Life is good

[HVAC]

Besides fatigue and neuropathic pain and walking slowly and permanent double vision life is good. I have been swimming most days for an hour. People think I look great. They would not know I have MS and terminal cancer. I enjoy my dogs and cat. I like my books for the blind. I get twelve books at a time. I can select books or the choose from what I have checked out. It is free and they come in the mail. I am going to Europe this Fall. Found someone to live in. I hope to ride horses this fall and winter. I go to lunch with friends. Four times with different people last week. I volunteer with the NMSS and families with someone with cancer and with cancer patients. I am photographing an NMSS meeting with our Congressman. We are showing off the first ever PT program for PT students who study MS specifically. We hope other universities will adopt the program.

It is hard to get up and going in the morning but I usually have a good day. Having a five year life expectancy makes me relish the time I have. Have a good week.

Alex

[candy158]

Hi my friend,
I am so glad that you are doing your Europe trip.  I'm glad that you are able to do it, will be a nice thing for you, to get away.

Your positive attitude is what has got you through this hell for the last number of years.  

We all love you, and pray for you, and only want the best for you, and so glad that you are able to see that, and concentrate on things like that......

You are a special lady ,

(((HUGS)))
Candy

[bbassel]

We are so lucky too have you. To read all the love for you and the ways in which you bring hope to us is humbling.

You truly deserve it!

Barb

[TLC1104]

Hi Alex,
only been on this site a short time as I'm newly MS.
Every time I look on any of the questions that anyone is asking I always see that you are maybe the first to reply, and to be honest I look for your replies now too.
You are an inspirational person who shares information and encouragement to whoever needs it. Going through all you are and being the way you are,  I hope I'm something like you as I go through anything that will be coming my way.
Enjoy that vacation!!
T

[Corriel]

Good for you!! What marvellous cosmic payback for you to return to that hospital being in the place where you are now.

To cap it off with such a great meeting must be like icing on the cake.

I hope you are proud at how much you have overcome to get to where you are today.

C.

[ConfirmedRachel]

xxx

[HVAC]

I went into Women's Hospital at UNC today, where they treated me so badly, for a meeting. I felt nothing. I was not angry, sad, or disgusted like I have been in the past. I was at peace.  If I had seen my oncologist I would have said look I am not only alive but thriving.

The meeting was cool. UNC has the first program in the country to train PTs to work specifically with MS patients. We had our federal congressman at the meeting. They also talked about the need for more funding through NIHS for MS. I feel so good after doing advocacy work for the NMSS. I got involved right after my diagnosis.

Thanks everyone for your comments. It is all of you who are my heroes. All of coping with MS.

Alex

[kwarendorf]

My Hero :-)

[JaneyLee13]

Wow Alex, you truly are an inspiration! I have seen a lot of your comments on this forum and you were one of the first to comment when i joined. Your words helped me more than you could know, the way you talk and help people is incredible considering what life has dealt you. Thank you for being there for me, i hope you have a wonderful holiday, you truly do deserve it.
JL

[Corriel]

Big gentle hugs, you lovely, wonderful woman. A new blood disorder is not what you needed but I know that you will persevere with your grace and courageous attitude.

Corrie

[HVAC]

Now I have macrocytosis as well. A blood disorder. Hopefully it can be fixed by Folic Acid and B12. I am still happy. My doctor could feel cancer when she examined me yesterday. That is a little of a bummer. I am trying to not think about it. There is nothing I can do.

Alex

[4happygnomes]

Your positive attitude never ceases to amaze me, you are living life to the fullest despite all that you are dealing with.  I pray that they are wrong and that you have many many years ahead of you, and that a cure can be found during that time.  

You are truly inspiring!
Karen

[Andipw3]

I'm so impressed with you Alex. Your outlook gives me such hope and inspiration to stay positive . And appreciate more, of what I do have.
Thank you!
Andi

[mikeysmom1995]

Alex, you are amazing!  You are such an inspiration to me, and such a bright light. You go girl!!!!!
HUGS, barb

[SarahL2491]

Alex you give us all hope.  When I get into my pity parties, I think of what you've been thru and hang my head.  You have been an inspiration to us all and have one heck of a good time in Europe!!
You deserve it!

Sarah and Diesel (the brat)

[ConfirmedRachel]

What a fab attitude Alex,

Life is filled with horrors for sure but also fantastic experiences large and small, so glad that you can enjoy a whole range of stuff to make you smile.

Nx