I BOURGHT A BOOK.
MS FOR DUMMIES, IT IS THE BEST THING I
HAVE READ SO FAR. I AM EDUCATING MY SELF
AND TRYING TO DO THE SAME FOR MY HONEY.
I GUESS I SHOULD BE RELEAVE TO KNOW THAT IS
WAS NOT ALL IN MY HEAD, JUST, I DON'T KNOW.
AS FOR SHOT , I DON'T THINK SO, I DO NOT HAVE ANY CHANGE IN
MY MRI FROM 8 MONTHS AGO. SO LET'S SEE FOR ME.
SCOOTER CAME IT IS GREAT, IT'S BLUE. I ROAD IT
DOWN MY DRIVEWAY, HAVE NOT BEEN OUT TO MUCH
LATERY.
I LIKE TO SAY I AM BLESSED TO HAVE FOUND
YOU ALL. THANKS FOR ALL YOUR SURPORT
AND PRAYERS.
KITT
KITT
I KNOW YOUR REACTION WAS VERY SCARY. HAVE YOU THOUGHT ANY MORE ABOUT GOING BACK ON SHOTS -- MAYBE ANOTHER MEDICATION?
I KNOW YOU'RE HAVING A HARD TIME WITH YOUR DIAGNOSIS, AND I UNDERSTAND THAT.
HOW'S THE SCOOTER GOING? IS THAT GETTING EASIER TO ACCEPT? IS YOUR HONEY ENJOYING IT MORE THAN YOU?
ZILLA*
THANKS SO MUCH,
I WAS ON COPAXONE FOR 3 MONTHS
I HAD A BAD REACTION, COULD NOT BREATH
ALMOST 15 MINTUES, I WILL NOT TAKE ANYMORE
SHOTS. I AM DOING WELL SINCE I STOPPED, THAT WAS SEPT.
I GET EYE PAIN ONCE IN AWHILE, BUT MY LAST ATTACK,
WAS IN JUNE. I THANK YOU ONCE AGAIN. NOW MAYBE
I CAN TRY TO EXCEPT IT. I AM NOT BELEAVING IT.
KITT
I think the time has come for you to start MS treatment through your primary doctor. I think by what you have written, you already have a diagnosis of MS. At least that's what I presume from what you have said. Now you need treatment unless another doctor says that you do not have MS.
Sounds like you have been through the wringer. You must feel like a human yo-yo.
Heather
THANK YOU
I AM LOOKING FOR A NEUROSERGEON NOW.
HERE WE GO 3 YRS AGO I STARTED WITH TREMORS
ON LEFT SIDE ONLY.
HAD MRI 2004- IMPRESSIONS-
1. CENTRAL AND CORTICAL ATROPHY
2. MODERATE VENTRICULAR ENLARGEMENT.
NO LESIONS.( BUT I SEE ONE ON THIS MRI, I THINK THEY MISSED)
4 NEURO'S TOLD ME IT WAS ALL IN MY HEAD. (MEANING MY TREMORS)
THEN SEVERE EYE PAIN IN APRIL OF 2007
MRI IN APRIL 2007
WHITE MATTER DIEASE
VISUAL EVOKED TEST- CAME BACK POSSITIVE DX MS.
2007 SAME NEURO. GAVE ME A POSSIBLE AND PUT ME ON COPAXONE.
I NEVER HEARD FROM HIM AGAIN.
MS SPECIALIST- 2 OPINION SEPT. 2007
3TH, MRI FINDINGS AND PHYSICAL
EXAM : ANTALGIC GAIT AND HYPERACTIVE REFLEXS
NON SPECIFIC LESIONS, SPINE STENOSIS
CURRENT DX OPTIC NEUNTIS WITH POSSIBLE MS.
WHEN HE GAVE ME THE PRESCIPTION FOR THE MRI AND C-SPINE
HE PUT DX CODE FOR MS, AND ON BOTH MY REPORTS IT STATES
HISTORY MS, WHAT DO YOU THINK. I CALLED HIM LAST WEEK AND
AND HE NEVER RETURNED MY CALL. SO I WILL TRY
AGAIN TOMORROW. SHOULD I ASK FOR LP?
OH, MY MD SAYS DEFINTE MS, I DO NOT KNOW WHAT TO THINK.
HAVE MOST OF THE SYTHOMS OF MS. LOSS BALANCE, CRS, TREMORS, SWEATS SEVERE.
TIRED, DEPRESSION. I COULD GO .
THANKS THIS IS LONG ENOUGH. SORRY. KITT
I went back and looked at your post about your brain MRI. As I stated then, it shows that there is no change from your previous MRI, as far as lesions are concerned. Which is good news. When was the MRI before that one?
Of course the radiologist states that he suspects demyelination but does not go so far as to say that he suspects that MS could be a cause of those lesions. Your physical exam by your Neuro can show whether those brain lesions correlate with his physical findings. Did your Neuro say anything about that? Does he reproduce irregularities on your physical, hands on exam, that he feels correlate with the location of the lesions in your brain? That's very important to know.
As far as going to a Neurosurgeon, I think the answer is yes. It would not be a bad idea at all to be followed up by him for further discussion as to how he wants to treat you.
I'll wait for you to post more information or answers to some of my questions and hopefully, Quix and Jon will have a chance to review all you have written also.
Hang in there girl, Heather
Your post says that you have a narrowing in your spinal canal. Maybe you are already aware of that. It starts in the neck of course, with C-1 being directly at the top of your spine at the skull. So C-4 through C-7 are a significant area to have stenosis and can cause all kinds of problems. You also show arthritic changes in the cervical spine. Those are the "osteophyte's" that are mentioned. They are in fact more common than most people realize. I am only 54 and I have bone spurs on every single vertebrae; even though I have no symptoms from those arthritic changes or should I say very, very midly.
I am going to go look at page 3 right now and re-read what you said about the brain MRI. I will re-post here, if I have an opinion about what I read. Okay?
I hope Quix or Jon chime in and give their opinion of what you spinal MRI is showing...
Heather
CAN YOU IF YOU HAVE TIME READ THIS
AND MY OTHER MRI OF THE BRAIN ON PAGE 3.
PLEASE. THANKS KITT