Aa
Looking for advice re appointment
I am looking for a little advice and possibly reassurance. I went to the doctors at the beginning of April this year as I had noticed a numb patch the size of my palm on my right wrist, I had also had a patch on my thigh last year...as soon as I told the GP he sent me for an MRI and said he needed to rule out MS, of course I was taken aback as I am a fairly healthy 40 yr old woman who doesn't drink or smoke (not sure if that's even related) so, I had the scan in May and was referred to a neurologist by the GP when he got the scan back as there were 'bright spots'. Fast forward to July, I received an appt, which was then cancelled.
Something else happened to me in this period, I have been getting blurred vision in my left eye after exercise and when I was on holiday in the heat, I went to the opticians and after a thorough check he told me I had something called pigment dispersal syndrome...he referred me to an ophthalmologist. I saw him last month and he stated it was not PDS and that my eyes were ok, it wasn't till the end of the appt I thought to tell him I had a neurologist appt, he called up my notes and said it may have something to do with this...he said the name of another syndrome that causes blurring and is related to MS.
So, back to the appointment, I finally got a new one for mid October, I called the appointment line to see why it had taken so long and the guy said that my Neuro appt request wasn't sent till June, then after the 'team' had looked at it it was deemed as routine. Apparently it's within the NHS 12 week criteria.
Now, I've done the stupid thing of googling MS and it freaked me out...of course I can mold anything that happens to me in to it, but the one thing that stood out was that I seem to be ok for ages then something crops up...i sound like a hypochondriac now...I'm really not, I'm healthy and happy, but I thought I was having a heart attack earlier this year, so much pain when I was trying to breathe...my husband took me to A&e as we were so worried...my heart was fine!! Now when it happens I just try to breathe through...anyway I'm waffling, I read about the hug? I think maybe I'm driving myself mad!!
Im hanging on to the fact my MRI was classed as routine...surely if there were any signs I wouldn't have been waiting this long?
Something else happened to me in this period, I have been getting blurred vision in my left eye after exercise and when I was on holiday in the heat, I went to the opticians and after a thorough check he told me I had something called pigment dispersal syndrome...he referred me to an ophthalmologist. I saw him last month and he stated it was not PDS and that my eyes were ok, it wasn't till the end of the appt I thought to tell him I had a neurologist appt, he called up my notes and said it may have something to do with this...he said the name of another syndrome that causes blurring and is related to MS.
So, back to the appointment, I finally got a new one for mid October, I called the appointment line to see why it had taken so long and the guy said that my Neuro appt request wasn't sent till June, then after the 'team' had looked at it it was deemed as routine. Apparently it's within the NHS 12 week criteria.
Now, I've done the stupid thing of googling MS and it freaked me out...of course I can mold anything that happens to me in to it, but the one thing that stood out was that I seem to be ok for ages then something crops up...i sound like a hypochondriac now...I'm really not, I'm healthy and happy, but I thought I was having a heart attack earlier this year, so much pain when I was trying to breathe...my husband took me to A&e as we were so worried...my heart was fine!! Now when it happens I just try to breathe through...anyway I'm waffling, I read about the hug? I think maybe I'm driving myself mad!!
Im hanging on to the fact my MRI was classed as routine...surely if there were any signs I wouldn't have been waiting this long?
Hi Kyle,
Thank you...I'm afraid that's all there is, it just has the name of the person who made the report. Yes, not long now.
T
Thank you...I'm afraid that's all there is, it just has the name of the person who made the report. Yes, not long now.
T
Hi TM - Welcome to the group.
Bright spots are understandably concerning. But there are many possible causes. Towards the bottom of the MRI report there should be a section labeles "Impressions" or something like that. In that section the radiologists lists possible causes for what was seen ( thesections you posted).
They will often list what they think most likely first. Remember that radiologists are not diagnosticians. They can't tell for sure what caaused the findings. That's your doc's job. Mid-October is only a couple of weeks away :-)
Kyle
Bright spots are understandably concerning. But there are many possible causes. Towards the bottom of the MRI report there should be a section labeles "Impressions" or something like that. In that section the radiologists lists possible causes for what was seen ( thesections you posted).
They will often list what they think most likely first. Remember that radiologists are not diagnosticians. They can't tell for sure what caaused the findings. That's your doc's job. Mid-October is only a couple of weeks away :-)
Kyle
Thank you. I wasn't aware I could get a copy!
Head:
There are a few high signal foci noted mainly frontal lobes with high signal foci noted in the posterior left parietal lobe adjacent to the trig one of the left ventricle. They appear unchanged when compared to MRI of 2011. The differential include foci of demyelination or microangopathic ischia mic changes. The ventricles are normal in size.
Spine:
There is loss of physiological cervical lordosis. Degenerative change noted at c5/6 and c6/7 with that at 5/6 narrowing the right nerve root canal. Cervical spinal canal is adequate cervical cord is of normal thickness.
Head:
There are a few high signal foci noted mainly frontal lobes with high signal foci noted in the posterior left parietal lobe adjacent to the trig one of the left ventricle. They appear unchanged when compared to MRI of 2011. The differential include foci of demyelination or microangopathic ischia mic changes. The ventricles are normal in size.
Spine:
There is loss of physiological cervical lordosis. Degenerative change noted at c5/6 and c6/7 with that at 5/6 narrowing the right nerve root canal. Cervical spinal canal is adequate cervical cord is of normal thickness.
Hi, thanks! I didn't realise I could get a copy...I phoned today and picked it up. So, here is what it says...
Head:
There are a few high signal foci noted mainly frontal lobes with high signal foci noted in the posterior left parietal lobe adjacent to the trig one of the left ventricle. They appear unchanged when compared to MRI of 2011. The differential include foci of demyelination or microangopathic ischia mic changes. The ventricles are normal in size.
Spine:
There is loss of physiological cervical lordosis. Degenerative change noted at c5/6 and c6/7 with that at 5/6 narrowing the right nerve root canal. Cervical spinal canal is adequate cervical cord is of normal thickness.
Head:
There are a few high signal foci noted mainly frontal lobes with high signal foci noted in the posterior left parietal lobe adjacent to the trig one of the left ventricle. They appear unchanged when compared to MRI of 2011. The differential include foci of demyelination or microangopathic ischia mic changes. The ventricles are normal in size.
Spine:
There is loss of physiological cervical lordosis. Degenerative change noted at c5/6 and c6/7 with that at 5/6 narrowing the right nerve root canal. Cervical spinal canal is adequate cervical cord is of normal thickness.
Hi there,
Did you get a report from your MRI or did anyone explain the outcome of it? If yes, it might help us help you if you could share what it says.
If not, I'd ask for an appt to go through the report and put your mind at rest. A lot of symptoms of MS are shared by many far less serious complaints so I wouldn't start worrying yourself unnecessarily.
Get an appt and the report (it's your information so they have to give it to you btw) and let us know any more info/symptoms.
Nx
Did you get a report from your MRI or did anyone explain the outcome of it? If yes, it might help us help you if you could share what it says.
If not, I'd ask for an appt to go through the report and put your mind at rest. A lot of symptoms of MS are shared by many far less serious complaints so I wouldn't start worrying yourself unnecessarily.
Get an appt and the report (it's your information so they have to give it to you btw) and let us know any more info/symptoms.
Nx
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