Aa
I'm So Excited!
Just wanted to drop by to tell you all that I'm all moved in and I LOVE the condo. It is just the right size for me and the location is absolutely perfect. Lots of restruants and movie theatre and shopping at my doorstep. And the subway is just 7 minutes walk in either direction.
I'm not so excited though about my neuro appointment last week. I am sick, strep throat and out of work several days last week and on top of that, my MS symptoms are back and going strong. The neuro said that he thinks this is related to the last relapse that I didn't truly recover from it, so steroids won't help. GRRR!!!
He also said that he does not believe the copaxone is helping anymore and had me go for another MRI. I am waiting to hear back, but he said last Monday that he wants to switch to betaseron. He said he would have preferred that I start off with the interferons first, but that I was insistant about trying copaxone first. I don't remember that.
What do you guys think about that? I have no idea what to do.
Otherwise, being sick and no TV or web access (I'm typing this at work - hope the boss isn't looking) has been a
challenge. Can't wait to feel better and get my stuff unpacked.
Hope you all are doing well. I can't wait to catch on everything you guys have been up to. Take care.
Julie
I'm not so excited though about my neuro appointment last week. I am sick, strep throat and out of work several days last week and on top of that, my MS symptoms are back and going strong. The neuro said that he thinks this is related to the last relapse that I didn't truly recover from it, so steroids won't help. GRRR!!!
He also said that he does not believe the copaxone is helping anymore and had me go for another MRI. I am waiting to hear back, but he said last Monday that he wants to switch to betaseron. He said he would have preferred that I start off with the interferons first, but that I was insistant about trying copaxone first. I don't remember that.
What do you guys think about that? I have no idea what to do.
Otherwise, being sick and no TV or web access (I'm typing this at work - hope the boss isn't looking) has been a
challenge. Can't wait to feel better and get my stuff unpacked.
Hope you all are doing well. I can't wait to catch on everything you guys have been up to. Take care.
Julie
Julie,
I was diagnosed in January 2010 and tonight will be taking my third Avonex injection (I'm not working at present, so I prefer to take them on Sunday nights for now.). I was very worried about the pain from the injection and the oft-discussed flu-like symptoms. I'm happy to report that thus far, the injections were a piece of cake (Bob, my signif. other gives them to me) and I've had very mild side effects. I take 2 200 mg. Iboprofen about 1 1/2-2 hrs. before the injection (which I get around 8 p.m.). I go to bed around 10 and take 2 more Ibuprofen in the morning when I wake up. I, like Quix, only feel mild achiness and stiffness--not bad at all.
The only other thing I'm aware of that they say can possibly occur with interferons is depression. They advise that you and family/friends keep an eye on that potential reaction and notify your dr. if you start feeling that way. So far, that hasn't been an issue for me--not sure how long it would be before a person might feel depression symptoms after starting Avonex, but as with everything else MS-related, it's probably different for everyone!
Nice to hear you're happy with your new condo. It's always nice to have pleasant surroundings to keep the stress level down (which hopefully will happen for you soon.)
Good luck with everything!
Wendy
I was diagnosed in January 2010 and tonight will be taking my third Avonex injection (I'm not working at present, so I prefer to take them on Sunday nights for now.). I was very worried about the pain from the injection and the oft-discussed flu-like symptoms. I'm happy to report that thus far, the injections were a piece of cake (Bob, my signif. other gives them to me) and I've had very mild side effects. I take 2 200 mg. Iboprofen about 1 1/2-2 hrs. before the injection (which I get around 8 p.m.). I go to bed around 10 and take 2 more Ibuprofen in the morning when I wake up. I, like Quix, only feel mild achiness and stiffness--not bad at all.
The only other thing I'm aware of that they say can possibly occur with interferons is depression. They advise that you and family/friends keep an eye on that potential reaction and notify your dr. if you start feeling that way. So far, that hasn't been an issue for me--not sure how long it would be before a person might feel depression symptoms after starting Avonex, but as with everything else MS-related, it's probably different for everyone!
Nice to hear you're happy with your new condo. It's always nice to have pleasant surroundings to keep the stress level down (which hopefully will happen for you soon.)
Good luck with everything!
Wendy
Julie,
I just wanted to wish you luck tomorrow at the doctors! :)
I wasn't trying to scare you away from the Avonex as an option. I hope that you will still check out all of your options.
My doctor at the Cleveland Clinic says that there are some people that just never get over the side effect and some times they lower the dose but they prefer not to. I wish that I were one of the majority that barely feels sick at all.
I didn't mean to imply that all whopping 48 hours of the weekend were in bed with the flu but I work like you and by the time I get home from work, take my normal rest, do all the chores and family stuff it's almost bed time on Friday and I feel awful already. Then I take all of my premeds and have some one inject me or do it myself if I can and climb in bed. If I don't fall asleep before the leg/ body aches set in it is a horrible night and that may be why I don't start to feel better til Sunday.
Everyone's MS is different and so is the way they react to not just DMD's but all of the meds we take to try and cope. Maybe whether or not also has something to do with the level of stress and if you work every day and are already toast? Who knows.
Good luck and keep us posted on the appointment and which DMD is the winner
Hugs,
Erin :)
I just wanted to wish you luck tomorrow at the doctors! :)
I wasn't trying to scare you away from the Avonex as an option. I hope that you will still check out all of your options.
My doctor at the Cleveland Clinic says that there are some people that just never get over the side effect and some times they lower the dose but they prefer not to. I wish that I were one of the majority that barely feels sick at all.
I didn't mean to imply that all whopping 48 hours of the weekend were in bed with the flu but I work like you and by the time I get home from work, take my normal rest, do all the chores and family stuff it's almost bed time on Friday and I feel awful already. Then I take all of my premeds and have some one inject me or do it myself if I can and climb in bed. If I don't fall asleep before the leg/ body aches set in it is a horrible night and that may be why I don't start to feel better til Sunday.
Everyone's MS is different and so is the way they react to not just DMD's but all of the meds we take to try and cope. Maybe whether or not also has something to do with the level of stress and if you work every day and are already toast? Who knows.
Good luck and keep us posted on the appointment and which DMD is the winner
Hugs,
Erin :)
My neuro is also loooking at an oral drug for me when they are available. He doesn't want me on another interferon because of my depression and he doesn't respect Copaxone for what ever reason. He also doesn't think that the current group of DMDs will work for me. So, I think I am headed for an oral also. Don't know how I will afford it as I can't afford any of the DMDs.
Q
Q
What an interesting factoid.
I appreciate the reasurance with the side effects of the Avonex. I was hoping Kathy was around this weekend since she is also new to it, but think she is out of town possibly.
This is all going on hold until I talk to my neuro and see what he may want to do at this point. He was really excited about the oral drug and has talked about it at just about every visit I've had with him for the past year. He didn't mention anything about it last time though.
Thanks so much for helping put this decision into perspective. You are definitely amongst the best of the best.
Julie
I appreciate the reasurance with the side effects of the Avonex. I was hoping Kathy was around this weekend since she is also new to it, but think she is out of town possibly.
This is all going on hold until I talk to my neuro and see what he may want to do at this point. He was really excited about the oral drug and has talked about it at just about every visit I've had with him for the past year. He didn't mention anything about it last time though.
Thanks so much for helping put this decision into perspective. You are definitely amongst the best of the best.
Julie
I also wanted to say that I was shocked that they had treated a strep infection with Septra. The rates of resistance of Strep to Septra/Bactrim (Trimethoprim-sulfamethoxazole or TMP-SMX) have always been pretty high and it is known be not being reliable against Strep. What a poor choice for a person in whom you want to quell an infection ASAP! This is simple, basic microbiology.
The drugs of choice for Strep throat are still oral or injected penicillin, one of the later generation cephalosporins (though these should be held in reserve for difficult cases due to not wanting to develop drug-resistance),- if allergic to penicillin then Erythromycin or even Zithromax or another in the macrolide category. Never is Bactrim (TMP-SMX) listed as one of the preferred antibiotics.
Sheesh!
Quix
The drugs of choice for Strep throat are still oral or injected penicillin, one of the later generation cephalosporins (though these should be held in reserve for difficult cases due to not wanting to develop drug-resistance),- if allergic to penicillin then Erythromycin or even Zithromax or another in the macrolide category. Never is Bactrim (TMP-SMX) listed as one of the preferred antibiotics.
Sheesh!
Quix
I don't remember many people complaining of multiple days of aching on the Avonex.
Typically it's a day or less and the symptoms are usually pretty well handled by ibuprofen.
In my case For the first month or so, I had about 18 hours of fluish-ness. I would inject at 7pm, all primed with acetaminophen an hour earlier. Take another dose as I went to bed, and if I was really achy when I got up at dawn for (pee, meds, cat's breakfast) then I would take another dose. But, by four months the symptoms were much, much milder and were lasting barely through the night and I was normal the next day. Several people have reported very similar things. For some the symptoms went away much faster.
Some people, like Heather, were never able to tolerated the interferon and eventually went off.
Avonex is by far the lowest dose at 30mcg per week.
Rebif is next in dosing at 22 mcg or 44mcg three times a week (so 66mcg or 132mcg per week)
Betaseron is 250mcg every other day - by far the highest dose.
In terms of side effects, they are "generally" felt by dose, not by the route of administration.
So, Avonex would be the best choice if there is fear of side effects. But, remember, in general they are NOT like having the flu, or even like the first day of a cold. I just had diffuse achiness which was not debilitating and an increase in stiffness for jsut a few hours. No way would it have spoiled a weekend - for me.
A non-steroidal antiinflammatory will usually take care of the side effects - Inbuprofen or naprosyn. Tylenol is not as good, but still did the trick for me. (I am allergic to aspirin and NSAIDS and they are contraindicated in the bleeding disorder I have).
Quix
Factoid: The body's immune system produces interferon-beta in the first day or so of a viral infection, like a cold, the flu, or even an outbreak of cold sores. That is why those symptoms feel like they do.
Typically it's a day or less and the symptoms are usually pretty well handled by ibuprofen.
In my case For the first month or so, I had about 18 hours of fluish-ness. I would inject at 7pm, all primed with acetaminophen an hour earlier. Take another dose as I went to bed, and if I was really achy when I got up at dawn for (pee, meds, cat's breakfast) then I would take another dose. But, by four months the symptoms were much, much milder and were lasting barely through the night and I was normal the next day. Several people have reported very similar things. For some the symptoms went away much faster.
Some people, like Heather, were never able to tolerated the interferon and eventually went off.
Avonex is by far the lowest dose at 30mcg per week.
Rebif is next in dosing at 22 mcg or 44mcg three times a week (so 66mcg or 132mcg per week)
Betaseron is 250mcg every other day - by far the highest dose.
In terms of side effects, they are "generally" felt by dose, not by the route of administration.
So, Avonex would be the best choice if there is fear of side effects. But, remember, in general they are NOT like having the flu, or even like the first day of a cold. I just had diffuse achiness which was not debilitating and an increase in stiffness for jsut a few hours. No way would it have spoiled a weekend - for me.
A non-steroidal antiinflammatory will usually take care of the side effects - Inbuprofen or naprosyn. Tylenol is not as good, but still did the trick for me. (I am allergic to aspirin and NSAIDS and they are contraindicated in the bleeding disorder I have).
Quix
Factoid: The body's immune system produces interferon-beta in the first day or so of a viral infection, like a cold, the flu, or even an outbreak of cold sores. That is why those symptoms feel like they do.
This is really valuable information and thanks for adding to what Ess started.
To be honest, I didin't read the posts too closely on people taking Avonex or other DMDs because I was sure the Copaxone was going to be my lifelong drug. Like you said, it is just a bee sting felling for a half hour or so then poof, it is all gone and you forget all about it.
I don't think I can take the being sick every weekend though. I work all week and come home drained and unable to do anything but eat a bowl of cereal and go to bed only to get up and put all my energy into doing my job. I can't imagine not having the weekend to rejuvinate and actually enjoy my life.
What has your doctor said about your symptoms still being so persistent after all this time?
I want a drug that will keep things at bay because now I am seeing that this may not progress as slowly as I had originally hoped. But I don't want to lose my quality of life from it either. A catch-22.
Thanks again for the feedback. It really means a lot that you all take the time to help. I guess that is really why we are all here.
Julie
To be honest, I didin't read the posts too closely on people taking Avonex or other DMDs because I was sure the Copaxone was going to be my lifelong drug. Like you said, it is just a bee sting felling for a half hour or so then poof, it is all gone and you forget all about it.
I don't think I can take the being sick every weekend though. I work all week and come home drained and unable to do anything but eat a bowl of cereal and go to bed only to get up and put all my energy into doing my job. I can't imagine not having the weekend to rejuvinate and actually enjoy my life.
What has your doctor said about your symptoms still being so persistent after all this time?
I want a drug that will keep things at bay because now I am seeing that this may not progress as slowly as I had originally hoped. But I don't want to lose my quality of life from it either. A catch-22.
Thanks again for the feedback. It really means a lot that you all take the time to help. I guess that is really why we are all here.
Julie
Julie,
That is so fantastic that you are going to get to talk to he doc on Monday!! Only 2 days wait now :)
I just wanted to chime in with ess since you will be talking DMD's on Monday. I think it's great that she is doing well with the once a week IM Avonex shot but I haven't been so lucky. Almost a year later I still have flu like side effects (not as bad) but yuck. I can't take the shots in my arms anymore because the muscles have become so hyper sensitive that I cry like a baby.
The good news is my MRI's have been stable and that's huge. Also when I told the doctor about only being able to inject in my legs now she told me that I could do it in my hip.
I guess they don't often tell you or train you for that. Well duh I have way more fat in my hips to lessen the pain then my scrawny little arms! I am waiting for training from the nurse one of these days -
Like ess said it can take some experimentation but I wish the Copaxone had worked for me because a tiny little bee sting needle every day compared to this huge muscle needle was no big deal and I had no side effects that landed me in bed every weekend. The bummer - it didn't hold me steady and I got lots of new lesions.
Good luck - ask lots of questions and then keep us posted
Hugs,
Erin :)
Thanks for the info Ess. Looks like I will be having this discussion with my neuro on Monday.
I got a call late this afternoon from the neuro's nurse - finally. She said she is going to try to get me in on Monday to see the doctor about the results. I kept buggin her until she finally told me that the radiologist noted new lesions.
I'm not giving this another thought until I talk to the doctor. Like what happened with Kathy's recent MRI results, I don't want to jump to conclusions until the neuro himself looks over the scans.
Regardless, it looks like we'll be trying another DMD. Thank goodness that we have options.
Julie
I got a call late this afternoon from the neuro's nurse - finally. She said she is going to try to get me in on Monday to see the doctor about the results. I kept buggin her until she finally told me that the radiologist noted new lesions.
I'm not giving this another thought until I talk to the doctor. Like what happened with Kathy's recent MRI results, I don't want to jump to conclusions until the neuro himself looks over the scans.
Regardless, it looks like we'll be trying another DMD. Thank goodness that we have options.
Julie
Yes, of all the DMDs, Avonex is the only deep muscle one. Once a week is doable, for me at least. All interferons require periodic blood work, but for me that's the only downside.
However, there is no one size fits all. We all gotta do what we gotta do. This can take some experimentation.
ess
However, there is no one size fits all. We all gotta do what we gotta do. This can take some experimentation.
ess
I would be interested in that post. I didn't realize that Beta was subcutaneious. Hmm...That is interesting to consider. It is an interferon, right? And Avonex, once a week. I can stand one injection a week. I'm still waiting for the neuro to call me about the results. That office is really annoying me lately in how long it takes to return calls. Oh well, no news can be good news.
Thanks.
Julie
Thanks.
Julie
Beta is every other day sub-Q and avonex is once a week intra-M so the dosing and injection is slightly different.
Doc Q posted something about the med and dosing recently that explains the amounts better than I can off hand so I'll look for that for you.
Julie, I've missed you. I can't wait until your cable and dsl are back and you rejoin us regularly. When you get the time I would like a newsy update on everything - family, condo, work, NHS, MS - you know the drill!
hugs, L
hugs, L
As always, you guys give the best support and feedback of anyone else I know. I love you guys for that. Thanks so much.
I had a message from the nurse asking where I had the MRI done, stupid me didn't remember to leave that in my message I guess, but I have not heard from the doctor yet. We'll see. I am not stressing any more about this. If he wants me to switch and try the interferons, then I will.
What if any real difference is there between Avonex and Betaseron? He mentioned Betaseron as an alternate. Any experiences with the two would be helpful.
Love you guys,
Julie
I had a message from the nurse asking where I had the MRI done, stupid me didn't remember to leave that in my message I guess, but I have not heard from the doctor yet. We'll see. I am not stressing any more about this. If he wants me to switch and try the interferons, then I will.
What if any real difference is there between Avonex and Betaseron? He mentioned Betaseron as an alternate. Any experiences with the two would be helpful.
Love you guys,
Julie
Woo hoo on the new place!!!
I think that you and the doctor both need to remember that even though this has been a fun and positive move it is still very stressful on your body. You need some time to collapse and rebound. Then you will really love the new digs.
As for the Copaxone they took me off of it after 1 year by comparing lesion load and relapse quantity in the year I was on it vs the time prior. They switched me to Avonex and I have now been on that for 1 year with 2 stable brain MRI's.
Funny I did have ON 3 or 4 times in the beggining but they said that could have been because the Avonex hadn't built up in my system yet. If you count flares it sounds like I have done worse on the Avonex then the Copaxone but what do I know.
Good luck & Congrats, (get some rest)
Hugs,
Erin :)
I think that you and the doctor both need to remember that even though this has been a fun and positive move it is still very stressful on your body. You need some time to collapse and rebound. Then you will really love the new digs.
As for the Copaxone they took me off of it after 1 year by comparing lesion load and relapse quantity in the year I was on it vs the time prior. They switched me to Avonex and I have now been on that for 1 year with 2 stable brain MRI's.
Funny I did have ON 3 or 4 times in the beggining but they said that could have been because the Avonex hadn't built up in my system yet. If you count flares it sounds like I have done worse on the Avonex then the Copaxone but what do I know.
Good luck & Congrats, (get some rest)
Hugs,
Erin :)
Hey Girl,
Guess you won't read this until the a.m. But, please get your fanny back to the Dr. for another round of antibiotics especially w/lung issues!!!!!! Will you????
Guess the MRI will help the Dr. know if he's steering in the right direction - and, maybe it will make you feel better too so you can feel comfortable with the switch.
(((hugs)) w/out catchy ((kisses))) ha/ha
Guess you won't read this until the a.m. But, please get your fanny back to the Dr. for another round of antibiotics especially w/lung issues!!!!!! Will you????
Guess the MRI will help the Dr. know if he's steering in the right direction - and, maybe it will make you feel better too so you can feel comfortable with the switch.
(((hugs)) w/out catchy ((kisses))) ha/ha
Thanks you guys for your feedback on the possible change in DMD and house warming wishes.
As for the question about the changing the DMD, my neuro says he believed the copax was working for about 10 months but now with the one extended relapse or possibly 2 closely timed relapses (who really knows which it is) he sees that there might be an issue.
I agree with you guys in that the infection, which is not responding very well to the bactrin they gave for strep throat, may the root of the problem. Add lung issues to the mix and severe weakness, well, that is enough to upset the CNS. I'm not sure I trust this guy. I have called 2 times to his office to get the results of my MRI from last week and not a single reply has come from them yet. It is time to find someone else, that I know for sure now.
I'm so sorry to hear that several of you are also having problems. I am so out of the loop on how you are doing, but know this, we are all here for each other. I'll be around more once I get my internet set up on Friday.
In the meantime, take care and I you guys start feeling better too.
Love and hugs,
Julie
P.S. I am back at work because my sick leave is exhausted. Not good. Also, I'll say it one more time...I LOVE MY NEW PLACE!!!!
As for the question about the changing the DMD, my neuro says he believed the copax was working for about 10 months but now with the one extended relapse or possibly 2 closely timed relapses (who really knows which it is) he sees that there might be an issue.
I agree with you guys in that the infection, which is not responding very well to the bactrin they gave for strep throat, may the root of the problem. Add lung issues to the mix and severe weakness, well, that is enough to upset the CNS. I'm not sure I trust this guy. I have called 2 times to his office to get the results of my MRI from last week and not a single reply has come from them yet. It is time to find someone else, that I know for sure now.
I'm so sorry to hear that several of you are also having problems. I am so out of the loop on how you are doing, but know this, we are all here for each other. I'll be around more once I get my internet set up on Friday.
In the meantime, take care and I you guys start feeling better too.
Love and hugs,
Julie
P.S. I am back at work because my sick leave is exhausted. Not good. Also, I'll say it one more time...I LOVE MY NEW PLACE!!!!
It is great to hear you so excited. I am glad you love your new condo. ;0)
take care,
terry
take care,
terry
Why are you feeling so badly???? Uhhh, hmmmm, perhaps a raging infection!!!
Isn't the neuro looking at your course over the last several months to be suspecting that the Copaxone is not working? He isn't just looking at this last relapse, is he?
And the condo does sound fantastic! Congratulations!
Quix
Isn't the neuro looking at your course over the last several months to be suspecting that the Copaxone is not working? He isn't just looking at this last relapse, is he?
And the condo does sound fantastic! Congratulations!
Quix
COMMUNITY LEADER
First thing that pops into my mind is what makes your neuro think the copaxone isn't working? I'm also wondering how many new lesions are going to determine if its not working and how many you would of created with out the DMD, is there anyway to actually know? Arn't the answers all unknown so how will this be determined?
I would be waiting until your life has settled, lets face it you've just worked your but off getting into your new condo (sounds fantastic btw) which is enough to cause multiple psuedo-relapses on its own. Then you've picked up an infection, which is a comon cause of setting off genuine relapses and psuedo-relapses. I'm not sure you could with impunity say the DMD isn't working whilst all this is happening so close together, if that makes sense.
It's just my feeling about it and you know i could be totally wrong brained lol so whats you gutt telling you to do?
Cheers......JJ
I would be waiting until your life has settled, lets face it you've just worked your but off getting into your new condo (sounds fantastic btw) which is enough to cause multiple psuedo-relapses on its own. Then you've picked up an infection, which is a comon cause of setting off genuine relapses and psuedo-relapses. I'm not sure you could with impunity say the DMD isn't working whilst all this is happening so close together, if that makes sense.
It's just my feeling about it and you know i could be totally wrong brained lol so whats you gutt telling you to do?
Cheers......JJ
Glad to hear that you are excited about your new place. I too just recently moved out of an almost 3,000sq foot home in to a Condo. I also Love it!
Sorry that you have been dealing w/ both the strep throat as well as the MS problems.
I too have no wisdom on switching DMD's. So I am not able to give you any thought on that. I am sure some one on here will pop in and give you both the pro's and con's and any added info that will be of great value for to think on.
Be safe out there in that Big City but have fun when you can :)
Take Care,
~Tonya
Sorry that you have been dealing w/ both the strep throat as well as the MS problems.
I too have no wisdom on switching DMD's. So I am not able to give you any thought on that. I am sure some one on here will pop in and give you both the pro's and con's and any added info that will be of great value for to think on.
Be safe out there in that Big City but have fun when you can :)
Take Care,
~Tonya
I am so happy that your new condo is the perfect fit for you! It's great that the train is so close as well as the restaurants and shopping!
I am not happy you are sick. Sorry you're not feeling well. As for switching DMD's I don't know to tell you. I have been told by my local neuro that I'm heading into PRMS and that my Copaxone will not work. He asked me if I wanted to change. I'm holding out for the MS neuro appt. next week.
Although, I have given the change in meds a thought or two. And, I "think" I'm ready to change if it would make a difference in my progression. I still need convincing. How much do you trust your neuro?
Take care of yourself! Looking forward to your complete return to the forum. You've been missed!
Hugs,
ren
I am not happy you are sick. Sorry you're not feeling well. As for switching DMD's I don't know to tell you. I have been told by my local neuro that I'm heading into PRMS and that my Copaxone will not work. He asked me if I wanted to change. I'm holding out for the MS neuro appt. next week.
Although, I have given the change in meds a thought or two. And, I "think" I'm ready to change if it would make a difference in my progression. I still need convincing. How much do you trust your neuro?
Take care of yourself! Looking forward to your complete return to the forum. You've been missed!
Hugs,
ren
It's awesome that your condo is so perfect for you! It sound like a prime location.
I'm sorry you've been so sick and your MS sx are rearing up. You must be getting somewhat better if you're back at work. I hope you get to feeling much better soon so you can settle in to your condo totally.
As for switching your DMD, I don't know what to tell you. If your MRI shows new lesions, then maybe it would be a good idea. I'm not much good at giving advice right now, 'cause I'm not feeling so hot myself.
It's good to see you. Be good to yourself.
Hugs,
Kathy
I'm sorry you've been so sick and your MS sx are rearing up. You must be getting somewhat better if you're back at work. I hope you get to feeling much better soon so you can settle in to your condo totally.
As for switching your DMD, I don't know what to tell you. If your MRI shows new lesions, then maybe it would be a good idea. I'm not much good at giving advice right now, 'cause I'm not feeling so hot myself.
It's good to see you. Be good to yourself.
Hugs,
Kathy
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