2 weeks ago i went to stand up and my legs wouldn't support my body weight, it lasted for an hour and then they were so weak i had to use a cane to walk. Then 4 days later I woke up with weak arms and action tremors in my right arm (when trying to raise my lower arm up my hand shakes and my upper arm feels weak, when doing the close your eyes and touch your nose, my hand shakes bad trying to get to my nose.
I went to my neuro, he ran a B-12 and sed rate which was normal, i had already had them run. I am on B-12 shots every month and my sed rate was run 4 weeks ago it was normal for a change.
I am going to a neuromuscular specialist July 2nd, I have been dealing with all of my symptoms for 3 years now.
I just found out that my first cousin has the same identical symptoms I do, she has given up because her doctors can't figure it out.
Muscle spasms in arms, legs and body
swollen lymph glands in neck and under arms
mouth and nose ulcers-before i was put on methyl/pred
swelling in legs and hands
sensitivity to sun
loss of hair
unexplained fever 100 degrees
Pleurisy-before being put on Methyl/pred
Nerve pain in knees and feet
I had severe low B-12 and low Vitamin D
Costochondritis of chest and ribs
sweeling in knees
severe ringing in ears
numbness on lower legs that comes and goes
lost word recall
droopy left eye at times
joint pain in elbows,knees, ankles, hips, shoulders and fingers
perment double vision in both sides of peripheral vision
Double Vion intermittent
lumps under skin on upper arm under the skin that can only be felt
Spasms in toes where on lifts up and turns and crosses the other toe, very painful
Things i have been diagnosed with so far:
Hypothyroid after total thyroidectomy and thyroid cancer
ocular migraines without headache
Livedo ReticularisPossible sarcoidosis
Aortic regurgitation-mild to moderate along with two other very mild leaky valves
Fibrocystic disease-had that since 1978
Mitral valve prolapse
They have tried methotrexate, Plaquenil, Lyrica, Immuran and had a reaction to all of them.
I am currently on methyl/pred-4mg
Vitamin D-2000 IU
B-12 injections monthly
Phenegran as needed
You have a very complicated medical history. The more complicated the harder for Doctors to sort out and help. Sounds like the neuromusclar specialist is a good move. What exactly do you need for us? Most of us do not have quite as complicated a case as you do. Not everything you have fits with just MS. The MS like symptoms you have are also caused by the conditions you list so it is really hard. I feel for you.
Sounds like Celiac Disease to me, but I am not a doctor. So, I say go to specialty hospital, don't waste your time with regular MD's and all sorts of different specialists that just want to refer you on to the next when they can't figure it out!
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