It's Beginning to Look a Lot Like MS :-)

[Lulu54]

It’s Beginning to Look a Lot like MS
-Sung to the tune of “Its Beginning to Look a Lot Like Christmas”

It’s beginning to look a lot like MS
Everywhere we go
The labs are all negative,  except my LP is affirmative
With my  o-bands neatly  lined up in a row.


It’s beginning to look a lot like MS
Soon the diagnosis will be in,
Familiar symptoms that can bring the diagnostic words that make me sing
Right there on my medical chart.





.

[Lulu54]

debtea, I am so glad that you decided to join in the games here - I was laughing out loud by the second verse.  You have a real talent here - maybe we should become a song writing duo!!!  You could have the top billing.

As for you being in limbo - I'm so sorry you're there.  I hope you will feel free to start a new post and get some feedback on your symptoms if you feel like it.

Thanks for making my night .....  this was great and definitely goes in the songbook.

my best,
Lulu

[debtea]

I don't seem to post often, but I read everyday.  What a wealth of information I have found on this forum.  It makes me feel better everyday knowing I'm not alone in all this.  I am not diagnosed - have an appointment with MS Specialist on Feb. 16th - hard to get!   I have had a second MRI of the brain and there are now 2 lesions there.  One in the basal ganglia and one in the corona radiata.  My LP is negative for bands but the Meylin protein level is elevated.  Have not had a repeat of T or C spine MRI's.  
Anyhow - I feel like crap many days, just completely exhausted and I hurt.  But, I really got a kick out of this post and decided to add one.  So here goes...

Sung to the tune of “Rudolph the Red Nosed Reindeer”


MS the auto immune disease
Has a lot of strange tendencies
And if you ever had it
You might even say agonies.

All of the Neurology doctors
Like to call it common names
They like to diagnose poor MS
As depression or complex migraines!

Then one MS Specialist
Knowingly came to say
Patient with your symptom supply
Please, come have an MRI.

Next, the limbo-land patient
Found a forum for support
The medhelp.org website
Where comfort is never short.

Finally the exhausted patient
Will know what causes this stuff
MS the auto immune disease
To beat me…you’re not tough enough!


I hope everyone has a blessed holiday!

Debtea

[Quixotic1]

All of this is so wonderful!  I wish that I had this kind of talent.  My family is doubled over laughing!

Q

[rendean]

My offering:
(to the tune of I'm Dreaming of a White Christmas)

I'm dreaming of a good neuro
Just need one, THE one ,my hero.
One who really listens,
As I speak symptoms
To hear the story I have told.

I'm dreaming of a good neuro
With every time line I re-write.
May your days be merry and light,
And  all of your symptoms vanish tonight.

[essdipity]

Don't forget last year's collaborative effort on the 12 Days of MS! Should we do another version for this year?

ess

[Lulu54]

Ren,
Maybe I'll cut/paste all of our efforts into a journal page of MS songs to sing for the holidays!  If you have a favorite carol, let me know and I'll ruminate on a new version and post it here! - L

[rendean]

Good one! Especially this late at night!

Ren

[Lulu54]

Do I Have What you Have?
(to the tune of Do You Hear What I Hear)

Wrote  the newbie to the forum here,
Do I have what you have?
Could it be MS, tell me please.
Do I have what you have?
Demyelinating disease could be lurking in my brain
With symptoms that only I  see,
With symptoms that only I see.

Said the newbie to the people here,
Do you know what I have?
Share it with me now , would you please.
Do you know what I have?
This disease, dreaded disease makes no sense to me
Let it be anything other than MS.
Let it be anything other than MS.

[Lulu54]

Erin, that was great!  I especially like your last verse .... bravo!

my best,
L

[ErinZoe23]

Okay i read this and was cracking up  So heres my attempt of jingle bells  i took 5 minutes on this so might be a little rough! lol

Dashing through the halls in a one leg kinda of  hop
Over our feet we fall
Laughing all the way hahahah  
Nerves on crack I think   Making us think twice

O what these neuros got to say Maybe MS or life
Oooooo

Ms flare MS flares Ms all the way
O Wat fun it is too see what my neuros will call you today
ms flares ms flares ms all the way
I wonder what kind of game you have next for me to play


A day or two ago I thought I was just fine
But soon this lil pain
Was seated in my brain
The lesion was lean and long
Misfortune on my side
It got into my brain stem
And gave me quite a frite
Ooooo

Ms lesion ms lesions ms all the way
Are you really there today or gone hidden away
Ms lesions me lesions ms all the way
One day u decide to be active but the mri says no way

Now some time has past
They say it is still young
No proof to hand me yet
Just go with all these drugs
Just take a shot a day
270 pills a month
Theres a 50 percent chance youll be okay or make ur liver a dump

Oooo ms meds ms meds pls just go away
I don’t even know if I should be taken u or throwen em away
Ms meds ms meds pls just go away
Im taking meds for a disease that they don’t even no how it behaves

[Lulu54]

All,

I was mixing up some cookies tonight for an annual cookie exchange - need 12 dozen for Saturday - and was thinking about holiday tunes.  That made me think of this post from last year.

I had to dust it off and offer it up for the season.

Hopefully you will enjoy the tunes and even add a new one or two to the playlist.  I'm thinking of some more to add.

ho, ho, ho!
Lulu

[singinalong]

That is so awesome!!! All your songs were great!! :) Uplifted my spirits. Thank you!!
Merry Christmas!
Happy New Year to All!!
love Shari

[Lulu54]

Thanks for jumping into the spirit of the holiday throwdown.

Happy Christmas to all - be safe this holiday eve.
with love to spread to everyone,
Lulu

[saveone]

Smiling and clapping

Happy Holidays

terry

[GrannyJo6]

OK, I couldn't resist:
to the tune of White Christmas

I'm dreaming of a healthy lifestyle
one with no MS disease in sight
where the canes are few,
the legs are like new,
and everyone sees and hears so well.

I'm dreaming of a healthy lifestyle
where nerves are never frayed or fried,
where our limbs don't quiver,
and all is well with our liver,
and pills and shots are never used.

[Sarahsmom46]

I loved your rendition of the "Dreidel Song" with its MS theme.  We'll sing it tonight after we light the candles.  I think you may have started a new tradition in our family.  I have got to share this with my friend who is Jewish and has MS.  She will appreciate it - LOL!

Julie

[Lulu54]

Bravo Moki - glad to see you come out of hibernation and stretch those creative bones.  Well done.

All - the Dreidel song came to me because I had on our local NPR station while I was mixing cookie dough.  They are doing an all evening celebration of Hanukkah and I just listened to almost a full hour of Klezmer music. Sometimes festive but always emotive.  Nothing like  a wailing clarinet and loud Yiddish lyrics which I don't understand, to put me in the mood...........

[Lulu54]

Here's one for our forum members celebrating the second day of Hanukkah -


The Disease Song
(to The Dreidel Song)


I have a little disease
It makes me ill each day
So maybe it is MS
From this thought I do not stray


CHORUS
Oh Do I, Don’t I , Do I
This is what I say
And when the neuro’s ready
I’ll learn which way he sways.


It affects my body
Makes my legs stop and go
And when I get too tired
I drop and my MS shows.

CHORUS
Oh Do I, Don’t I , Do I
This is what I say
And when the neuro’s ready
I’ll learn which way he sways.

My MS is always present
I’d love to dance and spin
But I have to sit and wait here
much to my chagrin!


CHORUS
Oh Do I, Don’t I, Do I
This is what I say
And when the neuro’s ready
I’ll learn which way he sways.

[saveone]

Standing ovation!  Bravo...Bravo

Yes Virgina it is Maxine  

[mokibear]

What talent we have on the forum!! I'm not real good at this but I'll give it a stab.

Sing to Silent Night

Silent Neuro
Diagnosis Zero

Frustrated to be
alone in this place

If not for this forum
There would be no smile on my face

Blessed are the people here
who have filled my empty space

Thanks to all who have helped me through
A limbo lander wants to say thanks & I love you!!

Happy Holidays All
Moki

[Lulu54]

Bravo DV - its good to see you get into the spirit.  That's always been one of my favorites - makes me stop and think of all those WWII guys in the trenches - actually it is very sad now that I think of it.  Oh well, so much for the jollies!  

All this caroling has me in the spirit and I have been mixing my cookie dough for baking tomorrow and the next day.  

Keep it up - MAXINE would be proud!
lu

[doublevision1]

I have a little one!

"Stuck at home with MS"

[sung to the tune of  "I''ll Be Home For Christmas"}

Stuck at home with MS
You can’t count on me
Please stop at the pharmacy
For shots I need daily

MS always finds me
Can’t hide from it, it seems
I’m at home with MS
If only this were a bad dream!

[doublevision1]

I am laughing out loud at your rendition of Jingle Bells.  Brilliant!!  Keep 'em coming!

[Quixotic1]

A Sing-A-Long??  Oh, I don't think so.  I can just see me belting something out, my sister telling me I'm flat!, my dad hopelessly off-key and my mom too shy to open her mouth and the nieces laughing hysterically.  Nope.  Not gonna happen.

Good job with my start.