Aa
Just wondering
Is anyone else seeing things out of the corner of their eyes that isn't there when you look, after a quick movement such as turning their head quickly or bending down to pick something up?
Also I see and feel the house and myself move when everyone says it didn't. This Is driving me nuts and it has just recently started. Is this another symptom to chaulk up to MS?
It really woudn't surprise me!
Kathy
Also I see and feel the house and myself move when everyone says it didn't. This Is driving me nuts and it has just recently started. Is this another symptom to chaulk up to MS?
It really woudn't surprise me!
Kathy
Hi Quix
How do i get my doctor to get my sinus and ear problems sorted they dont seem intersted in anything else then MRI,LP and getting the results from them, my ears ring all the time and when i bend down or put my head down on the pillow i get a heartbeat sound in my left ear and its the left side i have all my issues on i've told the doctor this before and she just nodded and gave me more steroid nasel spray which i've been on for 6 months now!!
Hope your well hun
samantha x
How do i get my doctor to get my sinus and ear problems sorted they dont seem intersted in anything else then MRI,LP and getting the results from them, my ears ring all the time and when i bend down or put my head down on the pillow i get a heartbeat sound in my left ear and its the left side i have all my issues on i've told the doctor this before and she just nodded and gave me more steroid nasel spray which i've been on for 6 months now!!
Hope your well hun
samantha x
Hi, Sam, it sounds to me like you might have both some inner ear problems, but also some visual integration problems in your brainstem. I've been so sad to hear of your continuing problems. And, lady, you just can't let yourself overdo it (as if we all don't overdo when we have a tiny extra amount of energy or are having fun!) You really need to take care.
essie - Well then, I think you need to see an otoneurologist and get the whole thing checked out. ENTs always say they can evaluate vertigo, but, in my experience few of them really have a handle on the subject. I also have had a hand - intention - tremor in my left since I was young, as do my sis and dad. It was made very clear to me in medical school that "You're NOT considering surgery, are you?" Oh, well. I liked pediatrics better.
BTW - Earlier, several days ago you mentioned that your eye doctor thought you had early macular degeneration and I don't know if I responded. The macula is the area of the retina that focuses your central vision - what you are actually looking at. When m.d. occurs you lose central vision, often like a dark shadow obscurring the central vision and then people learn to get visual info from their peripheral vision. You are complaining of just the OPPOSITE problem, so it doesn't make sense to me. I'd suggest a 2nd opinion from a neurophthalmologist.
And, yes, your neuro is ignoring some important historical and symptomatic info. Should you be looking for better brains?? You and Scarecrow?
Kathy - a mucous cyst in the maxillary sinus should not cause vertigo. It is a remnant of an old sinus infection. But, it does suggest that you need a thorough evaluation in case there is damage to the inner ear from the same older process of infection. You, too, could benefit from a neuro-otologic eval and also maybe from a test called Computerized Posturography.
That's all I have tonight, folks, the screen is skittering around. Quix
essie - Well then, I think you need to see an otoneurologist and get the whole thing checked out. ENTs always say they can evaluate vertigo, but, in my experience few of them really have a handle on the subject. I also have had a hand - intention - tremor in my left since I was young, as do my sis and dad. It was made very clear to me in medical school that "You're NOT considering surgery, are you?" Oh, well. I liked pediatrics better.
BTW - Earlier, several days ago you mentioned that your eye doctor thought you had early macular degeneration and I don't know if I responded. The macula is the area of the retina that focuses your central vision - what you are actually looking at. When m.d. occurs you lose central vision, often like a dark shadow obscurring the central vision and then people learn to get visual info from their peripheral vision. You are complaining of just the OPPOSITE problem, so it doesn't make sense to me. I'd suggest a 2nd opinion from a neurophthalmologist.
And, yes, your neuro is ignoring some important historical and symptomatic info. Should you be looking for better brains?? You and Scarecrow?
Kathy - a mucous cyst in the maxillary sinus should not cause vertigo. It is a remnant of an old sinus infection. But, it does suggest that you need a thorough evaluation in case there is damage to the inner ear from the same older process of infection. You, too, could benefit from a neuro-otologic eval and also maybe from a test called Computerized Posturography.
That's all I have tonight, folks, the screen is skittering around. Quix
Good heavens. How could I have forgotten the leg problems? Spasms, twitches, blips, tightness galore. All new this round.
essie
essie
The ENT did not even mention the Video-----Gram test, just said my ears are fine. He's usually quite thorough.
No mention of degeneration on any MRI report. (Assume you mean atrophy of some sort.) Neuro is also blaming cerebellar degeneration for hand tremors, conveniently ignoring that I've had these to some extent since my college days. It came on suddenly one day when I was trying to get coffee from a vending machine and Zowee! I burned myself badly. Since then I've always had at least a small degree of tremor, especially in my left hand (I'm left-handed). From time to time it's gotten worse, in particular in reaction to certain meds. But it's been a long time since I could apply lipstick or eye makeup without steadying one hand with the other. Sometimes I seem to almost 'flap.' So I flunked that neuro test bigtime. Also flunked the heel to toe gait thing since I basically can't do it. I look like a fall-down drunk trying. He said my legs were shaking then, and that in my routine walk I did sway somewhat from side to side. This is the stuff that got his attention. I guess otherwise my office testing is unremarkable. LP about 18 months ago apparently normal. VEP abnormal (no eye trouble) but the opth. doc said it's the beginning of macular degeneration in my right eye. I'm sure a degenerate, aren't I?
Neuro is ignoring tingling tongue and a few other sensory symptoms. Also the fact that I'm in my third round of symptoms, several months to years between. Boo.
That's my story and I'm stickin' to it!
essie
No mention of degeneration on any MRI report. (Assume you mean atrophy of some sort.) Neuro is also blaming cerebellar degeneration for hand tremors, conveniently ignoring that I've had these to some extent since my college days. It came on suddenly one day when I was trying to get coffee from a vending machine and Zowee! I burned myself badly. Since then I've always had at least a small degree of tremor, especially in my left hand (I'm left-handed). From time to time it's gotten worse, in particular in reaction to certain meds. But it's been a long time since I could apply lipstick or eye makeup without steadying one hand with the other. Sometimes I seem to almost 'flap.' So I flunked that neuro test bigtime. Also flunked the heel to toe gait thing since I basically can't do it. I look like a fall-down drunk trying. He said my legs were shaking then, and that in my routine walk I did sway somewhat from side to side. This is the stuff that got his attention. I guess otherwise my office testing is unremarkable. LP about 18 months ago apparently normal. VEP abnormal (no eye trouble) but the opth. doc said it's the beginning of macular degeneration in my right eye. I'm sure a degenerate, aren't I?
Neuro is ignoring tingling tongue and a few other sensory symptoms. Also the fact that I'm in my third round of symptoms, several months to years between. Boo.
That's my story and I'm stickin' to it!
essie
I do have a "Retnetion cyst in the right maxillary" that a CT scan has found. Maybe that is causing it? Who knows. Doctors are just as crazy as the rest of us if not more, right?
I feel sorry for everyone who is also going through this strange thing, But, it does make me feel better to know that its not just me. LOL
Best to all
Kathy
I feel sorry for everyone who is also going through this strange thing, But, it does make me feel better to know that its not just me. LOL
Best to all
Kathy
Hi
I get the moving thing its the first thing i went to the neuro with back in January this year, i still have balance issues and i when i sit or stand i feel like i'm moving when i'm not, i also walk with two sticks (when i do walk ) as my blance is bad and this has also increased my confidence.
I have blocked sinus and ringing in the ears and often wonder if this could be the cause of my balance problems.
I get it looking at the computer screen alot too that it moves and i feel tilted but i'm not, i've had my eyes tested and theref fine!!
Samantha
I get the moving thing its the first thing i went to the neuro with back in January this year, i still have balance issues and i when i sit or stand i feel like i'm moving when i'm not, i also walk with two sticks (when i do walk ) as my blance is bad and this has also increased my confidence.
I have blocked sinus and ringing in the ears and often wonder if this could be the cause of my balance problems.
I get it looking at the computer screen alot too that it moves and i feel tilted but i'm not, i've had my eyes tested and theref fine!!
Samantha
The inner ear needs to be evaluated by a test called a VideoElectroNystagmaGram. If you had this and it cleared the inner ear, fine, otherwise the ENT can't evaluate the vestibular part of the inner ear with the usual office tests. Have we been through this before?
It may very well be cerebellar. Do you have degeneration on MRI? I forget.
Quix
It may very well be cerebellar. Do you have degeneration on MRI? I forget.
Quix
Thanks for your understanding, Quix. I saw my ENT and he didn't find any ear problems. My neuro says cerebellar degeneration, maybe caused by paraneoplasm. I'm STILL waiting on the blood work for that. However, he is ignoring a lot of other stuff that has happened before that and with that.
essie
essie
Hi, the mistaken impression that something has moved in the periphery of your vision falls under a symptoms called oscillopsia (Ahh-sih-lop-see-uh). It is a problems with the intergration of the visual image by the brain. It is typical, but not limited to MS. I have it. With me it feels like something that IS in the peripheral vision - like a piece of furniture, or a stationary object - has shifted. I look quickly over (who can help it?) and, of course, it didn't/couldn't have moved. And there is no cat around who could have given me the false impression of movement. Danged annoying, isn't it?
As for the sensation that the solid world you stand on has moved or shifted, that is a missignaling of the vestibular, or balance, system. It can be from the brainstem (central nervous system as in MS) or from a faulty signal from the middle ear (Not MS).
Essie - that feeling like you can't trust the very ground you walk on is awful! Becasue I have such sever damage to both inner ears, I have lived with it daily for 6 years. Sucks, bigtime!
Hope this helps. Quix
As for the sensation that the solid world you stand on has moved or shifted, that is a missignaling of the vestibular, or balance, system. It can be from the brainstem (central nervous system as in MS) or from a faulty signal from the middle ear (Not MS).
Essie - that feeling like you can't trust the very ground you walk on is awful! Becasue I have such sever damage to both inner ears, I have lived with it daily for 6 years. Sucks, bigtime!
Hope this helps. Quix
Now all I need to do is catch that s.o.b. that keeps lighting a lighter under my the bottom of my heels all day! I am sure that I am not imagining him but so far I haven't caught the bugger! tee hee
Thank God!
I was starting to think I was crazy! As I'm sure we all have at some point in this.
I was starting to think I was crazy! As I'm sure we all have at some point in this.
I don't have any eye problems, luckily. As to movement, for months now I've experienced a rocking and swaying feeling, as though I'm trying to walk in a bobbing boat. I've gotten used to it to some extent. But when I'm walking where the ground is uneven or hilly it's truly scary. I'm so afraid I'll fall. Had an episode like that today. I can't trust my own senses.
ess
ess
Hi Kathy...nice to know the real name!
I have the same thing occasionally only I relate it as a mouse running across the floor! I know there is no mouse (at least there better not be!) but I could swear that it was there.
As far as the house moving, that is what it feels like to me when I am have trouble with my equilibrium...that is why I recently got a cane cause I tend to almost fall over in open spaces. My problem is that it feels like a parking lot is moving and with nothing to grab as a rule a cane has increased my confidence immensely!
That's my story...anyone else???
Rena 705
I have the same thing occasionally only I relate it as a mouse running across the floor! I know there is no mouse (at least there better not be!) but I could swear that it was there.
As far as the house moving, that is what it feels like to me when I am have trouble with my equilibrium...that is why I recently got a cane cause I tend to almost fall over in open spaces. My problem is that it feels like a parking lot is moving and with nothing to grab as a rule a cane has increased my confidence immensely!
That's my story...anyone else???
Rena 705
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