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JUST WANT TO SLEEP!!!
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JUST WANT TO SLEEP!!!

Hi there guys,---I'm still in the "Limbo-land" as so many are here,--but, heare's my question.----For so long now I've been having a TERRIBLE time sleeping at night despite taking Vicodin and Neurontin.---I would take it approx 1-2 hrs before bedtime and then only sleep aprrox 2-3 or 4 hrs, then wake up "Bright eyed and bushy tailed"!---- So, then I'd "drop" the Vicodin and Neurontin and take 4 EX-Tylenol-----No Go.----So, I guess my question is,---Is this a "side" of MS------Why-----And what can I do to get a "decent" night sleep so that I can function at work and NOT want to "crash" around noon everyday??!!------Hope you guys can help me out!--------PS-----WHAT THE HECK IS UP WITH ALL THE PAID PROGRAMMING ALL NIGHT LONG?   hehe----This **** keeps up---I'll be ordering every darn thing on the TV!  hehe
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198419_tn?1360245956
I don't know.  All's I know is I went from 3 months of not even feeling like I slept after doing so all night to not sleeping at all once the flare simmered.

I went on some fantastic sleep meds, temazapam, but after 5 months I ended up allergic to one of my meds and had to stop taking it, durrnit! I would wake up feeling so wonderful.

Oh, how I miss them.... :(

It would e a good idea to the Dr about the sleep issue, it's really for the best, and your sanity!

I feel your pain,
-Shell
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Avatar_f_tn
Hi spitfire,

As you know I'm undx too.  I have a lot of trouble sleeping myself, and it can really wear you down.

I was exhausted yesterday, after two days of cooking, and thought I would take a nap after lunch.  It was a no go.........................how can you be so utterly and completly exhausted and still not be able to sleep?

I'm not on any meds, but I did try melatonin for a bit.  It worked great for a few weeks, then it started causing me to have restless limb, and I mean horrible restless limb, actually effected my arms the worse.  So, there went my one escape to sleep.

Now, like you, I watch TV, til the wee hours and sometimes if I'm lucky get 3 or 4 hrs sleep.

I agree with Shell, it would be good to let your dr know and see if he can come up with a way to help you get some sleep.  Sanity is a good thing when we deal with all the things we have to deal with...hahaha

Take Care!!
doni
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293157_tn?1285877039
gee...I have bad nights as well...I take clonazapam in the evening...supposed to help me sleep..but I have nights (like last night) where I'm awake all night.. trying to sleep but can't.  

then I'm exhausted the next day of course.. hope you get some sleep and help with this.  I and you should let the Dr know..

take care
wobbly
undx
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632011_tn?1234350709
Yeah, the sleep depravation is quite taxing to say the least!--Especially in my profession of working with Hospice patients, and NEEDING to keep a clear mind as to what your doing at work/with them!---I have an appt Monday with my Neuro, and beleive me---I intend to tell him I can't sleep and that we need to try soemthing or "tweek" whatever meds I'm on now that are not letting me sleep.---So, wish me luck!----Next week ought to be an "Interesting" week as it is----Monday:--an appt with the neuro----Wednesday:--the LP,---and maybe on the "recovery" day of Thursday after the Lp I can sleep.  But, I'm gonna doubt it.---So, I'll keep you guys posted.---But wish me luck!
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632011_tn?1234350709
LIke I told Doni--yeah I intend to tell ol' Mr.Doctor about the sleep issue.---Man this is crazy!--It's bad enough to have to deal with or without a DX, but to have to stare at the stars every night too, is a little much.--Hopefully, I can get him to "help out" someway. Or I'm gonna beat em up! hehe.---Ok, well wish me luck next week with the appts.---And if any of you guys have any---Good Luck!---talk soon
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572651_tn?1333939396
Spitfire,
Put the credit cards away, you really don't need the Poppeil Pocket Fisherman or Ronco Knives!! :-)  The paid programming is the worst, isn't it?  And especially when you find your self watching the entire 30 minute pitch.  You know its bad when you actually write down the toll free ordering number.

I hope you can relax a bit this week after your LP and maybe settle into a better routine.  I take Lunesta most nights - falling to sleep has not been a problem for me, but staying asleep was. I would wake up after 3-4 hours and be wide awake.  The Lunesta has really stopped that.  

I hope you get some relief soon.

Sleep deprivation is no fun!
Lulu
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Avatar_f_tn
Sleep problems are really common with MS. I've tried to do quite a bit of informal Internet research on this, but haven't found any support for the idea that insomnia can be a primary MS effect. Virtually all the sites I've found say that patients can be kept awake by pain, spasms, restless limbs or need to visit the bathroom, but none have said that people can be just plain awake, night after night, even without these symptoms.

Having a sleep study done is a good way of finding whether there are mechanical problems such as breathing difficulties or sleep apnea, but sometimes all the study shows is little sleep, at least little decent quality sleep. I had the study and then saw a sleep specialist, who really could offer not much explanation for my sleep problems. I asked her point-blank whether MS could cause a lesion or lesions in the brain's sleep center. Got no answer to that. Maybe sleep is just too complicated for that explanation.

All was not lost by going through this, though. First, I had my insomnia and lack of deep sleep documented. Second, the doctor did offer to prescribe a low dose of a tricyclic antidepressant, which has sleepiness as a side effect. That, along with Lyrica, has helped me quite a bit. And I managed to get off Ambien and Lunesta, to which I had developed a tolerence.

I still rarely sleep what I'd call well. I've tried being very careful about caffeine, exercise before bedtime, being in noisy situations that jangle my nerves, and so on, and none of these has done much good. I felt sure last night's sleep would be poor. I had been at a family Thanksgiving celebration with raucous kids, and had drunk a moderate amount of wine. Not usually a good idea. But lo and behold, I fell asleep as soon as I turned off the light, and slept like a baby for 7 hours straight. Woke up today feeling refreshed and ready for the day, almost unheard of in recent years. But at least I know I'm still capable of that, and it's a good feeling.

We talk about sleep quite a lot here, and I often suggest that people try an over-the-counter sleep med. They don't do diddly for me, but they do help most people. I suspect there's no one answer to this--maybe no 5 answers, for that matter, so we always can benefit by learning about our collective thinking and experiences.

ess

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Avatar_m_tn
Hello there,

I have MS for over 20 years, but the last 10 years it really hit me, and yes my last good night sleep was about 10 years ago...

I am not a doctor but my logic can't help it, yu know about the CCSVI Well it make sence that if the blood does not flow peperly, after a while the brain start to run out of oxygen, just enouh to ring the alarm to the brain and wake me up for me to move and re oxygenated the blood in the brain, try that next night, if you wake up, just go for a spin in the living room and go back to bed, you will sleep another 2 to 3 hours. that is why I am going for the liberatio treatment asap.

Good luck
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Avatar_n_tn
Hi I don't have MS but have sleep problems since my Stem Cell Transplant.  At first we though it was insomnia from taking steroids, but I stopped most of my meds after the transplant and couldn't seep well even though I am so tired.  My doc prescribed Ativan, which I took for 6 months, but stopped taking it because i was getting immuen to it.  I have another sleep pill, can't remember the name, and the problem with it is it makes me fall asleep but I can't fall into a deep sleep and keep waking up. and then sleep in really late the  next day, and then can't sleep at night.

now, I go to bed, read for a while, feel drowsy, and then do some relaxation breathing, and feel like I am ready to fall asleep but I never quite get into the deep sleep, After an hour and half of trying to fall asleep  I usually get up and lay on the couch for a while, then come back to bed.

It's so frustrating!  Especially because as soon as we turn the light out my fiancee is already snoring away.  sometimes I want to ring his neck.  I do sleep much better when he sleeps in the other room, but couples (especially 30 somethings like us) should share the bed. lol.
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