LATW

[young at heart]

YOU HAD ASK IF MY OPTICAL NEURITIS SHOWED UP ON A MRI.

IT DID,BUT ON THE OUTER EDGES OF THE OPTICAL NERVES.WHEN I HAD MY APPOINTMENT WITH THE OPTHAMOLOGIST HE STATED THAT BOTH OPTICAL NERVES WERE PALE ON THE OUTER SIDES.

MY EVOKED POTENTIALS CAME BACK 147 LEFT EYE AND RIGHT EYE WAS 130,WHICH THE RIGHT EYE HAS HAD MANY BOUTS WITH ON AND PROBABLY WILL NOT COMPLETLY HEAL.

ON IS NORMALLY ASSOCIATED WITH MS AND CERTAIN VIRUSES,EPSTEIN BAR AND WEST NILES.CHRONIC SINUSES WILL ALSO CAUSE ON,BUT THAT WILL SHOW UP ON A MRI.

HOPE THIS HELPS

T

[LATW]

Thanks!  It is my right eye.  I am so confused an frustrated right now I am ready to dig a hole and hide in it!! I have had all of the blood work and it has come back fine.  

I had and MRI 6 years ago because I was starting to have odd vision problems at that point.  That MRI and eye orbit was done with and without contrast and was fine.  So now I have developed ON 6 years later and have had two seperate bouts of it within 9 months.  

My appointment at the MS clinic is tomorrow. Hopefully I will get some sort of an answer.  I posted about the call I just got from my eye doctor. I am so confused...............


LA

[gooddays]

MY OPTICAL NEURITIS, SINCE I FOUND OUT THE NAME OF THE MONSTER) HAS ALWAYS SHOWN IN MY MRI AND AT THIS POINT, I AM IN THE SAME POSITION AS T, EXCEPT THAT IN HER CAUSE IS HER RIGHT MINE IS THE LEFT ONE.  i RECALLED WRITING ABOUT MY TREATMENT FOR THE NEXT 6 MONTHS TO A YEAR.  MY NEURO-OPHTALMOLOGIST TOLD EXACTLY THE SAME THING HE DID TO T.

THE ONLY DIFFERENCE THIS TIME IS THAT I HAVE TO COVER MY EYE WITH A PATCH FOR AT LEAST 6 MONTHS AND 18 HOURS A DAY.  HOPEFULLY, IT WILL WORK.

I KNOW THAT YOU ARE NERVOUS ABOUT YOUR COMING APPOINTMENT, WHAT COULD THEY ASK AND TELL THAT YOU HAVE NOT READ OR DONE RESEARCH ON.

GO INTO YOUR DRS. OFFICE WITH AN OPEN MIND AND LIKE I SAID IN WAY OF MY PREVIOUS POST, WRITE EACH AND EVERY QUESTION YOU MAY HAVE, BECAUSE ONCE WITH THE DR, WE FORGET A LOT OF THE SAME QUESTIONS WE VISITED HIM/HER TO BEGIN WIT.

DON'T BE SHY ABOUT IT, JUST LET HIM HOW AFRAID YOU ARE AND HOW MUCH YOU RELY ON HIM FOR HIS MEDICAL KNOWLEDGE AND WISDOM, THEIR EGI RUNS VERY HIGH, SO MIGHT AS WELL, SHOW THAT YOU BELIEVE IN WHAT HE WOULD SAY.

AFTER YOUR VISIT, ONCE YOU HAVE RESTED YOUR EYES, PLEASE KEEP US POSTED ON YOU APPOINTMENT.

BEST OF LUCK WITH YOUR DOCTOR, I AM STILL HOLDING MY FORT IN PUERTO RICO WITH ONE EYE.

TAKE GOOD CARE OF YOURSELF.

ZULMA