I tried taking higher doses of vit D3 for about 2 months. I started with 400 IU daily and increased it slowly. I've also been taking Lyrica for a year and a half. 2 weeks into the D3 experiment my shoulders and upper back broke out into a strange rash. I discontinued the D3 for 2 weeks: no change. I try taking a minimum of Lyrica: 150 - 225 mg daily. Sometimes I also add 400 mg ibuprofen if I need more help.
Hi there and welcome. Don't know whether you're new but I do know we haven't 'spoken' before.
I was on Lyrica, medium dose, for more than a year, and tapered off when it stopped helping. I didn't come across any info saying a rash is a possible side effect. I think you need to talk to your neuro about Lyrica as well as D supplements, just to be on the safe side.
Also remember that when we have MS we tend to attribute all our health issues to it. We sometimes forget we can still get other illnesses and allergies.
Thanks for your input. I was told by another MSer on a different forum that she had actually broken out in acne and a rash from Lyrica. They went away when she took a break from it.
Lyrica actually does help me. I can tell because when I don't take it I really suffer.
I have a feeling the rash is related to the sun. I get good morning sun exposure on weekends in the attempt to increase my vit D3 metabolism. I'm also involved in a megadose D3 experiment on PatientsLikeMe. I was up to about 4000 IU daily which is a small dosage compared to what people in the group are trying. People doing up to 50000 IU of D3 feel clear and definite improvements in their fatigue level and the walking abilitiy. I'm back at 400 IU a day to see if the rash changes. So far, no change.
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