendar, my microsoft calendar and a palm pilot that is linked to my computer and it reminds me. People think I am crazy but it really works. If I think of something I have to write it down or do it right then or it will never get done. Man, I am so glad I am not the only person out here that is crazy. LOL!!:)
Hey Sweetie, I sure can relate to the stove thing, it really scared the c-rap out of me a few times but I started using the timer and now I don't seem to have any probs with it anymore unless I forget to put the timer on.
I have also found the back of my hand is the worlds best notepad, totally eraseable, and there is always more room on the arm if you need it. The only prob is when it fades or somehow magically transfers to the cheek or forehead :) But it does help.
Sweetie, I would check into an iron that automatically shuts off, it might cost a little more but totally worth it. I have given up ironing, never was good at it anyway :)
Dont fret too much about this, it will be okay, Sweetie.
Love,
Ada
I have also found the back of my hand is the worlds best notepad, totally eraseable, and there is always more room on the arm if you need it. The only prob is when it fades or somehow magically transfers to the cheek or forehead :) But it does help.
Sweetie, I would check into an iron that automatically shuts off, it might cost a little more but totally worth it. I have given up ironing, never was good at it anyway :)
Dont fret too much about this, it will be okay, Sweetie.
Love,
Ada
OH MY WORD...... ok, so I went to the pantry to find stuff for my cake, and so help me, I found that i'd left the iron on since this morning....
Thank goodness you posted and said I wasn't losing my mind, or I would have just flipped out. As it is, I don't think I'll turn anything on without announcing it to the world (my family) or waiting until someone is home.
ok, breathe, I'm going to be ok. This, while not normal, is going to be ok.
RIGHT????
~Sunnytoday~
Thank goodness you posted and said I wasn't losing my mind, or I would have just flipped out. As it is, I don't think I'll turn anything on without announcing it to the world (my family) or waiting until someone is home.
ok, breathe, I'm going to be ok. This, while not normal, is going to be ok.
RIGHT????
~Sunnytoday~
THANK YOU! You're amazing, as are many others here. I'm going to go and bake, will turn on timer so I get the ovn off.
I'll have to go and buy a small egg timer, that's a good idea. I like the idea about notes, but they only work for about a week, and then I don't seee the note any more, and oops, there i go forgetting my keys, or to take my medicine, or something.
Thanks for the hugs, I NEEDED that.
Anyone else with anymore ideas would be amazing, i'm just trying to learn to cope, and along the way I freak myself out a time or two per day.
~Sunnytoday~
I'll have to go and buy a small egg timer, that's a good idea. I like the idea about notes, but they only work for about a week, and then I don't seee the note any more, and oops, there i go forgetting my keys, or to take my medicine, or something.
Thanks for the hugs, I NEEDED that.
Anyone else with anymore ideas would be amazing, i'm just trying to learn to cope, and along the way I freak myself out a time or two per day.
~Sunnytoday~
Hey sweetie...I can relate to just about everything that you have said here today and I have a diagnosis of MS with no treatment and I am right now holding my own other than my eyesight.
My memory was suffering terribly when I was first diagnosed but I have learned ways to deal with this deficit as you will too. I have a terrible time speaking and half the time when I do talk I sound as though I have been drinking my day away due to the slurring and stuttering. Yesterday I was trying to write in a birthday card and didn't realize until later that rather than writing Happy...I had hand written Happppppy! I really think that we learn what our limitations are and how to live with them and being that you don't have a diagnosis yet you may have to deal a little longer yet. However, there is light at the end of the tunnel and don't go simply by what the nurse reads off of the fax...the doctor is the final word and I certainly hope that the doctor will continue with tests or refer you to someone else.
In the meantime, you might want to change a few of the things you do daily just to ensure your's and your family's safety. I would consider not using the stove any longer and if you do perhaps an egg timer left on the stove and set to the approximate time you will be finished using a burner to remind you to turn it off. I put up signs for myself for a while until it got to be a habit that I did not leave the kitchen without reading the sign in my face that said CHECK THE APPLIANCES BEFORE YOU LEAVE THE ROOM!!! I had one in the bathroom as well because I would turn on the tub water and then forget I was going to have a bath...so another sign in my face in the bathroom read MAKE SURE THE WATER IS TURNED OFF!!!
I don't know if these little hints will help honey but you have to start somewhere...I fought it in the beginning but now these things are new "habits" and the household is back to being comfortable with me living here! he he
You are not losing it my dear...you just need like you said a big ((((((HUG))))))) and some guidelines to follow. I am sure that other members will pop in and give you some more ideas to work with but I hope that my ideas help a little to give you a little more confidence in yourself.
By the way...I have gotten lost in a neighborhood I lived in for 25 years, have mistaken a person I met in Walmart for someone I used to work with (very embarrasing) and names...well just forget it...I think a law should be passed that everyone wear name tags for people like us that have trouble with names don't you??
Lots and lots of hugs,
Rena
My memory was suffering terribly when I was first diagnosed but I have learned ways to deal with this deficit as you will too. I have a terrible time speaking and half the time when I do talk I sound as though I have been drinking my day away due to the slurring and stuttering. Yesterday I was trying to write in a birthday card and didn't realize until later that rather than writing Happy...I had hand written Happppppy! I really think that we learn what our limitations are and how to live with them and being that you don't have a diagnosis yet you may have to deal a little longer yet. However, there is light at the end of the tunnel and don't go simply by what the nurse reads off of the fax...the doctor is the final word and I certainly hope that the doctor will continue with tests or refer you to someone else.
In the meantime, you might want to change a few of the things you do daily just to ensure your's and your family's safety. I would consider not using the stove any longer and if you do perhaps an egg timer left on the stove and set to the approximate time you will be finished using a burner to remind you to turn it off. I put up signs for myself for a while until it got to be a habit that I did not leave the kitchen without reading the sign in my face that said CHECK THE APPLIANCES BEFORE YOU LEAVE THE ROOM!!! I had one in the bathroom as well because I would turn on the tub water and then forget I was going to have a bath...so another sign in my face in the bathroom read MAKE SURE THE WATER IS TURNED OFF!!!
I don't know if these little hints will help honey but you have to start somewhere...I fought it in the beginning but now these things are new "habits" and the household is back to being comfortable with me living here! he he
You are not losing it my dear...you just need like you said a big ((((((HUG))))))) and some guidelines to follow. I am sure that other members will pop in and give you some more ideas to work with but I hope that my ideas help a little to give you a little more confidence in yourself.
By the way...I have gotten lost in a neighborhood I lived in for 25 years, have mistaken a person I met in Walmart for someone I used to work with (very embarrasing) and names...well just forget it...I think a law should be passed that everyone wear name tags for people like us that have trouble with names don't you??
Lots and lots of hugs,
Rena
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