Aa
Lost in Ms forum
Hi all,
I will be quick,pretty sure I have MS had lots of tests that made it a qestion mark years ago now haveing lots of symptoms and pain now. Before I make a lenghy post with poor spelling poor thinking skills can you tell me which link to go to for a little support and more explanation here on the site. I was doing great with this but today upset and teary and no response to post so guess I need a newbie section?? Maybe I need to type a history to post and really I need someone to say yes it looks like your MS tests are the right way to go or not. I have been mis dx so many times I just want a name today. One that says it's not in your head. I was told it was lupus years ago now they say no its not and now ms looks much more likely. Yes lesions.
Okay where do you think I should start?
Thanks in advance
Mary
I will be quick,pretty sure I have MS had lots of tests that made it a qestion mark years ago now haveing lots of symptoms and pain now. Before I make a lenghy post with poor spelling poor thinking skills can you tell me which link to go to for a little support and more explanation here on the site. I was doing great with this but today upset and teary and no response to post so guess I need a newbie section?? Maybe I need to type a history to post and really I need someone to say yes it looks like your MS tests are the right way to go or not. I have been mis dx so many times I just want a name today. One that says it's not in your head. I was told it was lupus years ago now they say no its not and now ms looks much more likely. Yes lesions.
Okay where do you think I should start?
Thanks in advance
Mary
Sorry off doing finials did not get a chance to read your comments. So first thank you!
Second how the heck do I find the posts I am watching? I am usually good at computer sites not sure what my problem is here ;-)
My GP was out of town so I see the quack tomorrow and will ask about the provigil for staying awake. I do have a couple of hydrocodone left does this sound crazy but a half of a pill helps me think better? and dulls some of the pain I don't take a whole with a child around and afraid of addiction although at this point does that matter? Really how does that work for us unlucky in pain?
Jan- thanks for the info on a fun needle in my back, so if they want that I guess I can handle it yuck! But I want an answer so if that is what it takes.
Your handle says WAlla are you from WW by chance?
Anita- the kidney thing yeap have that but years ago after my hyst they found a cyst on one of my kindneys that took a lot of begging to get them to do the ultrasound and cat scan, they say it is filled with blood they 'think' I don't know if it will go away or what I gave up on doctors on that one after I read the report and they didn't need to see me, I figured I guess if it bursts I will know but yes my kidneys hurt sometimes also, both. This weekend more tingling in my hands and feet I keep thinking I just have a pinched nerve somewhere... wishful thinking? ;-)
My arms, legs well I can say that my big toes feel great today,my neck for a change good, my backend that I sit on is okay, my hair doesn't hurt (trying out humor here) I thought maybe I read too much online and was haveing symptoms but no just denial.
DEB- ya my test results look like yours at first I had fibromayliga before that was a real thing I think it is the way for doctors to say "I don't know whats wrong with you". Your sister too? huh well I guess it is nice to have her to go through this with you and understand more then anyone you can talk with her and vice versa? I guess we are also alike in Denial I still want to go there some days but I know if they just tell me something definate I will feel better.
Okay enough for here if someone could send me into the right directions to find the posts I am watching I can get unlost again???
Thanks all your a great group,
Mary
Second how the heck do I find the posts I am watching? I am usually good at computer sites not sure what my problem is here ;-)
My GP was out of town so I see the quack tomorrow and will ask about the provigil for staying awake. I do have a couple of hydrocodone left does this sound crazy but a half of a pill helps me think better? and dulls some of the pain I don't take a whole with a child around and afraid of addiction although at this point does that matter? Really how does that work for us unlucky in pain?
Jan- thanks for the info on a fun needle in my back, so if they want that I guess I can handle it yuck! But I want an answer so if that is what it takes.
Your handle says WAlla are you from WW by chance?
Anita- the kidney thing yeap have that but years ago after my hyst they found a cyst on one of my kindneys that took a lot of begging to get them to do the ultrasound and cat scan, they say it is filled with blood they 'think' I don't know if it will go away or what I gave up on doctors on that one after I read the report and they didn't need to see me, I figured I guess if it bursts I will know but yes my kidneys hurt sometimes also, both. This weekend more tingling in my hands and feet I keep thinking I just have a pinched nerve somewhere... wishful thinking? ;-)
My arms, legs well I can say that my big toes feel great today,my neck for a change good, my backend that I sit on is okay, my hair doesn't hurt (trying out humor here) I thought maybe I read too much online and was haveing symptoms but no just denial.
DEB- ya my test results look like yours at first I had fibromayliga before that was a real thing I think it is the way for doctors to say "I don't know whats wrong with you". Your sister too? huh well I guess it is nice to have her to go through this with you and understand more then anyone you can talk with her and vice versa? I guess we are also alike in Denial I still want to go there some days but I know if they just tell me something definate I will feel better.
Okay enough for here if someone could send me into the right directions to find the posts I am watching I can get unlost again???
Thanks all your a great group,
Mary
You asked about spinal puncture, so I thought I'd chime in. I got one Thursday morning (today is Sunday). I was terrified during the procedure (I do hate needles), but it wasn't super painful. Just uncomfortable to lie on my stomach with a pillow under my hips for an hour or so waiting for enough fluid to drip out. The procedure and followup rest at the hospital was over by about 10, and I went back to work within about an hour of that. It felt like a backache, but not a bad enough one to miss work over (I have a desk job). The worst was just thinking, OMG, I got a needle poked in my spinal column this morning!! Poor me!
Friday I felt more achey but less freaked out (I work short days on Friday but could have done longer) and I took a nap and kept a warm pack on my back in the evening. Saturday and Sunday I slept in pretty late, but I can't even tell today where the needle went in. My back is achey, but with me working at a desk all the time, that's not unusual! (The sleeping in isn't unusual either; I've been tired a lot lately.)
Not 100% sure what normal means any more with my strange tingly cold hands and numb tummy, but I was pretty much back to normal by Saturday noon. So there you go...personal testimony from a complete wimp and needle-phobe.
Anyway, I hope that if you get a puncture it goes as well or better than mine. And I hope we both get answers soon about what's going on! Good luck to you.
Friday I felt more achey but less freaked out (I work short days on Friday but could have done longer) and I took a nap and kept a warm pack on my back in the evening. Saturday and Sunday I slept in pretty late, but I can't even tell today where the needle went in. My back is achey, but with me working at a desk all the time, that's not unusual! (The sleeping in isn't unusual either; I've been tired a lot lately.)
Not 100% sure what normal means any more with my strange tingly cold hands and numb tummy, but I was pretty much back to normal by Saturday noon. So there you go...personal testimony from a complete wimp and needle-phobe.
Anyway, I hope that if you get a puncture it goes as well or better than mine. And I hope we both get answers soon about what's going on! Good luck to you.
Hi! I'm sorry that you are feeling so much pain. Everyone has given you great advice. I wanted to add that I know what you mean when you talk about pain. I have leg, back, neck, and arm pain today. Normally in my legs, so bad they won't go. I make comments that I would be better without them. Two days ago I had an MRI and every since my head has been worse. I was praying I would wake up and be normal but I didn't get my wish. Instead I can't move my neck. Today hasn't been a good day. My kids are expecting too much from me. I really don't feel like doing anything. I just posted a question yesterday. I am also undiagnosed. I have been having a lot of problems in the past four months. All the symptoms you've mentioned and extreme tingling burning mostly in hands and feet. Also, throughout sometimes in my lower back and I always think it's my kidneys. I work for a doctor and we always check my urine and it is fine. Sometimes I have yeast but usually after antibiotics. Anyway, I wish you the best and I hope you find a good MS Specialist I am still searching.
Ask your doctor about Provigil for the fatigue. I don't know how I functioned without it before! I'm going to be a starting an antidepressant, soon (I have the prescription and just have to get my hiney down to the pharmacy). He said that it should help a little with fatigue, too.
You are wondering about the other autoimmune disease thing . . . My medical history is very complicated. To this day, I don't know what autoimmune problem happened first or for what symptom was related to what. What I know from reading a books on hypothyroidism and lupus is that many of the symptoms overlap with MS. I have hypothyroidism and was thought to have lupus (never officially diagnosed because of the low-titer ANA). I was even diagnosed with fibromyalgia and Raynaud's.
Some of the other medical information thrown into the mix even made things more complicated: migraines, positive ANA tests (always low in titer), C-reactive protein, elevated sed rate (now normal), positive TB tests, high blood pressure, mild anemia, irritable bowel syndrome . . .
Later on, I began exhibiting symptoms that were clearly more MS-like (but didn't realize it at the time): numbness, double vision, nystagmus, vision black-outs, bladder/bowel problems, weakness, dizziness, balance problems, swallowing problems, spasms, spasticity, heat intolerance, tremors, and many other very weird sensations.
Then one day, out of the blue, my sister fell saying that her leg just came out underneath her. As it turned out, she had developed a foot drop. After a year of going from this doctor to the next, she went to a neurologist who ordered an MRI and her lesions were apparent. She was diagnosed with MS. We started comparing symptoms and we have many in common and then I was diagnosed a year and half after her (it took me a while to see a neurologist--I was still stuck thinking it was lupus--denial, maybe???).
But after finishing up the denial phase, I found a great neurologist (it was the second one, my sister's doctor, btw) who put the puzzle together for me, and it's such a relief! Now I know a little bit more of what to expect and I will be starting a long, overdue treatment.
I can really relate to you, Mary. I so hope that you can find some answers. I'm not sure if patience really is the key. I've lived too long with problems and some symptoms are now permanent. I think that you should find yourself a good MS Specialist, if you're not happy with this neurologist, who will figure things out for you. Your symptoms sound all too familiar. Please be persistent and don't give up!
Deb
You are wondering about the other autoimmune disease thing . . . My medical history is very complicated. To this day, I don't know what autoimmune problem happened first or for what symptom was related to what. What I know from reading a books on hypothyroidism and lupus is that many of the symptoms overlap with MS. I have hypothyroidism and was thought to have lupus (never officially diagnosed because of the low-titer ANA). I was even diagnosed with fibromyalgia and Raynaud's.
Some of the other medical information thrown into the mix even made things more complicated: migraines, positive ANA tests (always low in titer), C-reactive protein, elevated sed rate (now normal), positive TB tests, high blood pressure, mild anemia, irritable bowel syndrome . . .
Later on, I began exhibiting symptoms that were clearly more MS-like (but didn't realize it at the time): numbness, double vision, nystagmus, vision black-outs, bladder/bowel problems, weakness, dizziness, balance problems, swallowing problems, spasms, spasticity, heat intolerance, tremors, and many other very weird sensations.
Then one day, out of the blue, my sister fell saying that her leg just came out underneath her. As it turned out, she had developed a foot drop. After a year of going from this doctor to the next, she went to a neurologist who ordered an MRI and her lesions were apparent. She was diagnosed with MS. We started comparing symptoms and we have many in common and then I was diagnosed a year and half after her (it took me a while to see a neurologist--I was still stuck thinking it was lupus--denial, maybe???).
But after finishing up the denial phase, I found a great neurologist (it was the second one, my sister's doctor, btw) who put the puzzle together for me, and it's such a relief! Now I know a little bit more of what to expect and I will be starting a long, overdue treatment.
I can really relate to you, Mary. I so hope that you can find some answers. I'm not sure if patience really is the key. I've lived too long with problems and some symptoms are now permanent. I think that you should find yourself a good MS Specialist, if you're not happy with this neurologist, who will figure things out for you. Your symptoms sound all too familiar. Please be persistent and don't give up!
Deb
I think you all are great and the adivse on being calm in the Doctor's office is so right on! I think through all of this I have learned the more you let them talk and be all high and mighty for a bit the better they listen to us.
I will prepare a timeline and symtoms, it's hard to remember it all this has been years on and off.
Also What meds help with fatigue?? I did not know about that I need to call the gp today for pain and whatever will wake me up if you can help me with that one?
thanks again I will keep you updated.
Mary
I will prepare a timeline and symtoms, it's hard to remember it all this has been years on and off.
Also What meds help with fatigue?? I did not know about that I need to call the gp today for pain and whatever will wake me up if you can help me with that one?
thanks again I will keep you updated.
Mary
Hi Mary, Welcome. I'm sorry your having such a time with this. I am in limbo as well. I don't know what I can add that the others did not, they are so thorough. I understand all too well the frustration of having someone say it is all in your head. It makes me very sad when I hear others have the same problem. We know our bodies better than anybody and it sounds like you are listening to yours. Hang in there Honey and keep us posted.
Your Friend,
Spazie Ada
Your Friend,
Spazie Ada
I cannot add much to what the others have said as i am yet to have a proper diagnosis
but what I would like to say is be confident when you go for your appointment. Remember while you are the patient Doctors would not exist with out us. Go prepared, try to do a time line of your symptoms and when they occurred.
Try not to be emotional, the more calm and in control you can be the better because it seems if you get upset or cry they then immediately think it is stress or all in your mind.
As someone said to me once you know your body better than anyone else.
Your symptoms sound like my own and i wish you well keep us updated about how you are getting on.
Do not hesitate to ask for something to help the pain as you do not need a diagnosis for that and if you need something for the fatigue ask for that too.
It is hard to think and cope when you are in pain and tired.
all the best
Sarah
but what I would like to say is be confident when you go for your appointment. Remember while you are the patient Doctors would not exist with out us. Go prepared, try to do a time line of your symptoms and when they occurred.
Try not to be emotional, the more calm and in control you can be the better because it seems if you get upset or cry they then immediately think it is stress or all in your mind.
As someone said to me once you know your body better than anyone else.
Your symptoms sound like my own and i wish you well keep us updated about how you are getting on.
Do not hesitate to ask for something to help the pain as you do not need a diagnosis for that and if you need something for the fatigue ask for that too.
It is hard to think and cope when you are in pain and tired.
all the best
Sarah
thank you I do have one question for you your statment I am in a fog so don't understand this could you clarify please
"There's a lot of others that have been diagnosed with other autoimmune diseases. Since MS is an autoimmune disease, my guess (I'm not a doctor) is that you're more likely to have another one. Since some symptoms of other autoimmune diseases look like MS (and vice versa), it makes diagnosis even harder. It takes a very smart MS Specialist/neurologist to figure things out."
Like you I too had someone say lupus and treat me for it, this I believe was before there was a blood test so I did the course of methotraxate (spelling) predisone and bunch of others steriods make me suicidal. seriously.
and lucky me I had the same doc as you and said it was all in my head see a counsler! I did they had made me so crazy with all of this I know how this works now that's why I am not out researching just asking the people here that really know!!!! The neuro I did have was great really really great I can't believe he died are nero's allowed to have a stroke?;-) geez..........
yes my appt with a not so great doc is the 24th I think I am sure it will be more tests and from what you all say I am missing a new MRI and c spine. I think I am clear for the rest unless lupus was hiding before at the last blood test but doubtful. I will go back to the eye specialist also.
Well I guess I will just have to be patient and that is the weak link! ;-)
The information and input you all give is really helping me get through today! keep it coming somehow information is key to me today!
thanks again
Mary
"There's a lot of others that have been diagnosed with other autoimmune diseases. Since MS is an autoimmune disease, my guess (I'm not a doctor) is that you're more likely to have another one. Since some symptoms of other autoimmune diseases look like MS (and vice versa), it makes diagnosis even harder. It takes a very smart MS Specialist/neurologist to figure things out."
Like you I too had someone say lupus and treat me for it, this I believe was before there was a blood test so I did the course of methotraxate (spelling) predisone and bunch of others steriods make me suicidal. seriously.
and lucky me I had the same doc as you and said it was all in my head see a counsler! I did they had made me so crazy with all of this I know how this works now that's why I am not out researching just asking the people here that really know!!!! The neuro I did have was great really really great I can't believe he died are nero's allowed to have a stroke?;-) geez..........
yes my appt with a not so great doc is the 24th I think I am sure it will be more tests and from what you all say I am missing a new MRI and c spine. I think I am clear for the rest unless lupus was hiding before at the last blood test but doubtful. I will go back to the eye specialist also.
Well I guess I will just have to be patient and that is the weak link! ;-)
The information and input you all give is really helping me get through today! keep it coming somehow information is key to me today!
thanks again
Mary
Your symptoms sound very much like mine. I was in the same situation for years going from one doctor to another. The problem was that I was seeing the wrong specialists because my symptoms looked similar to other autoimmune diseases. I even had some positive tests that indicated lupus!
There's a lot of others that have been diagnosed with other autoimmune diseases. Since MS is an autoimmune disease, my guess (I'm not a doctor) is that you're more likely to have another one. Since some symptoms of other autoimmune diseases look like MS (and vice versa), it makes diagnosis even harder. It takes a very smart MS Specialist/neurologist to figure things out.
I've also been misdiagnosed with other problems and dismissed by doctors. One time I was even written a psychiatric referral! It makes my blood boil to this day to even think about that day!
Pain, must unfortunately, is very much a symptom of MS. I would talk with the MS Specialist (who I hope you see pronto). Even without a diagnosis, he can help you with managing that symptom (and the others that you mentioned). For the fatigue, my doctor prescribed Provigil which has nearly revolutionized my life--and this was done before my diagnosis. I still am not able to do much around the house, but my cognitive abilities have improved greatly and I feel less fatigued.
I would also make an appointment with an opthamologist and make sure that he/she knows of your other MS-like symptoms. Blurry vision may be a symptom of demyelination of the optic nerve. I have a big problem with my eyesight with the blurriness, double vision, dimming, and shaky, involuntary movements of them. It is especially bad when I'm sick, overheated, and tired.
There really isn't anything normal about this stupid disease. For some people, it may remit several times a year and for others it may take years for it to come back. And for some that have a progressive course, the **** disease relentlessly persists.
Please keep us posted. I hope when you see a specialist that he/she gets to the bottom of this and your questions are finally answered.
Deb
There's a lot of others that have been diagnosed with other autoimmune diseases. Since MS is an autoimmune disease, my guess (I'm not a doctor) is that you're more likely to have another one. Since some symptoms of other autoimmune diseases look like MS (and vice versa), it makes diagnosis even harder. It takes a very smart MS Specialist/neurologist to figure things out.
I've also been misdiagnosed with other problems and dismissed by doctors. One time I was even written a psychiatric referral! It makes my blood boil to this day to even think about that day!
Pain, must unfortunately, is very much a symptom of MS. I would talk with the MS Specialist (who I hope you see pronto). Even without a diagnosis, he can help you with managing that symptom (and the others that you mentioned). For the fatigue, my doctor prescribed Provigil which has nearly revolutionized my life--and this was done before my diagnosis. I still am not able to do much around the house, but my cognitive abilities have improved greatly and I feel less fatigued.
I would also make an appointment with an opthamologist and make sure that he/she knows of your other MS-like symptoms. Blurry vision may be a symptom of demyelination of the optic nerve. I have a big problem with my eyesight with the blurriness, double vision, dimming, and shaky, involuntary movements of them. It is especially bad when I'm sick, overheated, and tired.
There really isn't anything normal about this stupid disease. For some people, it may remit several times a year and for others it may take years for it to come back. And for some that have a progressive course, the **** disease relentlessly persists.
Please keep us posted. I hope when you see a specialist that he/she gets to the bottom of this and your questions are finally answered.
Deb
Hi again,
forgot to mention that my eyesight is going I can't read the soup can the medicine bottles etc... it's all blurry with reading glasses I bought strong ones. My child has to read for me sometimes.
What is the approx time if it is remitting for all these things to go back to normal or close to normal if they are going too?
I figure by the time they re-test and do anything it may be a couple of months to get me on whatever meds I need. Also spinal puncture... not afraid of needles but really this sounds nasty so a little information on should I do it if asked and how will I feel after?
thanks again
mary
forgot to mention that my eyesight is going I can't read the soup can the medicine bottles etc... it's all blurry with reading glasses I bought strong ones. My child has to read for me sometimes.
What is the approx time if it is remitting for all these things to go back to normal or close to normal if they are going too?
I figure by the time they re-test and do anything it may be a couple of months to get me on whatever meds I need. Also spinal puncture... not afraid of needles but really this sounds nasty so a little information on should I do it if asked and how will I feel after?
thanks again
mary
THank you I know that may sound funny to some but to me... my mom has been telling her friends I have it for a year (I did not know that) she was waiting for me to get a clue :-)
I am in finials for school now and I just want to be out of pain and get my stuff done! get on with what is next. I feel like a drug seeker now complaining of the pain as I really did not know if pain and MS are related? I did have a bad back injury years ago but that pain is differant very and that is not what I have. sitting doesn't help, standing is a lot of work but not worse laying down helps some but no I am not sleeping at all and OH am I sleepy!
thanks for all your help and quick responses look forward to learning more here and hopefully I will just get my body back well some of it!
mary
I am in finials for school now and I just want to be out of pain and get my stuff done! get on with what is next. I feel like a drug seeker now complaining of the pain as I really did not know if pain and MS are related? I did have a bad back injury years ago but that pain is differant very and that is not what I have. sitting doesn't help, standing is a lot of work but not worse laying down helps some but no I am not sleeping at all and OH am I sleepy!
thanks for all your help and quick responses look forward to learning more here and hopefully I will just get my body back well some of it!
mary
Have you had an MRI of your spine? What you describe sounds very much like MS. Especially since your other testing is negative. Your sensitivity to heat, your leg pain, your short term memory problems, your inability to think of the right words to use, sounds so much like what I experience. I have been diagnosed with MS for 13 years now.
I will be anxious to hear what your doctor says after your appointment. Make sure you are getting proper rest, Mary. You don't want to over fatigue yourself, because this can make your symptoms worse. You need an MS Specialist and now....
Your pain hopefully is being treated. You should not have to suffer like this. Yes, Mary, this sounds very much like MS. I am not a doctor and I don't know your complete history, but I can say that what you say is suggestive of MS.
Please keep us updated.
Best Wishes,
Heather
I will be anxious to hear what your doctor says after your appointment. Make sure you are getting proper rest, Mary. You don't want to over fatigue yourself, because this can make your symptoms worse. You need an MS Specialist and now....
Your pain hopefully is being treated. You should not have to suffer like this. Yes, Mary, this sounds very much like MS. I am not a doctor and I don't know your complete history, but I can say that what you say is suggestive of MS.
Please keep us updated.
Best Wishes,
Heather
Thank you that was quick.
Okay yes LIMBO for years I am 45 my friends of 30 years say I have always complained of one thing or another and when I was told it was Lupus it almost made sense. that was 97.
About 2001, I lost my speech, eyesight first in 2 days. Speech was studdering like my mind worked fast normal but the words did not come out. the eyesight was scary blurry flashes of light couldn't dial the phone for help. Did MRI, they thought TA, tested for lyme, RA, (which also in 97 they said was positive) this time they said no lupus no RA. I did lots of tests with Nero and finially they said yes lesions but..... likely complicated migraines although I don't get typicall head pain, neck pain high blood pressure with vission problems. I have depression (stress or Ms I don't know) but they put a ? mark in my file for MS. My neru doc had a stroke and died so sad he was great.
I have pain daily always fatigue is just horrid.
then head fog, I thought allergies they don't show in blood tests. but I can't think. now my dgtr is 8 and correcting my speech she says I am using the wrong words??? I don't notice.
My legs are so heavy painful but more heavy like cement?? tingling hands and feet but wrote that off to pinched nerve?
short term memory always bad.. SO I have an appotment with new Doc in 3 weeks.
MY legs and the pain well I want to know if they fit MS??? I don't hear much about pain.
I am weak people think I am lazy or crazy or depressed I think I just want to know what the heck is going on.
So my cotton candy head, my heavy painful lower half of the body please someone say ya likely 90% or 0% of inbetween? I know your not doctors I just need to feel sane today.
I am not scared I am frustrated and mad. I know you all get that.
Had a hysteroctomy years ago that helped some symtoms. It does come and go. this trigger I think maybe christmas I started yoga the kind you do in 104 degree room ya uh.. it was hot felt good at the time but 4 days in to it I haven't been me I can't do normal things and single mom college student and very alone.
Thanks
Mary
Okay yes LIMBO for years I am 45 my friends of 30 years say I have always complained of one thing or another and when I was told it was Lupus it almost made sense. that was 97.
About 2001, I lost my speech, eyesight first in 2 days. Speech was studdering like my mind worked fast normal but the words did not come out. the eyesight was scary blurry flashes of light couldn't dial the phone for help. Did MRI, they thought TA, tested for lyme, RA, (which also in 97 they said was positive) this time they said no lupus no RA. I did lots of tests with Nero and finially they said yes lesions but..... likely complicated migraines although I don't get typicall head pain, neck pain high blood pressure with vission problems. I have depression (stress or Ms I don't know) but they put a ? mark in my file for MS. My neru doc had a stroke and died so sad he was great.
I have pain daily always fatigue is just horrid.
then head fog, I thought allergies they don't show in blood tests. but I can't think. now my dgtr is 8 and correcting my speech she says I am using the wrong words??? I don't notice.
My legs are so heavy painful but more heavy like cement?? tingling hands and feet but wrote that off to pinched nerve?
short term memory always bad.. SO I have an appotment with new Doc in 3 weeks.
MY legs and the pain well I want to know if they fit MS??? I don't hear much about pain.
I am weak people think I am lazy or crazy or depressed I think I just want to know what the heck is going on.
So my cotton candy head, my heavy painful lower half of the body please someone say ya likely 90% or 0% of inbetween? I know your not doctors I just need to feel sane today.
I am not scared I am frustrated and mad. I know you all get that.
Had a hysteroctomy years ago that helped some symtoms. It does come and go. this trigger I think maybe christmas I started yoga the kind you do in 104 degree room ya uh.. it was hot felt good at the time but 4 days in to it I haven't been me I can't do normal things and single mom college student and very alone.
Thanks
Mary
Marez, I think your problem was that you asked the question on somebody else's thread... Lots of people do this, and it gets confusing with the multiple posts and different concepts floating around! It's best to post a new thread with your question - as you've done so here.
They've just posted a couple of writeups by Quixotic that should help you understand a little more about what's going on. Copy this address into your browser and it will take you to the page on this site.
http://www.medhelp.org/health_pages/Multiple+Sclerosis/MS-Information-and-Resources-Index/show/22?cid=36
They've just posted a couple of writeups by Quixotic that should help you understand a little more about what's going on. Copy this address into your browser and it will take you to the page on this site.
http://www.medhelp.org/health_pages/Multiple+Sclerosis/MS-Information-and-Resources-Index/show/22?cid=36
Are you saying that you already posted and no one answered your post? If that happened, please accept my sincere apologies. I am truly sorry.
Mary we are a caring and compassionate group of people, that have either been diagnosed with MS or many are still in the "limbo" stage. Just as you are. In fact, limbo-landers make up the majority of our forum. So you are NOT alone.
You say that you hav e lesions so it's obvious that you have had MRI's. Have the doctor's done a Lumbar Puncture yet?
If you aren't already seeing an MS Specialist, it's time you did. It's awful that you have gone this long without a diagnosis of something.
Let us know how we can help you honey. That's what this forum is for. You will never walk alone.
Best Wishes dear heart,
Heather
Mary we are a caring and compassionate group of people, that have either been diagnosed with MS or many are still in the "limbo" stage. Just as you are. In fact, limbo-landers make up the majority of our forum. So you are NOT alone.
You say that you hav e lesions so it's obvious that you have had MRI's. Have the doctor's done a Lumbar Puncture yet?
If you aren't already seeing an MS Specialist, it's time you did. It's awful that you have gone this long without a diagnosis of something.
Let us know how we can help you honey. That's what this forum is for. You will never walk alone.
Best Wishes dear heart,
Heather
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