Hi,
I hope all goes well with the appointment for you and your son, hope they finally get to the answers.
Take care.
T
Best of luck with your apt. Please let us know how it goes. Thinking of you,
Barb
Thank you! He has an appt with his neurologist today. He sees a doctor that specializes in white matter brain diseases. Hopefully they will have some answers today. We first found the lesions when he was 3, so it's been 7 years of questions. He goes to Children's Hospital in Cincinnati, so I am confident they will be able to figure something out. They have a great Neurology department.
Oh, poor guy!
Those MRI findings don't exclude MS, so he needs further workup. If he starts receiving treatment now, he may stay in remission.
I am sorry you and your son are going through this. I don't have information to offer other than that there was a Mom on here who posted quite a bit when her teenage daughter was dx'd. I think her screen name was Penina. Maybe search for her posts? A lot of her posts were really informative. Also, there are MS specialists who work with children. If you want MS ruled out, it might not be a bad idea to seek an opinion with one of them. You could also call MS society or look up MS consortium to get names. I hope it is not. I hope you get answers. Hugs.