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Avatar universal

Laughter and babytalk

My daughter wss told she had MS a month ago
After a mri and spinal tap.    Shes been trying to get her meds but wiyh no luck yet.   Working on getting her copaxne 40     But her insirance hasnt aproved it let
My question is.    Does anyone have extreme laughter epasodes with weeks of her speech is like baby talk ? She sometimes sounds like a computer shes had one bout of this it went away.   It was blamed by hospitial saying it was steroid sycocious from the predzone and valtrex they gave her in march for belys palsey. That started her illness
After weeks of baby talk double vision. It went awsy
Her only simpion is pain and limping on her right leg and severe itching in her left eyes.    She was told she has a flare up in her fromtal lobe of her brain
My question is does anyone else have these problem
Dr just said it wasnt related to MS.  And she need a speech therapist.      Any advice would be helpful we no bery little about this MS.  But are cramimg to learn
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Avatar universal
Thanks so much for responding to me.Jamie is 32 a very busy mothers of 3 with a 40 hour work week. House and hubby to take care of.  That is y im doing the asking of questions for her.  Plus it was a shock to us that her speech got better and mow returned to worse
After readind all your post it is more like  what many of you have discribed.  Thank so mich . God Bless!
Helpful - 0
Avatar universal
I had the same thing.. the left side of my tongue lost control and I would
completely stuff up a sentence, most of the time I would say the sentence backwards and this would happen as I had the facial burning on the left side of my face.. 5 months before these symptoms I had double vision. I got diagnosed a week ago and have only just had my spinal MRI I am 21 years old.
Helpful - 0
6881121 tn?1392830788
How old is your daughter?  If she is 18 or younger, you might want to reach out to other parents of pediatric MS, who have a lot of experience with fighting insurance companies, as technically, none of the MS DMDs had been tested/approved for kids, and there are doctors who are more specialized for kids with MS.
If your daughter is not in this age group, you have many great advisors here.
Helpful - 0
Avatar universal
I want to thank all of the people that helped me so much with the problem. Im sure you understand how confusing a person can be being told by Dr that you have MS but certain issue you have are not from MS.    But you have never had these problems before . But after reaching out to you caring people. Explanes it so much beter and give insight to what were going threw.     God Bless You !
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
Hi and welcome to our little MS community,

I have speech issues and i'm known to laugh my way through life, my speech problems are a struggle but the laughing is more of a blessing.

I have never experienced "baby talk" but if your meaning her ability to correctly form and flow through a words syllables is noticeably off eg thiday instead of friday and the way her voice comes out is different to her normal sounding voice eg high or low pitched, squeaky or gravely, then i absolutely experience this.

I don't sound like me, i go through periods where i sound like i've got a really bad soar throat or it's so low, i actually sound more like a man than a woman, sometimes when i'm really struggling to get words out and i've had to consciously slow down to be understood, i do kind of sound automated or robotic.

I'll do my best to explain some of the talking issues.........as an adult you've developed an encyclopaedia of words, 1000's of words that you use without really thinking, they just flow off your tongue whilst having a conversation. One issue is more cognitive than specifically speech, you'll be talking and without warning or logic the next word in your sentence just isn't there, it's simply gone like it's been wiped off the white board. The natural flow is interrupted by pauses, notable gaps until the missing word is found, ignored or replaced and the sentence can continue.

Missing words are often the name of something (nouns) but it can really be any word. For me nouns more commonly disappear, and if the pause is getting long, I'll just describe what i mean and keep talking. Sometimes in the middle of a sentence i'll really get stuck and i just can't find the missing word, an alternative word to use or it's not describable. It's fairly common now for me to ask an inserted question in the middle of a sentence eg

"Can you please unload the [pause] [pause] [pause] what's the word for that 'thing' we put the dishes in? [dishwasher?]............dishwasher, and before dinner would be good thanks!"          

If your actually speech is also effected, on top of the cognitive hick-ups you also have difficulty forming the sounds, and the more syllables a word has the more noticeable it can be, because the diction can get really messed up and the word just sounds really wrong. It can be the right word, but getting your mouth to move right and the flow from one syllable to the next isn't happening, it ends up making the words coming out sounding incorrect but it's the best your mouth will let you do.    

I've always had a large vocabulary, well i still do but not 'verbally' any more  because of the difficulty i have getting the words out, i find it better to use the words that are easier for me to speak, the less syllables the easier it is to say so my word bank has been vastly reduced. I basically can get stuck anywhere within a word, it depends on the shape the mouth needs to make to create the sound. It can come out sounding slurred eg sssssssssssssecondary or stuttered eg ssss sss ssecondary when it's at the beginning or end of a word but when it's in the middle it can really effects pronunciation and makes it a lot harder to be understood eg seconnn Dahry

I'm not sure why you were told these issues were not MS related because they definitely are, laughing is not as common as crying and whilst speech issues are not that common, it's not one of the particularly rare issues. It's possible because of the nature or pattern of the baby talk and laughing that the doctor was thinking it 'may be' more of a psychological issue than a physical one. I would expect the speech therapist to be able to identify any of her actual oral issues and to provide specific tips, tricks and therapy specifically tailored for her needs.  

Cheers............JJ    
  
Helpful - 0
667078 tn?1316000935
My emotions and speech are affected my my MS. I tend to get angry easily. I now know not to say what I am thinking. Sometimes I can't understand friends with MS with their speech problems. The main thing is to be patient and not worry so much about why just learn ways to deal with it. For the emotions there are medications and speech therapists can help some issues. the main thing with MS is learning how to adjust.

Alex
Helpful - 0
338416 tn?1420045702
I had a great deal of speech problems with my first flare. I didn't have uncontrollable laughing, but I had three months where I couldn't find the words to say what I wanted. It was very frustrating. I had to communicate by pointing and attempting to describe what I was talking about. Or I would use the wrong word and wouldn't realize it.

Are you working with a neurologist, or a general practitioner? If your daughter has been diagnosed, I think you're going to have to consult with a neurologist, preferably an MS specialist. I ran into several "Oh, that's not MS" moments that were *definitely* MS with my old neurologist. You shouldn't have to do your own research - that's what you're paying the doctor for.
Helpful - 0
572651 tn?1530999357
HI and welcome.  I am so sorry to hear your daughter has MS.  The doctor may or may not be right - there is a problem with MS called pseudobublar effect that is  seen in about 10% of people.  It is an uncontrollable laughter or crying - inappropriate emotions.  The good news is a speech therapist should be able to spot the problem or see if it is something else.

Good luck with learning fast, but you might want to slow down.  There is so much to learn and you have plenty of time ahead of you to do so. Little bites of information at a time will be more useful in the long run.

I'm glad you found us here and I hope you will come back and read more and learn more about MS.  Your daughter is lucky to have you involved.
`Laura
Helpful - 0
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