Life is so sad at sometimes

[shermay]

When your 6 1/2 year old Son, picks you up off the floor, and gets towels to clean your legs.   I fell over twice yesterday amd 3 times today, and every time Etienne helped me up.  I fell out in the garden so my legs are a bit of a mess.  he takes it all in his little mind  he just says Mamans head is not working properly again, and that  maybe Maman has got her head upset down:/  

What do you say to your child who thinks that you are going to die?  It's hard I can tell you.  To reassure them. as I sure many of you will know is a very delicate situation

The reason I am writing this is because it is so hard now having the dx of secondary, whereas before I was lucky to be really active.  I get upset that now I can't play football amd the usual stuff that little boys like.  So I sit and play cards, we read and do puzzles.  To ask my Husband William for anymore help would be really pushing the boat out, as he is doing his best for me.

Over the last week, I have made so many new friends, from the UK and USA, and I am so grateful for their support - you guys know who you are:) and of course this forum.

I spoke with DJ last night, and I now have a frame, but I guess it takes a bit a getting used to:/  My major lesion is on the D10 - so it's not good news.  But I WILL keep my spirits up.  I have to.

This post is to thank ALL of you.  Your support, words of wisdom and experience.

Footprints in the sand ;(

Hugs to all in the wind from Provence,

Debs XXXX





I can't drive so Will takes him everywhere, he does his best.  I feel that it is taking time for him to realise that I am not the same [erson after my Dad's death.

[PastorDan]

Yeah, what they said.  I can attest to the advice to use SOMETHING inside the house; this is where most of my falls have occurred.  It catches me off guard, being here in familiar surroundings, I'll forget about the problem for a moment or two, then turn the corner and find my face in the carpet.  Thank God it's not concrete.

Etienne sounds like a very smart little guy, and Will sounds like a loving father and husband.

God bless you and the ones you love.

[Guitar_grrrl]

Mobility rocks!  Get a walker or scooter, or whatever you can.  DJ's right on with her advise (as well as everyone else around here).  New adventures await.  

Etienne and Will sound wonderful.  Big (((hugs))) to all.
Guitar_grrrl

[michelleric]

I just wanted you to know that I am thinking of you, and sending you hugs at this hard time.

Michelle

[ShadowsSister]

I am right here, if you will please get the walker it will be of such Help to you and to your son... He must get scared seeing his Mommy falling and than trying to help you up... This walker like I said has a seat for you to rest on and also has wheels, and comes in many pretty colors... You can Let him help you decorate it and he can even sit on the seat has you walk around... Make it a fun thing rather than something to be scare of..

The main thing is for you to be safe.... the safer you are the more  Etienne will become comfortable again around you and not think he is going to have to watch you die...

I Know you are strong enough to face whatever life throws at you, you have many good and happy times ahead of you...  So you hang in there, start thinking positively, and remove the negative thoughts from your mind... YOU CAN DEAL WITH THIS,  NO IT ISN"T FAIR... But you will move on... I know you will !!!!

AND you don't have to do it alone, you have so many Prayers being said for you and your family.. Let my hugs  wrap around you when you wake up in the morning {{{{~!~}}}}

[Sarahsmom46]

It is not easy for a 6 year old to understand everything that is going on and why, but your son seems to have it figured out in his mind.  What a bright and loving child he must be.

My kids are all grown up, but when they see me having problems keeping my balance, falling even, believe me they are just as concerned and caring as you young son.  They want to understand what is happening and why.  You will never have a stronger bond between you and your child/children until they see that you need them as much as they need you.  It is the reality of our lives with a chronic condition I suppose.  

I agree with DJ and Ess about the walker.  I never felt more safe with any of my mobility aides than I did with the walker.  Even in your own home, you need to be using something a cane a walker preferably, but please use something.  One wrong fall leading to even a sprained ankle will have a tremendous effect on your ability to get around.  That advice does not come from me, it comes from my neurologist who drills it into my head everytime I see him.  Be safe.

We are as happy to have you a part of this forum as you feel being a part of it.  You have been there for so many of us, even me personally, and that makes all the difference.  

Hang in there and please be careful.

Julie

[Lulu54]

Dear Debs,
this is so much for you to be dealing with at one time - DJ has given you wise advice.  The walker will be such a valuable aid for you and it will also give some confidence to Etienne.

Its time to investigate all of the services available to you and take advantage of each and every one of them.  Let those things make your daily routines easier.  Don't be stubborn about this or too proud to ask for this help, please.

Take it gently with your son - he is so impressionable and you know he needs his mom. Please think about getting help around your home to assist you and him.  Free yourself  up so you can spend some fun time with him.  I know, that is so much easier said than done.  But you are a smart and resourceful woman and you can find a way.

Find yourself some quiet time just for you too, so you can deal with eveything that has come your way.  It is all a lot to handle but you can do this.

I'm sorry if I sound  like a mother lecturing here - I just want you to not feel like all is lost and hopeless. Remember we are all here for you.

my best to you and your family,
L

[ShadowsSister]

Hi sweet Lady,

I want you to keep telling yourself that you will find many ways of dealing with things, Your life isn't over, A New Journey has begun, and I know how strong you are where it counts... NOW YOU HAVE TO FACE FACTS.... Buck up and Get The Walker with a seat and wheels this week, you can use it in side and out... You can't keep falling you or you are  going to break something and that will put you way back...Please Debi, do this right away...
They come in all kinds of fancy colors...

Know that I love you and continue to send you loving hugs...{{{{{~!~}}}}}}

[essdipity]

Debs, I feel sad for you as I read this. Life can be really rough. I'm glad you have found other things to do with your dear little Etienne. You are teaching him a lesson in how to cope and to make the best of what we're dealt. When he's grown, he'll remember that much more than your disabilities.

We have a lot of women here who are facing their limitations in terms of their children, and we bolster each other so much. Hang in there. Tomorrow is another day.

ess

[HVAC]

I am sorry thing are so hard for you.

Etienne sound like a very sweet little boy.

The National Society has a booklet you can get on line on how to talk to children. I would not pretend to know.

You have been through so much take care,
Alex