I'm outing myself

[msisbs]

I've been hiding for a while, Heres the story. In July of 2009 I started to get this sensation in my thigh of burning when I would move my neck. A week later my feet went numb. Progressively the numbness moved up my legs and torso over the next two months. Somewhere in there my tongue went numb for a week and everything tasted like black pepper.

I finally went to a doctor because I thought I pinched a nerve. Many doctors and lots and lots of tests later still no one knew anything. The entire time I relied on this site and the many pages for support of my symptoms. In November I had another round of MRIs. This time not just my brain but also C-spine and T-spine. 3 days before Christmas I got the results I have MS.

Still not a matter of my brain but my spine looks bad to say it simply. I have started Rebif, so far so good, I have been taking baclofen, gabapentin, etc for a long time already. I just wanted to finally get around to putting myself out and saying thanks for the help.

[jujuminx]

Well welcome. Sounds a little funny to say that when someone "outs" themselves on this forum but hey, the reality is that we all are here b/c we either have MS or we think we do.

It sounds as if you are doing well under the circumstances.  Thank God we live in a time when there are treatments for this disease (yes, they could be better but at least there are some).  

Hang in there and keep coming here. There is lots to learn and share. You have a great sense of humor, which will come in mighty handy in the years to come.

Julie

[jensequitur]

I think that swimmy is a perfectly good adjective for describing the state of my head!

[msisbs]

My injections are going okay I think. I started with the titration pack, so yesterday was the last dose of the 8.8 and tomorrow starts the 22. My side effects from the rebif have been very mild but that may be due tho the crazy amount of anti-inflammatory meds i take.

Up until yesterday I had reached a nice state of very mild tingling and numbness that only reared its ugly head when I got pretty active. As of last night though I am back to tingly from feet to knees and arms and hands, oh and a swimmy head.
Even using the word "swimmy" as an adjective shows exactly where my brain is.

I too feel lucky I didn't have to wait as long as others to get diagnosed, the unfortunate part is that I got diagnosed so quickly because the lesions are so bad.

Ah, and I stole the name from a T-shirt! LOL, We should all get one!

[jensequitur]

Welcome to the forum!  Places like this are essential when you have a chronic disease and few answers.

[Sparkysarah]

You poor girl and what a horrible Christmas present.  I sense you are quite strong and love your sense of humour over your nickname..it is brilliant!  It will take time for your diagnosis to sink in and it is less than a year since I was diagnosd and I think i am jsut thawing now and realising what it actually means. In some ways I was relieved to find out what was wrong..but I did not have the long wait that many have had and was lucky in that respect.

How is the Rebif going and hope that you are feeling Ok at the moment. You are very welcome on the forum and look forward to hearing how you are getting on.

best wishes

Sarah x

[sllowe]

Hi there,

Well hi there. Nice to meet you. Thank you for being here with us and reading the HPs and so glad we we could help/support in that capacity.

How's your injections going? I'm on Rebif too. I hope the DMD keeps your MS in it's place.
Hope to see you around,
-Shell

[msisbs]

Thanks for all the support, you guys are great,

[Sumanadevii]

Welcome to the board.  I am sorry for your dignosis.  You are so young.  Let's offer thanks it was found early and medications can be started to help protect your body from more damage.  I am so hopeful that stronger medicines will be available in the next ten years....Hopefully for all of us that will put MS to rest!!!  

I hope you stay and post with us.  I would be interested in following your story.  

Sumana

[Mustang0064]

hi....great place to join i found a lot of help and kind words here!!..Chin up, as they say  the m.s beast cowards at positivity and thrives on negativity.  You look like you are heading in a good direction!!

[Lulu54]

Thanks for coming out of the shadows and sharing your story with us.  And yes, MS is BS.  I love your name.

I am so sorry to hear you've joined our ranks but this is a great place to hang out, commiserate and learn more.

hugs, Lulu

[RedFlame]

I'm so glad that you have said hello.  Stepping out like that can be scary.

Sorry to hear about your diagnosis though, such a dreadful disease----and you are so young.  Christmas must have been difficult.  

Hopefully you will go into remission and stay there.  A doctor once told me that it is possible to be in remission for 20 years so let's have hope.

Welcome to our support group and I hope you post often.

Red