Aa
Lost My Right Leg Last Night
Hi Guys:
I don't know how to feel right now, so I guess like some of you---I'll just post and see what happens.....Last night while making supper I started to have numbness in my right leg (inner side) and the rest of it was just buzzing/vibrating. I ignored it and went to bed last night. This morning when I woke up not only was my leg numb, but it travelled up to my groin, underneath to the right buttock.....Wow, was I scared when I tried to urinate this morning and didn't feel a thing!
I called the Neuro's office and he's "on call" until Tuesday, but the secretary said that I should go to the hospital or my family doctor right away. I went to the family doctor and he did a "mini" neuro exam, and said you have to go to the ER right now. I went to the ER (wondering what the heck am I doing here)--got in pretty fast and then the doctor came in. The first words out of his mouth were, "You have MS, Tammy, why haven't you been diagnosed yet?" I said, I dont know, ask my Neurologist!! I then told him that I have an appointment at the MS clinic on May 14th and he said that's not soon enough. They started treating me with Solumedrol and I have to go back for 2 more days for the same.....
For the FIRST time, someone has finally said this out loud, and I don't know how to feel! I don't know if I'm in shock, in denial, or just not believing this.....I am still afraid that someone "else" will say, "NO, you don't have MS, that doctor was wrong!"
Please help me with this....I thought I'd be happy to hear these words, but I don't know how to feel....
Thanks,
Tammy
I don't know how to feel right now, so I guess like some of you---I'll just post and see what happens.....Last night while making supper I started to have numbness in my right leg (inner side) and the rest of it was just buzzing/vibrating. I ignored it and went to bed last night. This morning when I woke up not only was my leg numb, but it travelled up to my groin, underneath to the right buttock.....Wow, was I scared when I tried to urinate this morning and didn't feel a thing!
I called the Neuro's office and he's "on call" until Tuesday, but the secretary said that I should go to the hospital or my family doctor right away. I went to the family doctor and he did a "mini" neuro exam, and said you have to go to the ER right now. I went to the ER (wondering what the heck am I doing here)--got in pretty fast and then the doctor came in. The first words out of his mouth were, "You have MS, Tammy, why haven't you been diagnosed yet?" I said, I dont know, ask my Neurologist!! I then told him that I have an appointment at the MS clinic on May 14th and he said that's not soon enough. They started treating me with Solumedrol and I have to go back for 2 more days for the same.....
For the FIRST time, someone has finally said this out loud, and I don't know how to feel! I don't know if I'm in shock, in denial, or just not believing this.....I am still afraid that someone "else" will say, "NO, you don't have MS, that doctor was wrong!"
Please help me with this....I thought I'd be happy to hear these words, but I don't know how to feel....
Thanks,
Tammy
Hi Kristen
I went for my 3rd dose this morning, and wow, do I feel like hell.....I didn't know this stuff was going to knock me on my behind like this....Most of the numbness is gone, however it's just all been replaced by buzzing/vibrating....if that's even the right word.....At least I can "kinda" feel it when I have to pee! :) I'm sure you really wanted to know that, huh?
I'll try and be back around here later when I'm feeling a bit better....
Thanks, Kristin!
HUGS
Tammy xo
I went for my 3rd dose this morning, and wow, do I feel like hell.....I didn't know this stuff was going to knock me on my behind like this....Most of the numbness is gone, however it's just all been replaced by buzzing/vibrating....if that's even the right word.....At least I can "kinda" feel it when I have to pee! :) I'm sure you really wanted to know that, huh?
I'll try and be back around here later when I'm feeling a bit better....
Thanks, Kristin!
HUGS
Tammy xo
How are you doing? Has Solumedrol helped at all?
I am thinking about you!!
Kristin
I am thinking about you!!
Kristin
Just want to bump this up again to make sure all of you wonderful people get my many, many thanks.....
Tammy xo
Tammy xo
As incredibly silly as this sounds, when I saw you signed off with "Momma Quix", I cried my eyes out....Honestly, I was hoping that you would post on here because I need my "Mommy" :)
You have such incredible insight on things, and your perspective is always something I look forward to.....
As usual, you hit the nail directly on the head because I was seriously sitting in the ER waiting room saying to myself, "What am I doing here....there just going to send me home and tell me to go see my Neuro on Tuesday".......I had it all worked out in my mind, and was ready to be dismissed again....OOPS! (That's the last time I have any conversations with myself, I promise...hehe)
The only reason I'm "afraid" to trust the ER doc's diagnosis is because he is NOT a specialist, a Neurologist, etc.....but he looked over all of my MRI's, EEG's, bloodwork, LP, etc.....
You're right about the bluntness, too Quix....I wasn't expecting it quite in that way, but finally I feel vindicated! (for lack of a better word....)
Also, I wanted to thank you for talking about the meds I'm getting, because I WAS having certain symptoms that were worrying me, and you have put my mind at ease, as usual....**HUGS**
As far as the future goes, the ER doctor didn't really say much beyond the initial treatment, but believe me when I say this, I will be asking, and bugging, and demanding answers to what's next....
My GP has actually never said it "out loud" until yesterday and he did fill out a form for me to take, but it didn't say MS on it.....but the hospital I went to is the hospital where I had all tests, MRI's, EEG's, LP, etc.....
Well, if I missed anything I'm sure my "Momma" will be asking....
Quix, thanks so much for YOU
xo
You have such incredible insight on things, and your perspective is always something I look forward to.....
As usual, you hit the nail directly on the head because I was seriously sitting in the ER waiting room saying to myself, "What am I doing here....there just going to send me home and tell me to go see my Neuro on Tuesday".......I had it all worked out in my mind, and was ready to be dismissed again....OOPS! (That's the last time I have any conversations with myself, I promise...hehe)
The only reason I'm "afraid" to trust the ER doc's diagnosis is because he is NOT a specialist, a Neurologist, etc.....but he looked over all of my MRI's, EEG's, bloodwork, LP, etc.....
You're right about the bluntness, too Quix....I wasn't expecting it quite in that way, but finally I feel vindicated! (for lack of a better word....)
Also, I wanted to thank you for talking about the meds I'm getting, because I WAS having certain symptoms that were worrying me, and you have put my mind at ease, as usual....**HUGS**
As far as the future goes, the ER doctor didn't really say much beyond the initial treatment, but believe me when I say this, I will be asking, and bugging, and demanding answers to what's next....
My GP has actually never said it "out loud" until yesterday and he did fill out a form for me to take, but it didn't say MS on it.....but the hospital I went to is the hospital where I had all tests, MRI's, EEG's, LP, etc.....
Well, if I missed anything I'm sure my "Momma" will be asking....
Quix, thanks so much for YOU
xo
First, I want to thank everyone again for all of your support and encouragement....It's so wonderful to know that I'm not alone in this...Never in my wildest dreams did I ever think that the people that would help me through this the most would be people that I have never "met"......You guys/girls are AMAZING, to say the least.
Also, If I don't respond to everyone please forgive me, but not only do I have "fog" brain, but I am going on no sleep....Just give me a swift kick in the a**, and I"ll come around..
Jensequitur--thanks for saying that....and you're absolutely right :)
ESS--Thanks for your comments....I do have a Neurologist already, and he is the one that doens't "feel comfortable" saying that this is MS. My GP and the ER doctor both said that "maybe this is what he was waiting for".....(relapse??)
*Zilla--After all you've been through, especially lately, you are such a special human being to have helped me in this way.....I hope one day I can do the same for you....You're incredible......
Jason--I'm very grateful to you for your prayers and comments, and I truly hope that you can get the answers you so desperately need, as well.....Can you believe that I even have guilt in this messed up head because I have an answer and alot of you don't?
Gollie---Thank you so much--You are a very sweet person!!
Rena---Pure and simple---I LOVE YOU for all you have done for me in such a short time....YOU are the person that kicks my behind into gear and into reality when I need it most,....
(Why all of a sudden do I feel like I'm giving a speech at the Emmy's or something? LOL---Very strange)
Jo--I am not really feeling that much better yet, but that's probably why I have to go back this morning and Saturday for another dose...Hopefully it will take hold soon and do something...
Kitt--I am so sorry that you are going through any of this, as well....I am glad that you're taking good care of yourself....and please keep that up... :)
Kristen--I don't think I can say much to you without bawling my face off....(and I need my face!)---You are one of the first people on here that I talked to, you are wonderfully sweet and encouraging....and thanks for all the beautiful notes! You rock, girl! xo
MCBON--I need your sense of humor interjected at all times! That is actually how I deal with most of the BS in my life.....(and yes, I looked behind the couch AND in the microwave!! That's where I usually leave my remote control!!) LOL....
Santana--Please pray for me and everyone else on this forum as much as possible...Not only is that ok with me, I would be honored....and blessed... Thank you..
Quix: This post is HUGE so I'm going to start one just for you! :)
If I missed anything or anybody, I apologize.....Feel free to slap me around... :)
Tammy
Also, If I don't respond to everyone please forgive me, but not only do I have "fog" brain, but I am going on no sleep....Just give me a swift kick in the a**, and I"ll come around..
Jensequitur--thanks for saying that....and you're absolutely right :)
ESS--Thanks for your comments....I do have a Neurologist already, and he is the one that doens't "feel comfortable" saying that this is MS. My GP and the ER doctor both said that "maybe this is what he was waiting for".....(relapse??)
*Zilla--After all you've been through, especially lately, you are such a special human being to have helped me in this way.....I hope one day I can do the same for you....You're incredible......
Jason--I'm very grateful to you for your prayers and comments, and I truly hope that you can get the answers you so desperately need, as well.....Can you believe that I even have guilt in this messed up head because I have an answer and alot of you don't?
Gollie---Thank you so much--You are a very sweet person!!
Rena---Pure and simple---I LOVE YOU for all you have done for me in such a short time....YOU are the person that kicks my behind into gear and into reality when I need it most,....
(Why all of a sudden do I feel like I'm giving a speech at the Emmy's or something? LOL---Very strange)
Jo--I am not really feeling that much better yet, but that's probably why I have to go back this morning and Saturday for another dose...Hopefully it will take hold soon and do something...
Kitt--I am so sorry that you are going through any of this, as well....I am glad that you're taking good care of yourself....and please keep that up... :)
Kristen--I don't think I can say much to you without bawling my face off....(and I need my face!)---You are one of the first people on here that I talked to, you are wonderfully sweet and encouraging....and thanks for all the beautiful notes! You rock, girl! xo
MCBON--I need your sense of humor interjected at all times! That is actually how I deal with most of the BS in my life.....(and yes, I looked behind the couch AND in the microwave!! That's where I usually leave my remote control!!) LOL....
Santana--Please pray for me and everyone else on this forum as much as possible...Not only is that ok with me, I would be honored....and blessed... Thank you..
Quix: This post is HUGE so I'm going to start one just for you! :)
If I missed anything or anybody, I apologize.....Feel free to slap me around... :)
Tammy
Just wanted you to know that I am sorry you are going through this. I will pray for you if that's ok with you. Just wanted you to know I care!
Santana8
Santana8
Hi, Honey, I'm going to give a whole different view of the situation. You have KNOWN that something was majorly wrong for some time, and no one was saying the words. When you awakened this morning having "lost your leg" you knew in your heart what was up. You clearly were going through the motions of PCP to ER to ??? dreading to be told once again it was nothing or they didn't know or whatever. I'm thrilled the ER doctor was blunt and unequivocal. Yiippeee! someone who absolutely saw your predicament and stated it!
Now, finally hearing the words is a total slap in the face, but I know when it was finally said to my I was jubilant. There was an answer and I knew in my heart it was right and I could move on. No, I wasn't thrilled I had MS, but (as I told my new neuro), "WEll....I have SOMETHING!!
If you are like most of us you will swing from a sense of progress, to a sense of fear that it is really real, to wondering if that one doctor is wrong and all the others are right. You may be pissed off, you may have delayed some grief over what you may have lost, you have to decide who to tell what. Ess commented some time ago that people process this kind of news much as they have processed hard situations in the past. Some get very emotional, some suppress and deal with little bits at a time, some are focused and forge ahead. All of these are valid and you may move from times where you feel okay about it and others where you rage against the unfairness and randomness of it.
And you may be furious at the cowardice of the doctors before who have delayed the answer. Welcome to the club.
We're hear no matter how you feel and, yes, it is okay to feel weirdly happy. We won't have you committed for it - at least not for very long.
The steroids may make you hyper and casue difficulty sleeping or cause anxiety. This is common. Just ask for something for them for during the steroids. You will likely retain fluid, keep up your potassium intake - if nothing else 2 or 3 bananas a day. It is also common to feel flushed and hot and for your cheeks to turn red. Also a lot of people feel extra heartbeats (palpitations) If you get a lot of these get your electrolytes (soium, potassium, ect) checked. Finally, they should get a blood count and a chem panel as a baseline along with a urinalysis to check for an infection, which is one of the most common causes for a major relapse.
Did the ER doc put any plan into place beyond the pulse of Solumedrol? Has your PCP suspected MS for some time? I wonder if he alerted the ER doc about the suspicion.
You'll come through this fine, Kiddo. I'm glad you're here with us. We'll take care of you. Last Stop for Limbo - All Off!
Momma Quix
Now, finally hearing the words is a total slap in the face, but I know when it was finally said to my I was jubilant. There was an answer and I knew in my heart it was right and I could move on. No, I wasn't thrilled I had MS, but (as I told my new neuro), "WEll....I have SOMETHING!!
If you are like most of us you will swing from a sense of progress, to a sense of fear that it is really real, to wondering if that one doctor is wrong and all the others are right. You may be pissed off, you may have delayed some grief over what you may have lost, you have to decide who to tell what. Ess commented some time ago that people process this kind of news much as they have processed hard situations in the past. Some get very emotional, some suppress and deal with little bits at a time, some are focused and forge ahead. All of these are valid and you may move from times where you feel okay about it and others where you rage against the unfairness and randomness of it.
And you may be furious at the cowardice of the doctors before who have delayed the answer. Welcome to the club.
We're hear no matter how you feel and, yes, it is okay to feel weirdly happy. We won't have you committed for it - at least not for very long.
The steroids may make you hyper and casue difficulty sleeping or cause anxiety. This is common. Just ask for something for them for during the steroids. You will likely retain fluid, keep up your potassium intake - if nothing else 2 or 3 bananas a day. It is also common to feel flushed and hot and for your cheeks to turn red. Also a lot of people feel extra heartbeats (palpitations) If you get a lot of these get your electrolytes (soium, potassium, ect) checked. Finally, they should get a blood count and a chem panel as a baseline along with a urinalysis to check for an infection, which is one of the most common causes for a major relapse.
Did the ER doc put any plan into place beyond the pulse of Solumedrol? Has your PCP suspected MS for some time? I wonder if he alerted the ER doc about the suspicion.
You'll come through this fine, Kiddo. I'm glad you're here with us. We'll take care of you. Last Stop for Limbo - All Off!
Momma Quix
Hi girl,
I am so sorry you had this happen but at the same time I am releived that you do not have to wait to get to the MS clinic to be told what you already know is true. I think your reaction is absolutely normal and from what I have read from others much like alot of other people's responses here.
I am so sorry you have MS! I know you really wanted all this to turn out to be something else. I will be praying for you and ready to listen whenever you need to talk!
Love and Hugs!
Kristin
I am so sorry you had this happen but at the same time I am releived that you do not have to wait to get to the MS clinic to be told what you already know is true. I think your reaction is absolutely normal and from what I have read from others much like alot of other people's responses here.
I am so sorry you have MS! I know you really wanted all this to turn out to be something else. I will be praying for you and ready to listen whenever you need to talk!
Love and Hugs!
Kristin
SO SORRY , WHAT A SHOCK.
I HOPE THAT U R FELING BETTER.
MY LEG WET OUT ON ME A WEEK A GO. BUT
I LISTEN TO MY BODY AND RESTED. AND I AM FEELING FINE.
I IS HARD TO HANDLE NEW THINGS GOING ON WITH
YOUR BODY, I KNOW I AM LEARNING MYSELF,
KITT
I HOPE THAT U R FELING BETTER.
MY LEG WET OUT ON ME A WEEK A GO. BUT
I LISTEN TO MY BODY AND RESTED. AND I AM FEELING FINE.
I IS HARD TO HANDLE NEW THINGS GOING ON WITH
YOUR BODY, I KNOW I AM LEARNING MYSELF,
KITT
Tammy
You take your time .. get some perspective and some very yummy ice cream with whipped cream and chocolate drizzled on it . Watch some thing sweet on tv . Just settle in . Put your feet up and take care of yourself.
Jo
You take your time .. get some perspective and some very yummy ice cream with whipped cream and chocolate drizzled on it . Watch some thing sweet on tv . Just settle in . Put your feet up and take care of yourself.
Jo
I just wanted to take a minute to THANK everyone from the bottom of my heart for the support, encouragement, sharing, expressing, love, and concern....Every single on of you have got to be the most special human beings on the face of this earth! (God, the tears are just a-flowin'!)
I promise I will answer everyone's questions, but I just need some time to settle in with all of this. I will be back very soon....
I love you ALL and will never forget what you have done for me!
HUGS HUGS HUGS
Tammy
I promise I will answer everyone's questions, but I just need some time to settle in with all of this. I will be back very soon....
I love you ALL and will never forget what you have done for me!
HUGS HUGS HUGS
Tammy
hi
Yes this is sad news but you are very lucky in a way . You don't have to sit in Limbo Land any longer and can get the proper care that you need and deserve.
The medical staffs that you encountered last night were on their toes and got you to the right places and to the right doc and the right dx. How often has that happened .. Its pretty much a miracle. God bless everyone you encountered last night .
You feel anyway you want to ... this is a lot to take in .. Everyone here will be with you for this journey.. Keep posting
How are you feeling physically . Does the solumedrol help ? And are you seeing the same doc , when you go back in two days, that you saw in the ER . Is he a specialist who was called in ? I have a thousand questions .
Well , you take life as slowly as possible for right now .. be very good to yourself do gentle things Do you have people around you ..?? sorry I have forgotten your details
Feel better
((HUGS)) Jo
Oh Tammy...I am so sorry that you have gotten your diagnosis in such a manner and I do believe that the dr. that did see you needs to work on his bedside manner. To present this information to you in such a way and then for him to somewhat accuse you for not being diagnosed is just assinine!
You are now going to go through a whole series of different emotions honey. You are going to feel shock, denial, anger, loss, fear, unbelievable sadness, anger, denial, anger, acceptance and sadness...it goes on and on but know that we are here to help you work through this ok?
Did you mention that EEG to the ER doctor or did you get a chance to? I would imagine that with the abrupt manner that the ER doctor treated you, you wouldn't have much of a chance to ask anything eh?
Please let me know though honey if there is anything I can help you with ok? I am thinking about you and I will be here for you!
Lots and Lots of Hugs,
Rena
You are now going to go through a whole series of different emotions honey. You are going to feel shock, denial, anger, loss, fear, unbelievable sadness, anger, denial, anger, acceptance and sadness...it goes on and on but know that we are here to help you work through this ok?
Did you mention that EEG to the ER doctor or did you get a chance to? I would imagine that with the abrupt manner that the ER doctor treated you, you wouldn't have much of a chance to ask anything eh?
Please let me know though honey if there is anything I can help you with ok? I am thinking about you and I will be here for you!
Lots and Lots of Hugs,
Rena
Hi Tammy:
Im sorry to hear what you are going threw, (bare in mind that
what you are feeling now that it is out of the closet, is normal).
I started this process 6 weeks ago and am to some degree still
going round with it. but am now starting to accept it for what it
is.
Even tho I knew what they were looking for, and half expected
the Dx, I still went threw what you and all the rest have gone
threw when getting the actual Dx. Please take your time and
you will ease into it.
But I hope you will choose to get on the DMD treatment soon!
Tammy I hope your leg will be better very very soon!!! Gollie
Im sorry to hear what you are going threw, (bare in mind that
what you are feeling now that it is out of the closet, is normal).
I started this process 6 weeks ago and am to some degree still
going round with it. but am now starting to accept it for what it
is.
Even tho I knew what they were looking for, and half expected
the Dx, I still went threw what you and all the rest have gone
threw when getting the actual Dx. Please take your time and
you will ease into it.
But I hope you will choose to get on the DMD treatment soon!
Tammy I hope your leg will be better very very soon!!! Gollie
My heart goes out to you. I still haven't been "Officially" diagnosed yet, and I don't know what I would do in your situation. I hope you're ok, and that you get the care that you need and deserve. God bless...
How horrifying! I'm so very sorry.
After such a scary night, and then to have that shocker!
I'm SO very glad all the medical people did what they were supposed to do. Maybe it was a good thing your neuro wasn't in, and the ER doc saw you at first glance and recognized it for what it was. Perhaps your neuro would have, too. I'm not saying they're all dolts, of course. Just sometimes when they're in the thick of it, they can't see the forest for the trees.
I'm glad you finally have your very disappointing, liberating answer.
Hang tough,
Zilla*
After such a scary night, and then to have that shocker!
I'm SO very glad all the medical people did what they were supposed to do. Maybe it was a good thing your neuro wasn't in, and the ER doc saw you at first glance and recognized it for what it was. Perhaps your neuro would have, too. I'm not saying they're all dolts, of course. Just sometimes when they're in the thick of it, they can't see the forest for the trees.
I'm glad you finally have your very disappointing, liberating answer.
Hang tough,
Zilla*
Your reaction is totally normal! Many of us have experienced big emotional swings and unexpected zigs and zags at this point. After I finally was diagnosed I had that "what have I done' feeling, and it was very surprising and quite umpleasant. You will have a torrent of emotions, but that's fine. Just let yourself process this. You can't take it in all in one gulp, really.
One great thing about this forum is that many others here know exactly what you are talking about. So please just vent or ask questions or debate yourself, whatever seems to feel right. You will get to the acceptance mode fairly soon. Meanwhile, are they helping you to see a neuro now? They should, so keep after them.
ess
One great thing about this forum is that many others here know exactly what you are talking about. So please just vent or ask questions or debate yourself, whatever seems to feel right. You will get to the acceptance mode fairly soon. Meanwhile, are they helping you to see a neuro now? They should, so keep after them.
ess
Nobody really wants MS... but we all want to know what's wrong with us. Now that you know, you can move on with your life.
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
