Aa
Long into, apologies!
Hi Everyone! I'm semi new to MedHelp. I decided to join for the BPD forum because my sister was diagnosed and ended her life. I have not had a chance to look at every forum and so have not strayed too far. But I'm just elated to have happened upon this one because for the past year and a half or so I have been experiencing some very strange symptoms no one can finger down. I'm not sure if I'm in the right place because, well, I have no idea what is wrong with me.
It all began with pain in my muscles that I started to believe was fibromyalgia because of all the hoopla(proper termonology?) surrounding it in the past year. The pain turns to numbness at times. It is a strange numbness, can almost be described as a cold feeling within my body(running water almost).
I notice often that I cannot open cans, twist off tops or touch my pointer and middle finger to my thumb without strain because my hand feels so weak. Its only in my one right hand, not both.
I have some strange visual symtoms. My eyes start to become fuzzy, almost as if I'm going to black out but I know I'm not. It's the hardest of my symptoms to describe but I'm hoping someone will understand what I'm attempting to say. Sort of like standing up too fast but it happens when I'm lying down. Sometimes I get double vision but no so bad that it doent go away within an hour or so. I'm always so tired. It feels like I can only be up for 5 hours at a time before I need to go back to sleep.
I do seem to have a hard time processing information, consentrating and remembering things. Sometimes I cant think of the right words to use and if my husband tells me something, although I just heard what he said I cant even remember(which used to be a pet peeve of mine in other people). I get very frustrated when people are telling long stories. When I first noticed I thought I had just started to have a short fuse but realized it was because I couldnt take all the information in at once.
The tests I have had are profiles for autoimmune conditions such as Lupus and RA. There are a gaggle of other blood tests I've been given but couldnt tell anyone what those were because there were so many and I was in the lab it seems every other day for the technician to draw blood. I have had lymes disease a few times because I live in a wooded area but have treated it every time. My CPK levels go up and down and have been extreamly high. The doctors have wanted to biopsy my muscles but we have not reached that point yet because of a laps in our insurance.
The pain can be excrutiating at times especially in my arms. I feel like I have to move constantly or my legs will start to hurt and become very uncomfortable although they dont believe its restless leg syndrom which is one of the other options I played with when my symptoms first began.
The other day I noticed a slight tremor in my left hand but it isnt severe enough to effect my using it normally but the pain in my fingers is really getting to me.
I cant even remember if they have mentioned MS as a possibility since they have run down an impossible list of possibilities to remember. I'm frustrated and reaching my breaking point because every doctor has a different theory and different idea as to what may be the problem but nothing ever comes to fruition from any of them.
I guess what I'm asking is for everyones opinion as to what this sounds like to them. I know its impossible to tell exactly whats going on and I would need to get that muscle biopsy they would like to do. But maybe some people have had some of the same experiences and can shed some light on to what I should be asking my doctors or talking to them about.
Thank you all, Amph
It all began with pain in my muscles that I started to believe was fibromyalgia because of all the hoopla(proper termonology?) surrounding it in the past year. The pain turns to numbness at times. It is a strange numbness, can almost be described as a cold feeling within my body(running water almost).
I notice often that I cannot open cans, twist off tops or touch my pointer and middle finger to my thumb without strain because my hand feels so weak. Its only in my one right hand, not both.
I have some strange visual symtoms. My eyes start to become fuzzy, almost as if I'm going to black out but I know I'm not. It's the hardest of my symptoms to describe but I'm hoping someone will understand what I'm attempting to say. Sort of like standing up too fast but it happens when I'm lying down. Sometimes I get double vision but no so bad that it doent go away within an hour or so. I'm always so tired. It feels like I can only be up for 5 hours at a time before I need to go back to sleep.
I do seem to have a hard time processing information, consentrating and remembering things. Sometimes I cant think of the right words to use and if my husband tells me something, although I just heard what he said I cant even remember(which used to be a pet peeve of mine in other people). I get very frustrated when people are telling long stories. When I first noticed I thought I had just started to have a short fuse but realized it was because I couldnt take all the information in at once.
The tests I have had are profiles for autoimmune conditions such as Lupus and RA. There are a gaggle of other blood tests I've been given but couldnt tell anyone what those were because there were so many and I was in the lab it seems every other day for the technician to draw blood. I have had lymes disease a few times because I live in a wooded area but have treated it every time. My CPK levels go up and down and have been extreamly high. The doctors have wanted to biopsy my muscles but we have not reached that point yet because of a laps in our insurance.
The pain can be excrutiating at times especially in my arms. I feel like I have to move constantly or my legs will start to hurt and become very uncomfortable although they dont believe its restless leg syndrom which is one of the other options I played with when my symptoms first began.
The other day I noticed a slight tremor in my left hand but it isnt severe enough to effect my using it normally but the pain in my fingers is really getting to me.
I cant even remember if they have mentioned MS as a possibility since they have run down an impossible list of possibilities to remember. I'm frustrated and reaching my breaking point because every doctor has a different theory and different idea as to what may be the problem but nothing ever comes to fruition from any of them.
I guess what I'm asking is for everyones opinion as to what this sounds like to them. I know its impossible to tell exactly whats going on and I would need to get that muscle biopsy they would like to do. But maybe some people have had some of the same experiences and can shed some light on to what I should be asking my doctors or talking to them about.
Thank you all, Amph
I am glad you are going to stick aound in our group. You have a fun way of expressing youself... Have a better day...HOTW...ShadowsSister
thank you for the warm welcome to your forum. I must admit I do like it here although MS seems like a further off option every day...to my doctors, not me. I'm keeping myself open to the fact that it may be neurological or a sysytemic condition like autoimmune (though as I'm reading is MS considered autoimmune to some extent? Oh it is all a little confusing as everything seems systemic)
Shell don't worry about missing a "hello", I was sure I was getting a little lost in the shuffle because it is so busy around here! This forum is hopping which is a good thing. So I'm glad to be meeting you!!
Thank you Richard, it is very difficult dealing with my sisters death, but every day gets a little easier and I never want to forget anyhow as it's a daily reminder that life is precious!
Jen, as for the contast, yes there was something used. I couldn't tell you if it was called gadolinium but I think there are a few used, right? One for the shorter MRI's and one for the longer ones when many area's are being done?
I'd think I did recieve the gadolinium because it was a relativly short MRI judging from what my roomate in the hospital was saying about hers (she had cancer and was getting an MRI to determine where exactly radiations hould be done, I might have that wrong though. Anyway she was gone for what seemed like half the day)
I didn't recieve a spinal tap, actually no one even mentioned having one done. I've seen on the forum that many people have had them done and was wondering if it was something needed to help make a diagnosis for MS. To be honest I would be petrified to have one done, but if it's something that is needed to get further down the pth to diagnosis maybe I should ask about this at my upcoming neuro appointment.
Maybe they are sparing me too many intrusive tests at once...lol, Can they do a spinal under GA or do you have to be awake? Cause maybe they can just do it while they are taking a muscle sample, I'm all about multi-tasking:)
But all spinals I've seen(on TV that is) are done while someone is awake, even young children so I'm guessing that's a nay on the GA thing. Too bad, I think I'd rather be put out!
Is that TV show "House" a good indicator of medical procedures? Probably not!!
But who wouldn't mind a pill popping, narcasistic jerk if the diagnosis and treatment could all be found and successfully given within a few days!!
Anyway, thanks to all for the welcome. I think I'll stick around here!
Shell don't worry about missing a "hello", I was sure I was getting a little lost in the shuffle because it is so busy around here! This forum is hopping which is a good thing. So I'm glad to be meeting you!!
Thank you Richard, it is very difficult dealing with my sisters death, but every day gets a little easier and I never want to forget anyhow as it's a daily reminder that life is precious!
Jen, as for the contast, yes there was something used. I couldn't tell you if it was called gadolinium but I think there are a few used, right? One for the shorter MRI's and one for the longer ones when many area's are being done?
I'd think I did recieve the gadolinium because it was a relativly short MRI judging from what my roomate in the hospital was saying about hers (she had cancer and was getting an MRI to determine where exactly radiations hould be done, I might have that wrong though. Anyway she was gone for what seemed like half the day)
I didn't recieve a spinal tap, actually no one even mentioned having one done. I've seen on the forum that many people have had them done and was wondering if it was something needed to help make a diagnosis for MS. To be honest I would be petrified to have one done, but if it's something that is needed to get further down the pth to diagnosis maybe I should ask about this at my upcoming neuro appointment.
Maybe they are sparing me too many intrusive tests at once...lol, Can they do a spinal under GA or do you have to be awake? Cause maybe they can just do it while they are taking a muscle sample, I'm all about multi-tasking:)
But all spinals I've seen(on TV that is) are done while someone is awake, even young children so I'm guessing that's a nay on the GA thing. Too bad, I think I'd rather be put out!
Is that TV show "House" a good indicator of medical procedures? Probably not!!
But who wouldn't mind a pill popping, narcasistic jerk if the diagnosis and treatment could all be found and successfully given within a few days!!
Anyway, thanks to all for the welcome. I think I'll stick around here!
Amphitrite, was your MRI done with gadolinium contrast? When testing the brain for MS, they administer a contrast agent so that new lesions in the brain will show up. If the MRI was done without contrast, you may need to have it done again.
Typically they also do a spinal tap to check your fluid for antibodies - they can determine whether your blood-brain barrier has been breached, which is a sign of MS.
Your symptoms definitely sound neurological, but there's nothing specific that makes it MS over another neurological disease. The tremors, muscle weakness, and electric shock sensations are the most suspicious.
Good luck! Let us know how you do - Jen
Typically they also do a spinal tap to check your fluid for antibodies - they can determine whether your blood-brain barrier has been breached, which is a sign of MS.
Your symptoms definitely sound neurological, but there's nothing specific that makes it MS over another neurological disease. The tremors, muscle weakness, and electric shock sensations are the most suspicious.
Good luck! Let us know how you do - Jen
I am terribly sorry to hear about your sister.
Good luck with your appointment and keep us posted as to how you are doing.
Richard
OperaMBA
Good luck with your appointment and keep us posted as to how you are doing.
Richard
OperaMBA
Hi Amphitrite,
I'm sorry I've not said hello to you yet! Hello! I'm so glad you went to the emergency and that they began a work up on you.
Very glad to have you here with us, and wishing you well with your appointment.
See you around!
-Shell
I'm sorry I've not said hello to you yet! Hello! I'm so glad you went to the emergency and that they began a work up on you.
Very glad to have you here with us, and wishing you well with your appointment.
See you around!
-Shell
I exceed the character limit, again! So wanted to make sure I told you all how much your support means to me. I wish you all the best doctors and treatments, answers and conclusions to your suffering. But I will be around so hope to chat up with you guys soon!!
I'll give an update of my doctors appointment tomorrow!
I'll give an update of my doctors appointment tomorrow!
Absolutly some relief the the MRI was fine but still an ounce or two of concern that they want to do a repeat so soon. I'm hoping they are just being thurough and feel it's more of a precausion than anything else.
My husband has forgiven me for being so stubburn and hard headed. I think he was more worried for me than angry. But you are right we are a team and I need to be open and honest with him.
I'm just so afraid he is going to up and find a younger more healthy women, he is coming up on mid life and he already has the symptoms of a crisis. He is so health concious that I feel my being sick and not being able to get out of bed some days is causing him to see me as damaged. I'm sure he doesn't feel that way though. I'm sure I'm not the only one to ever feel that way.
I did find an autoimmune disease forum and made a post hoping someone will recognize my symptoms or has experienced them also. But since they haven't ruled out MS I will check in from time to time.
It's only been almost a year and a half for me and I'm already so frustrated and exhausted, I can't imagine what it would be like to suffer for years without answers. Your strength is inspiring.
But I will keep in touch as I need all the friends and support I can get now and hope I can offer you the same.
Amph
OH, I'm not 100% on whether they did a cortisol level. They gave me what felt like hundreds of blood tests and I only remember the names of the ones I've had before.
I think the idea was that as long as there wasn't anything drasticallt wrong the neuro and rhumatologist will go over them all with me...or at least the important ones.
Well I'm off, hope your all well and sleeping soundly! I can't sleep but at least it's allowing me to catch up on my posts which I am so horrible at keeping up with!
My husband has forgiven me for being so stubburn and hard headed. I think he was more worried for me than angry. But you are right we are a team and I need to be open and honest with him.
I'm just so afraid he is going to up and find a younger more healthy women, he is coming up on mid life and he already has the symptoms of a crisis. He is so health concious that I feel my being sick and not being able to get out of bed some days is causing him to see me as damaged. I'm sure he doesn't feel that way though. I'm sure I'm not the only one to ever feel that way.
I did find an autoimmune disease forum and made a post hoping someone will recognize my symptoms or has experienced them also. But since they haven't ruled out MS I will check in from time to time.
It's only been almost a year and a half for me and I'm already so frustrated and exhausted, I can't imagine what it would be like to suffer for years without answers. Your strength is inspiring.
But I will keep in touch as I need all the friends and support I can get now and hope I can offer you the same.
Amph
OH, I'm not 100% on whether they did a cortisol level. They gave me what felt like hundreds of blood tests and I only remember the names of the ones I've had before.
I think the idea was that as long as there wasn't anything drasticallt wrong the neuro and rhumatologist will go over them all with me...or at least the important ones.
Well I'm off, hope your all well and sleeping soundly! I can't sleep but at least it's allowing me to catch up on my posts which I am so horrible at keeping up with!
I am glad too the you had your first MRI, please remember to share what you are dealing with, with your hubby You are a team,,
I hope that now you can work towards freeing yourself of some of the stress you have been under. I know it is a hard task, but Stress just makes every thing so much worse. At least it is that way with me.
Please stay in touch so we know how you are doing. I will be keeping you in my Prayers.. Hope you can get some rest... Hugs...ShadowsSister
I hope that now you can work towards freeing yourself of some of the stress you have been under. I know it is a hard task, but Stress just makes every thing so much worse. At least it is that way with me.
Please stay in touch so we know how you are doing. I will be keeping you in my Prayers.. Hope you can get some rest... Hugs...ShadowsSister
YAY! MRI done! So glad it came out clear. Your "episode" sounds like adrenal insufficiency, but I'm sure they would have checked your cortisol level. They did, didn't they? The adrenals can affect so many body systems.
They say, on average it takes about 2 years to get a complete diagnosis with symptoms like this. I hope this isn't true!
I hope you can stay pain free, so much easier to deal with everything when there's less pain.
Get plenty of rest. I'm sure things are going to get better.
They say, on average it takes about 2 years to get a complete diagnosis with symptoms like this. I hope this isn't true!
I hope you can stay pain free, so much easier to deal with everything when there's less pain.
Get plenty of rest. I'm sure things are going to get better.
Oh, typo I ment the liver autoimmune they have ruled out! (is it called hepatitis, or it's a form of that? I am not sure, they were worried because of the itching and a blood tests the first day but I was sick so they said liver tests can come back high when your sick)They dont think it's Lupus because I have never had a butterfly rash on my face and they say it is not as common in caucasian women, especially with never having the signiture rash. But as far as I know haven't ruled it out completely.
Sorry it's taken me so long to check in. It hasn't been the greatest few days. But not the worst either.
I saw the neuro on the 22nd and then on the 23rd again. Seemed nice enough for a specialist. He did a few short exams one day because I was so tired and did a few the next when I was able to stay awake. I think the neuro knows more about me than my own mother now! Boy are they maticulous!
The MRI was fine although they are saying that because all my symptoms and my marginal nero results that they would like to repeat it in 3 months. I thought once you had an MRI and it was fine, it ment there is nothing there to worry about? I asked them what possibilities they were looking at. They seemed to be looking strongly at autoimmune, though not Lupus. When I asked about MS they didn't seem like they had ruled it out of there minds but that they weren't nessesarily looking especially for it either. They say many autoimmune diseases can cause alot of neuro problems and mess with your heart and lungs making them inflame or swell.
They are really concerned about the headaches, the tremors, my muscle pain and numbness. They are also talking nerve conduction tests. But I don't have to get any of those yet. And defenitly not until I get back the good insurance instead of this faulty one my husbands job got me for an emergency situation. Really it will only cover a little fee of the hospital.
They are pretty sure the eye pain is connected to the headaches because the eye tests were okay. They are pushing for me to see my Rhumatologist tommorow. They may as well just done the biopsy in the hospital, two birds with one stone.
I think they figured they tested me up enough. But at least theer making room to see me tomorrow.
The hospital neuro referred me to someone so at least it's not like fully starting over because this one is at the hospital too, he just sees outside patients. All my test results at the tips of there fingers. Should make the process a little easier than having to get them from this doctor or that doctor...
Anyway, so that's where I'm at now. No diagnosis. They have only ruled out the obvious like RA, arthritis, Lymes and actually they may have ruled out Lupus but don't qoute me on that just yet.
Thanks for your thoughts everyone!!
Amph
PS, Thank you for the well wishes on dealing with my sisters death. It's been a long road but I know she would want me to be happy and keep going to the best of my ability. It's never easy losing anyone but at least I have her always with me now.
I saw the neuro on the 22nd and then on the 23rd again. Seemed nice enough for a specialist. He did a few short exams one day because I was so tired and did a few the next when I was able to stay awake. I think the neuro knows more about me than my own mother now! Boy are they maticulous!
The MRI was fine although they are saying that because all my symptoms and my marginal nero results that they would like to repeat it in 3 months. I thought once you had an MRI and it was fine, it ment there is nothing there to worry about? I asked them what possibilities they were looking at. They seemed to be looking strongly at autoimmune, though not Lupus. When I asked about MS they didn't seem like they had ruled it out of there minds but that they weren't nessesarily looking especially for it either. They say many autoimmune diseases can cause alot of neuro problems and mess with your heart and lungs making them inflame or swell.
They are really concerned about the headaches, the tremors, my muscle pain and numbness. They are also talking nerve conduction tests. But I don't have to get any of those yet. And defenitly not until I get back the good insurance instead of this faulty one my husbands job got me for an emergency situation. Really it will only cover a little fee of the hospital.
They are pretty sure the eye pain is connected to the headaches because the eye tests were okay. They are pushing for me to see my Rhumatologist tommorow. They may as well just done the biopsy in the hospital, two birds with one stone.
I think they figured they tested me up enough. But at least theer making room to see me tomorrow.
The hospital neuro referred me to someone so at least it's not like fully starting over because this one is at the hospital too, he just sees outside patients. All my test results at the tips of there fingers. Should make the process a little easier than having to get them from this doctor or that doctor...
Anyway, so that's where I'm at now. No diagnosis. They have only ruled out the obvious like RA, arthritis, Lymes and actually they may have ruled out Lupus but don't qoute me on that just yet.
Thanks for your thoughts everyone!!
Amph
PS, Thank you for the well wishes on dealing with my sisters death. It's been a long road but I know she would want me to be happy and keep going to the best of my ability. It's never easy losing anyone but at least I have her always with me now.
I am so sorry about the loss of your Sister. I am so glad that you are getting a MRI. I was going to suggest that. MS is very cunning, and it sometimes gets passed by. Please don't you give up. I know all of us will be Praying for you and your family.
You now have a support group, like no other. At least that has been my experience since joining them.
Try not to keep things from your Husband. This effects both of you. I hope he will get over being upset at you and give you the love & support you need right now. Please let US know how you do today...
Hugs & Prayers...ShadowsSister
You now have a support group, like no other. At least that has been my experience since joining them.
Try not to keep things from your Husband. This effects both of you. I hope he will get over being upset at you and give you the love & support you need right now. Please let US know how you do today...
Hugs & Prayers...ShadowsSister
Have been in the hospital since 2am this morning. One minute I was in the bath the next I was in the ED. My husband luckily woke up to go to the toilet and found me passed out half in half out the bath. He tried waking me up, apparently I kept coming to and losing conciousness again so he called emergency services.
It is a little difficult for them to put together the pieces at this point because I don't remember anything other than having the headache and vomiting.
10 hours spent in an ED bed before they were able to admit me fully.
On the positive side my pain is being treated. On the negative I'm stuck here until they figure out what the problem is and what is causing me to get so ill. Not much was done in the ED I guess because it was so busy. Although I had no idea how I had even gotten there I wasn't the worst off. Most sickly fist of course. Can't argue with that. But they were concerned that theer was no obvious reason for my "episode" so in the end admitted me. They said the atarax was taken too many hours ago to have this effect on me now. At least it's one problem knocked off the list.
A neurologist will be coming to see me tomorrow. They have ordered an MRI but I'm not sure what time it will be since it seems I'm only one of the many who need one. My roomate is waiting for one also. My husband works for the hospital so I'm hoping that means top notch treatment and the answers will be pouring in.
I hid most of this from him for so long afraid that he would worry too much. Well he know's now. No hiding it when someone finds you stark naked on the bathroom floor! He is to say the least a little angry.
Long enough. Wish me luck, tomorrow is a new day with a new oppertunity to get my questions answered. Oh the bill this is going to add up to be!
It is a little difficult for them to put together the pieces at this point because I don't remember anything other than having the headache and vomiting.
10 hours spent in an ED bed before they were able to admit me fully.
On the positive side my pain is being treated. On the negative I'm stuck here until they figure out what the problem is and what is causing me to get so ill. Not much was done in the ED I guess because it was so busy. Although I had no idea how I had even gotten there I wasn't the worst off. Most sickly fist of course. Can't argue with that. But they were concerned that theer was no obvious reason for my "episode" so in the end admitted me. They said the atarax was taken too many hours ago to have this effect on me now. At least it's one problem knocked off the list.
A neurologist will be coming to see me tomorrow. They have ordered an MRI but I'm not sure what time it will be since it seems I'm only one of the many who need one. My roomate is waiting for one also. My husband works for the hospital so I'm hoping that means top notch treatment and the answers will be pouring in.
I hid most of this from him for so long afraid that he would worry too much. Well he know's now. No hiding it when someone finds you stark naked on the bathroom floor! He is to say the least a little angry.
Long enough. Wish me luck, tomorrow is a new day with a new oppertunity to get my questions answered. Oh the bill this is going to add up to be!
Thank you to everyone who responded to my post and my journal. I plan to get back to all but have had the worst day. Bad reaction to a medication, headache that felt as if my head was being crushed and vomiting, maybe from the tremendous head pain.
I'm just starting to feel a little better after sleeping all day.
Headache is still there but more mild. My heart has stopped pounding.
Got in the shower and let the water pound on my back and head. Made alot of difference. Why is it a shower can make everything feel better, even a racing heart.
I'll never take atarax again!! It's going straight into the toilet to be flushed!
Again thanks all, I will write again when I'm feeling a little better.
I'm just starting to feel a little better after sleeping all day.
Headache is still there but more mild. My heart has stopped pounding.
Got in the shower and let the water pound on my back and head. Made alot of difference. Why is it a shower can make everything feel better, even a racing heart.
I'll never take atarax again!! It's going straight into the toilet to be flushed!
Again thanks all, I will write again when I'm feeling a little better.
Amph
I'm so sorry for the loss of your sister.. I can't image the pain you and you family most have/are going through.
I'm glad you came back to this little part of the world, there is some great info and really helpful people.
I'll tell you why I didn't first respond to your post.. I have a very hard time with my eyes ( so do many here) and reading is a big chore.. When I saw how your post was laid out I knew before I started that I couldn't read it.. sorry.. so if you could in the future break your thoughts up , into small paragraphs.. they are much easier to read.
I hope you stay for a while :) Many of your sx. are consistent with MS , an MRI would be a good next test .. what worries you about it .. ?? its not painful .. And you should tell your doctors about the bladder and bowel problems ,eye pain and electric shock sensation as these are big clues.
Call today , see if you can get in . If this is MS , you don't want to wait ... its ALWAYS active..
Good luck
Prayers and hugs
Jo
I'm so sorry for the loss of your sister.. I can't image the pain you and you family most have/are going through.
I'm glad you came back to this little part of the world, there is some great info and really helpful people.
I'll tell you why I didn't first respond to your post.. I have a very hard time with my eyes ( so do many here) and reading is a big chore.. When I saw how your post was laid out I knew before I started that I couldn't read it.. sorry.. so if you could in the future break your thoughts up , into small paragraphs.. they are much easier to read.
I hope you stay for a while :) Many of your sx. are consistent with MS , an MRI would be a good next test .. what worries you about it .. ?? its not painful .. And you should tell your doctors about the bladder and bowel problems ,eye pain and electric shock sensation as these are big clues.
Call today , see if you can get in . If this is MS , you don't want to wait ... its ALWAYS active..
Good luck
Prayers and hugs
Jo
Thank you both for replying. I'm so nervous about what my symptoms are doing to me and what they mean for me. Its true my insurance has lapped but I'm not exactly counting the minutes until I get it back because I'm so afraid to get the biposy and an MRI. I know how awful that sounds and that I'm really doing myself a huge diservice, but I'm so afraid.
I know odds are that I'm more likely to be developing something other than MS, maybe thats why I got so few replys. I hope that doesn't sound unappriciative to both of you because I'm so grateful for your support.
Regardless of the diagnosis it's apparent that this is systemic as most of my systems seem to be affected in some way.
I know you're both dealing with a huge amount of stress and your own fight to get answers so I thank you for taking the time to reply to my post.I hope Laura that your wait for the results goes as quickly as possible and that the results give you some answers. After its all said and done and they establish the pattern of your symptoms it will all seem worth the time you waited. Waiting is the worst when you need answers but you have obviouslt found a great support network for yourself here and I'm sure thats making it a little easier.
Be well and hang in there. It will all be okay, you'll see.
Amph
I know odds are that I'm more likely to be developing something other than MS, maybe thats why I got so few replys. I hope that doesn't sound unappriciative to both of you because I'm so grateful for your support.
Regardless of the diagnosis it's apparent that this is systemic as most of my systems seem to be affected in some way.
I know you're both dealing with a huge amount of stress and your own fight to get answers so I thank you for taking the time to reply to my post.I hope Laura that your wait for the results goes as quickly as possible and that the results give you some answers. After its all said and done and they establish the pattern of your symptoms it will all seem worth the time you waited. Waiting is the worst when you need answers but you have obviouslt found a great support network for yourself here and I'm sure thats making it a little easier.
Be well and hang in there. It will all be okay, you'll see.
Amph
First let me say I am sorry about your sister - Bi-Polar Disorder is so difficult for everyone including the family members. I hope you have found good support to work through the emotions of her being gone.
Welcome to a great site to learn from. These people are great at listening, evaluating, suggesting and cajoling ....
I notice that you have not had a brain MRI and I think that would be indicated, with all of your symptoms. And the sooner, the better. If this is MS, you will probably be having repeat MRI's 6 months apart to establish the disease pattern, so you need to get one done now. That 6 month wait is hard - I know, because I am counting the time myself.
Spend as much time as possible reading those health pages - I read them several times to really grasp the concepts and remember the facts. :-)
I hope you will come here often to work through this diagnosis,
My best to you,
Laura
Welcome to a great site to learn from. These people are great at listening, evaluating, suggesting and cajoling ....
I notice that you have not had a brain MRI and I think that would be indicated, with all of your symptoms. And the sooner, the better. If this is MS, you will probably be having repeat MRI's 6 months apart to establish the disease pattern, so you need to get one done now. That 6 month wait is hard - I know, because I am counting the time myself.
Spend as much time as possible reading those health pages - I read them several times to really grasp the concepts and remember the facts. :-)
I hope you will come here often to work through this diagnosis,
My best to you,
Laura
Thank you for the welcome!!
Funny, I had just seen the health pages and was looking them over:)
After reading all the great and thurough information I've realized there are other symptoms I have never included because I thought them unrelated.
Feeling of an electric shock in my throat waking me up from sleep but obviously having no cause*
Itching all over despite liver tests concluding I'm wothin normal ranges
Burning and cooling sensations in some parts of my body although thats similiar to the numbness sort of symptom.
Eye pain
Incontinence (embarassinly, and I dont know why I'm going to say this...I weed my bed last week while awake without even realizing because of the usual warm/cold sensation in my legs)
And since I'm adding these new ideas I may as well mention that I have had alot of intestinal problem as of the past year which I thought may be IBS as the gastro couldnt tell(how thats possible..???) It may still be.
I promise, I'm signing off now..lol! I think I'd spend my whole day here rooting around if I had it my way. There is so much info that I have never heard before!
Amph
Funny, I had just seen the health pages and was looking them over:)
After reading all the great and thurough information I've realized there are other symptoms I have never included because I thought them unrelated.
Feeling of an electric shock in my throat waking me up from sleep but obviously having no cause*
Itching all over despite liver tests concluding I'm wothin normal ranges
Burning and cooling sensations in some parts of my body although thats similiar to the numbness sort of symptom.
Eye pain
Incontinence (embarassinly, and I dont know why I'm going to say this...I weed my bed last week while awake without even realizing because of the usual warm/cold sensation in my legs)
And since I'm adding these new ideas I may as well mention that I have had alot of intestinal problem as of the past year which I thought may be IBS as the gastro couldnt tell(how thats possible..???) It may still be.
I promise, I'm signing off now..lol! I think I'd spend my whole day here rooting around if I had it my way. There is so much info that I have never heard before!
Amph
Hi, welcome to our forum, we're glad you found us. Your symptoms do sound suspiciously like MS, though MS is very hard to diagnose and there are many other things that mimic MS.
I'm undiagnosed, but have many of the same symptoms as you are describing. Some of the people on this forum have worked really hard on doing "health pages" to help newbies with some of their questions. You will find them in the upper right hand corner of the page.
Maybe they will help you to understand some of the symptoms, and what it takes to get a diagnoses of MS. I am sure there will be many others who will welcome you and try to help you with anything you need.
Again, glad you found us. The people here are the greatest you will ever find anywhere. They are loving, giving and great friends...I am sure you will be happy you are here.
Hugs
doni
I'm undiagnosed, but have many of the same symptoms as you are describing. Some of the people on this forum have worked really hard on doing "health pages" to help newbies with some of their questions. You will find them in the upper right hand corner of the page.
Maybe they will help you to understand some of the symptoms, and what it takes to get a diagnoses of MS. I am sure there will be many others who will welcome you and try to help you with anything you need.
Again, glad you found us. The people here are the greatest you will ever find anywhere. They are loving, giving and great friends...I am sure you will be happy you are here.
Hugs
doni
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