JUST VENTING

[marymoto]

WELL I THINK I AM FEELING FRUSTRATED TODAY I HAVE AN APPT. WITH MY MS NEURO AGAIN ION JULY AND WITH THE NEUROAOPTHAMOLIGIST AGAIN. I AM HAVING PAIN IN THE LEFT SIDE OF MY FACE PAIN IN THE TOP OF MY HEAD ON THE RIGHT SIDE, PAIN IN THE BACK OF MY LEFT THIGH NUMBENESS IN RIGHT ARM,PHONED THE RELAPSE NURSE TO SEE WHAT SHE SAYS ABOUT IT ALL HOPING TO HAVE A SPINE MRI ON NEXT VISIT OR A LP.

[marymoto]

hi ladies thanks for your messages.i was feeling very frustrated today, it helps to vent on hear i have aonly been diagnosed with benign ms. but i continue to have ongoing issues.i take amitripline at night and gabapentin, during the day i take ketorolac for pain and alertec for the fatigue.my dr. wants me to up the gabapentin but it makes me so tired but yes you are right it probably would help with the pain.i have had the pain for going on to two yeasrs first in lowere back and then legs , and neck the face is a new thing the other side would become numb and tingly but now the left is having new pain.i have just recently started on the amytripline it is a new thing helps with the pain at night.

[Wobbly]

I'm sorry to hear your going through all this pain and can't get answers.. sure hope you find some soon.... do you take Gabapentin... if so, I would up the dose to see if it helps??
take care
wobbly

[Sarahsmom46]

I agree with Jens, you have a lot going on and I hope it will be taken care of before July.  What medications are you taking for these symptoms? And, how long have you been living with this pain?  Obviously the pain is not under control.  

Julie

[jensequitur]

Hey, chica, sounds like you're feeling pretty bad.  Are you still undiagnosed?