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Avatar universal

Is hubby/family tired of you?

Hi everyone,
Family question for you.
I just spend a month in the hospital due to a severe relapse & a surgery. I've been out of the hospital for 3 weeks.
I am back to independence for the most part, but I am having a relapse. I only work on the weekend- 14 hr shifts on Sat/Sun. Then I take care of my boys during the week. Hubby works full time.

Anyway, I have been asking hubby to help me in the evening because of pain & fatique. That's something new. I've never done it before.
He was fine with it at first when I was newly diagnose. Now it's TOTALLY obvious he is sick of "helping" around here. Things like helping me get the boys ready for bed. Picking up after dinner.
He actually hides from me....in the garage, in his office. I have to actually look to find him! :) He has started bitting my head off & barking at me.
Then when I talk to him about my illness his eyes seem to glaze over with boredom & he doesn't say a word.

Did /has your family ever reached a point where they just seemed to want you to be well? A point when maybe they thought you were just complaining without reason? Have they ignored you? Hid from you? LOL

Hubby is my only support. My family is gone. Not having him now makes me alone.

Thanks!
Sarah
18 Responses
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Avatar universal
Thank you all for the wonderful comments & GREAT advice. I'm very sorry to read that many of you have really experienced some very hard times with relationships.

To SparkySarah....how on Earth are you dealing with this as a new diagnosis & having hubby away at war? Good grief. Hearing that made me realize just how blessed I am to have some kind of support (even if my support hides from me 50% of the time)

Reading your posts made me realize I can definately improve how I interact with him to get things calmer around here. I also loved the tips about getting things done earlier in the day. That is definately something I can do.

Thank you all again
((hugs)) to all

Sarah
Helpful - 0
560501 tn?1383612740
  Hi there and Welcome!
There really is not a lot left to say as everyone has pretty much touched on all good thoughts and ideas.

  I did just want to pop in and say that I am sorry for the turbulent times you are going through at this time.  I agree so much w/ what Lulu posted in that There's nothing like hardships to truly test a relationship.  When they are medical woes, it can be even more trying.  

  Perhaps before your dx..you used to be "Super Mom / Wife" and now fast foreward to the "The New Dx'd You"....It just may take some getting used to (for both of you).
I can say for a fact that men (most, not all) are like little boys in so many ways.....
Example: When they are sick (most not all) have to be babied (sp) and are so helpless.
And when things are not going in the same stream of things that they are accustomed to.....they don't like it, wanna run from it (again..not all men).

   Heck, most people don't like change! They see it as a negative and do not look in to the positives it could bring.  One thing that I ALWAYS make sure and do is to ALWAYS tell hubby how much I appreciate him and all that he does for me.  If I have to have him help me (after he has been working his 10 hour shift) I tell him how I really hate to have to ask him to do so and so for me cause I know he has been working all day...Blah, Blah,...You get the idea.  And the other thing I do is..(no matter how bad I am feeling) make sure that his needs are also met.  Then of course he is more inclined to help out a bit more (Lol) We too have "Date Night" every week (Tuesdays).  But that does not mean that throught the rest of the week we do not associate..Lol  
    
     We have (5) children (4) which are up and out of house in college, (1) still at home, and (2) grandchildren.....We have been together for 23 years and married for 20 years.
I wish you the Best and Have you in thought and prayer.
~Tonya
Helpful - 0
620877 tn?1282764097
Given my current situation (husband of 10 1/2 years just asked for a divorce), I don't know if I my post is going to make anyone with questions about this, feel any better.  

But, here's my perspective:  If your relationship has issues (and they all do), any chronic illness will only magnify those issues - IF you don't address them and work on them. It has been said by many here in this thread - men are fixers and if they can't "see it", or understand it, then they feel powerless.  Men don't like to feel that way and that can be very difficult for them to deal with.

I just found out that my husband has "hinted" to his family, that he doesn't think that my health issues are as serious as I make them out to be.  Now, this could be his way of justifying asking for a divorce, or trying to make himself feel less guilty.  My Mother-in-Law believes that he is just being immature, and trying to not feel so guilty about what he is doing. (which is having a midlife crisis and divorcing his wife who may have MS)

It doesn't really matter - except that it hurts me to know that the person that I spent the last 12 1/2 years with doesn't believe me.  Or better yet, doesn't believe what the neuro is saying - which is a current diagnosis of Clinically Isolated Syndrome.

All I can say from my current perspective is this:  communicate, communicate communicate!  Go to counseling (mine refused) if you can.  But, ultimately, make time for each other, outside of the illness, kids, house and all of the other responsibilities - try to take time away from all of it, just for the 2 of you - to make each other feel special.  

I like what Jess said - they pop some popcorn & watch a DVD together.  It can be that simple.  

Hugs to you all,
Chrisy
undx'd
Helpful - 0
751951 tn?1406632863
It is hardwired into men to want to fix things.  It's hard to accept that there are things we can't fix, especially devastating things about those we love most.
Helpful - 0
Avatar universal
Family problems and MS comes up pretty regularly here, and always just when it's needed. This is one of the best threads I've read on that subject.

Since MS is primarily a disease of younger women, who already are incredibly busy with families and jobs, we cannot discuss family disruption too often. So many men deal with this kind of adversity by not dealing with it. I guess it's because it's something they can't fix, and men are generally great fixers. Also, MS is something they truly can't understand. As we all know, you have to have it to 'get' it.

Sarah, others here have offered great insights, and I hope you feel better knowing you're not alone. My only suggestion is to analyze your energy level and get the important things done when you can. Don't sweat the rest of it. If you can, prepare dinner early in the day, and reheat. Microwaves are wonderful :-)  That also gives you the chance to get pots and pans out of the way. Maybe the kids can be bathed earlier. And so on.

Your husband must be really beat working 12 hour days. You can maybe work things so that he gets fewer demands from you. I hope he does that for you when you do your 14 hour shifts. How in the world do you do that???

Sending good wishes and understanding.

ess

Helpful - 0
704043 tn?1298056844
  they  are there to  help  us  but  they dont have a clue-  i  and  everyone here has climbed a mountain!!
   Love  will find  a way!!   take  care of yourself-  tick123
Helpful - 0
Avatar universal
sorry i went off on my own stuff. as Sarah said, that isn't being very supportive and selfish on my part.

i'm around here to lend an ear and to say i can empathize with some of your situation.

hand in there and know you are not alone with those particular issues.
Helpful - 0
1253197 tn?1331209110
From one Sarah to another

I have only just been diagnosed less than 2 weeks ago and my husband is away until August in Afghanistan so he is having breathing space to come to terms with diagosis and will find his wife very changed when he returns. he has never been able to cope with me being ill not when I have had measles, shingles or other difficult illnesses andhis coping mechanism is to ignore it and hope I get better. not sure this will work with MS. he watched his mum die last year from Motor Neurone Disease and his Dad die from prostate cancer a few years before so it was not in the plan for his wife to get ms at the age of 46. We have three kids aged 20,18 and 14 and the middle one is autistic but I do not know how I would have managed with littlies and MS. My fear is exactly what you expressed that the family will tire very easily of me being unwell and at present I am having my first serious relapse which is a real shock to the system. So enough about me..that is not being very supportive of you and I can really hear how much you need to have people on your side. I am there with you and can only offer you a big electronic ((hug)) and it is great to have this site to be able to find other people who understand.

with love Sarah x
Helpful - 0
Avatar universal
for me, i don't think my family even thinks anything is wrong with me. from what they have said to me, written to me and said behind my back. we can thank the va for some of that.

twenty years ago i drank, so they thought that was my problem.

i haven't dated much over the years for reasons that should be clear for those who have read my posts and journals. i can only imagine what others have said behind my back regarding that.

this is why i call it the lonely disease. and it is hard on those around us which is why i think i have been such a loner since the Navy days. who wants to be around me with this?

i'm glad in some respects i don't have a spouse now or girlfriend and at other times when i feel good i would like to. how could i expect anyone to ride this roller coaster with me? no one would to be honest.

ignored and hid from me, i would say yes to that. just my moodiness would cause anyone to not want to hang out with me and i don't blame them. i wish i could turn off this disease and the way my body/mind feels most of the time, but i haven't been able to.

even doctors don't want to deal with us! employers don't. friends don't, LOL


Helpful - 0
1207048 tn?1282174304
Sarah, my middle two are 3 & 5, so I sure know the craziness that goes along with those ages LOL

I had  another thought: is your DH a "fixer' type of guy? I know that men with that personality have a tough time when they can't "fix" their spouse or loved one.

I hope you find some relief from your symptoms soon :-(

~Jess
Helpful - 0
Avatar universal
Hi Jess,
You posted when I did!
Thanks for the advice. Date night at home sounds like a good idea as do the rest of your ideas.

I appreciate the tips from others who understand!
Sarah
Helpful - 0
Avatar universal
Thank you guys. We have been married 10 years. We are older- with young kids. I am 41. He is 54. Our kids are 3&5, yikes! This is his second marriage. My first.
He works long hours. 6am to 6pm, 5 days a week.

My guess is that he needs time to let this all sink in & I can see he is stressed out.
I think I have been kind & patient, but I do have my moments.

I have been trying to "be brave" but every morning I wake up a bit worse from symptoms of this relapse. Does it get to a point to when that isn't terrifying? My neuro thinks I may be progressive & wants me on Rebif.
I wanted to try Copaxone first. I can't possibly work with Rebif side effects. I'm hardly making it now. I already tried a course of steroids, but I only improved for 2 days then went right back down hill.

I will look into the MS workshops. Thank you for that.
Sarah
Helpful - 0
1207048 tn?1282174304
Hi Sarah!

It sounds like a tough situation. I'm at the very beginning of this journey, still in limboland.

My husband and I have started doing "date nights" on most friday nights. Once the kids are in bed (at about 8:30 or 9) we pop popcorn and watch a DVD together. It is a nice break in our routine and a way to connect without being in Mama and Daddy "mode". Maybe something like that would help?

I think it is hard for us to ask for help, and maybe also hard for others to really accept that things have changed.

((hugs)) I hope you figure things out. My best advice is to talk about it. Not in an upset way, but more in a "It makes me sad that I need to ask for help" and maybe you guys could come up with responsibilities that he will take over: for example, if you cook dinner he cleans the kitchen. Or, he gets the kids ready for bed, and you read them stories.

I know with me, I'm pretty much wiped out after dinner. So, my kids clear the dishes, hubby puts leftovers away, but the dishes wait for me to do them in the morning. I'd rather my DH spend the time with the kids after dinner.

Good luck!
~Jess
Helpful - 0
739070 tn?1338603402
Hi , I don't think we have met as yet. I was an RN then a Nurse Paralegal in my former life. I don't how you do all that you do. The weekend shifts in the ICU every weekend would lay me low for the rest of the week much  less raising two boys 24/7.

My family has had their moments when they were less than helpful.  Don't forget as you are grieving your new dx, so are they. It makes for a touchy atmosphere at times, no doubt.

As for myself, relapses make me more angry and more snappy at others because I am SO tired of hearing "but you look fine or you look so good". When I'm in a relapse I may like good but feel like a Mac truck has run me over then backed up to see what it hit. Probably very similar to your 14 hr shifts.

You have an incredibly tough weekend and then you get no down time because of your little ones. Why wouldn't you be grouchy? And, why wouldn't the family hide from you? It makes sense and I speak from experience.

This last round of IV Solu-Medrol coupled with a relapse exposing even more deficits has served to make me alienate every one in my family at least once, if not more, during the last 2 weeks. I, too, have the guilt then I apologize and they begrudgingly accept because they know it's coming again, poor souls.

Reach back into Kubler-Ross's stages of grieving and you will see that everyone in your household is at a different stage and this makes things difficult. My diagnosis is one year old this month. Things still aren't peachy-keen and I've given up looking for the "old family" and the "old me". It's gone, but in its place is a stronger more thoughtful group of people who I am proud to call my family.

We got here over some rocky terrain as I suppose you are just now traversing. My advice would be couples counseling with a therapist who specializes in long-term illness clients, if hubby will go. Mine wouldn't , but is open to talking out anything new I learn in this regard if given the time and space to do so.

The National MS Society has abundant literature and resources to help guide you through this. Give them a call and they can send you materials to help everyone, including yourself. Of course, we are always here to help and support you any way we can.

Just remember , this is new to everybody and others' sympathy can only last so long especially if your symptoms aren't physically apparent at first glance. They can't know the fatigue MS brings on or the muscle spasms and tightness, etc.

Try to be patient with them just as you probably are at work. I can count numerous times I "put on a happy face" to deal with the grouchiest and sickest of patients because it was short term. Role play at home as well. Your family is ill because you are ill and you are the center of everything it sounds like.

I truly wish you the best as you struggle through this tough part of the illness. Please free to PM if you'd like.

Hang in there and take one day a time and some days, just one hour at a time.

Warmly ,
Ren
Helpful - 0
667078 tn?1316000935
This illness is hard on everyone in the family. My husband gets resentful he has to work harder. It is natural. I allow him to be angry and do not take it personally. Sometimes I am not the most charming person when I am sick. I try to be careful how I ask for things. I also say please and thank you.

I realized I snap at him and am careful not to snap at my service dog. Now how silly is that? I am more sensitive to a dog because I do not want to ruin her training.

It is so easy to get into myself. Yes I am tired and yes I hurt but I need my DH. I better think before I speak or act.

Also he needs his alone time. My husband is a cyclist. He gets to ride all he wants.

We attended a couple work shop put on by the MS Society which helped a lot.

Good luck.

Alex

Alex
Helpful - 0
751951 tn?1406632863
Hey, I washed the dishes yesterday!  Well, most of them!
Helpful - 0
751951 tn?1406632863
Mom's name was Sarah, so I have this lifelong soft spot in me for anyone with that name.

A number of questions come to mind.  How long have you been married?  How long have you been diagnosed?  How old are the kids?  You said hubby works "full time;" does that mean M-F, 8-5, or does he work when you do these long weekend shifts?  How old are you and he?  First marriage for both?  How long since all your family's been gone?  Not all of these are obviously questions you'd want to discuss in an open forum, so feel free to PM me, but the more info you can share, the more valuable will be the input you receive from this great gang of people.

Regardless, I can relate to being both a patient and a caregiver; I've been in both roles enough.  Neither's easy.  I will pray that the two of you can communicate openly and lovingly.  It will be stressful to be honest with yourselves and transparent with each other, but in the end, it will be much less stressful than any other approach.
Helpful - 0
572651 tn?1530999357
Dear Sarah,
There's nothing like hardships to truly test a relationship.  When they are medical woes, it can be even more trying.  

The NMSS offers some information for partners - and I have even seen them offer weekend retreats.  Something like that may be helpful for you. If you sense there are problems brewing, please don't let them grow.  

Yes, my husband doesn't want to hear this daily either.  Our family is grown so that activity level in our house is entirely different than yours with all those monkeys.

As for the helping with household tasks, his reluctance is nothing new.   :-)

I hope you find a way to confront this with your husband and work through the issues.

be well,
Lulu
Helpful - 0
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