Looking into treatment now i've been diagnosed..
Going through the diagnosis process.. MRI showed multiple lesions in brain and one in spine. LP results were high in 4 areas: CSF IGG/ALB Ratio. CSF IGG Index. IGG Synthesis Rate CSF. and Oligoclonal Bands, CSF.
With these results my doctor has said it is RMMS. My sister worries this is not enough to give a positive diagnosis. I'm comfortable with my doctor and trust he is correct. Anyone think I need more testing, second opinion? Just based on your experience with getting diagnosed.
Doctor sent me with lots of info on MS and treatment options. I will be doing my research but was curious other peoples thoughts/experiences with the options I was given. Copaxone, Rebif and Avonex.
Hi KS - Sorry you seem to be on your way to membership in our little club, but glad you found us :-)
The MRI and LP results are generally used to confirm a clinical diagnosis. I am assuming you had symptoms that lead to all the testing. I wasn't clear the o-bands part of your results. Did you have o-bands that were unique to your CSF, meaning o-bands that showed up in your CSF but not in the blood sample drawn at the same time?
If so...if it walks like a duck and quacks like a duck...
It's great that you have a doc that you like. He will not be insulted if you get a second opinion. I think it is a good idea. Before you start on a DMD (Disease Modifying Drug) treatment it makes sense to know that your treating the right thing :-)
welcome to our little corner of the internet. I'll second Kyle's welcome that I'm sorry you have been DX'd with MS but glad you found us.
It sounds like you doctor is positive on your diagnosis and you don't have questions, either. However, a good doctor will never object to a second opinion. you can take all of your test results (so you don't have to repeat anything) and have another neurologist take a look at them.
I have to say I didn't get a second opinion and didn't feel like one was needed. I trust the medical care I am getting, and my MRI/LP and neuro exam all fit the classic MS pattern. It really is an individual choice ....
One of my favorite sites to review the drug choices initially is a site in UK, that steps you through some of the choices you have... and right now I can't find it....
The drugs you have been offered all are proven to work for people with RRMS to delay the rate of relapses -- what one you choose depends on personal choices.
I'll look for that site and add it -
welcome again, L
Hey Ken. Yes I was having symptoms of numbness and tingling/electricity for about 3 months before I went to the doctor.
The O-bands says: "five oligoclonal bands were observed in the CSF, which were not detected in the serum sample." goes on to say four or more is consistent with MS.
Thanks for the help. Lots of great info on here.
There are options other than what your doctor suggested, but the three he suggested all have stood the test of time, having been on the market for years. In general, all three have similar efficacy in the general population, but it's difficult to predict which ones will work or not work for a particular individual. If your first choice doesn't work, you can change later.
They all have side effects; it's just a matter of which ones you can tolerate and mitigate. The intensity of side effects varies among individuals. Again, you can change later.
A summary of different treatments is at this link below (and from there you can also find lots of other information for the newly diagnosed).
Cog Fog. It's one of the few advantages to life with MS. We can summon it when necessary :-)
As to second opinions, I was sort of qouting the company line. If I had been even remotely comfortable with my first MS doc I probably would not have sought a second opinion. I was not comfortable, in fact he was a nightmare :-) Turns out to have been a good thing. THe second MS doc I found is the most amazing doc of any kind I've ever seen!
You seem to have rung all the bells test & symptom wise speakin'. You sound as though you are very happy with your doc. It's up to you. If you don;t think a second opinion will add any value then don't get one.
@Kagestarr Like everyone else I am sorry you have to go down this road with us but welcome aboard. I would just like to add one thing on the DMD's PLEASE read carefully the side affects and PLEASE ask us any any other forum you can about other peoples opinions and experiance. YES it is different for all of us but we can probably give you a good sound off as needed. I must say I went to several forums and MS support groups to be sure which I chose and I am so glad I did, it really helped me choose what was right for me.
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