MRI Lesions

[Heather1987]

Wondering if someone can tell me or direct me to a posting, I am wondering if there is any information which indicate increase in MRI lesions as a persons MS  symptoms worsen? I know there are a lot of people that have clear MRIs but continue to have MS like relapses. Im in a postion  were one neurologist says I have MS going by symptoms, relapses and spinal tap , but my MRI is clear.  
He referred me to MS clinic to see another neurologist  to see about starting injections and after my clear MRI, has decided he does not think it is MS. Im worried now how long will it take for MRI to indicate evidence of MS and what state physically I will be in by then.   Thanks  Heather

[houseofallboys]

We are in similar situations I too have the increase protein and the O Bands in my spinal fluid but a clear MRI...My neuro dr says clinical its MS but will not 100 dx with clear MRI's ....YES I want her to be a certain as she possibly can but I to wonder how long it will take for the mri to change or who knows it might not ever change...I'm stuck in limbo land although I really like my neuro dr and I think she is on the right path I'm  afraid what if she just dismiss me after awhile..

I'm waiting on call back from scott and white to get on their 3 T mri machine I'm praying that I will find answers...I don't want to have MS but I don't want to be stuck in limbo land and not get treatment...

I hope you find answers very soon...

Take care
Kelly

[Heather1987]

Thanks for the support. I am trying to to remain positive but it is hard. The one neurologist that says it is MS, has told us he has ruled out all the other mimics, so what can you say to that?? I have not met with the MS neuro. so I do not know as of yet what he is thinking. I still to get a return appointment.  

[wiggles94]

So sorry to hear about what you are going through Heather.

You will find many others on this site with similiar stories.  It is scary to have things going on and not know what is causing it.

Did your neuro rule out all mimics - like lymes, B12, lupus, etc with blood work?

It sounds like your doctor is  taking you seriously and just stay with it until they get to the bottom of it. This process can take time, and as long .  Does your doctor tell you what he thinks it is if not MS?   Are you still going to see the MS neuro?

Make sure you write down all symptoms to share with them.
Good luck!

[Heather1987]

Hi Lulu
Thanks very much. I had a MRI last year which showed inflammation T6 and T7 brain clear. A year later, another MRI with contrast and both brain and spine clear. Spinal tap last year positive for oligoclonal bands, increased protein and Igg or something like that?
Im just worried how bad i will get before I get the other neurologist to think it is definitey MS. It looks as though the neurologist that says I have MS still needs to have the MS Neurologist to agree before I get the chance to get the injections. I have had the MS nurse out at the house giving me all the leaflets and DMD choices, telling my family I have MS and now who knows where I am at. Sorry very frustrating time for me.   But, thank you again Lulu for the link to the health page.l  will now have a read. Best wishes Heather

[Lulu54]

The crazy thing about MS lesions is it doesn't matter how many you have, or if the number is increasing - what does matter is their location.  There is so much territory in our brains that is not used for a particular function - its just empty real estate - and if the lesions are there it can have very effect.

Those lesions that are eloquent (speak) are the ones that land in prime real estate.

I don't remember - have you had spinal imaging done or just brain MRI's?

take care , Lulu

[Lulu54]

Hi heather,
You may have not seen our health pages - check out this one on how you can have MS and a clear MRI.....

http://www.medhelp.org/health_pages/Multiple-Sclerosis/How-Can-a-Person-with-MS-Have-a-Negative-MRI/show/161?cid=36