MRI

[Super_sally888]

Hi All.

I saw my endo.  He is very nice, but still doesn't know what's going on. But at least he listens to me.  My thryoid meds are increased yet again. Says the tremor cannot be thyroid.  I am still hypo not hyper.... and I didn't have a tremor and other stuff 'till last year.

He's still muttering about sending me to another neuro.  He said, "but I've sent you to 2 neurologist already..." and trailed off. I wanted to, but couldn't say, but they didn't do their job and didn't even check things..!!!

He gave me an order for repeat MRI.  Will do it on the same 1.5T machine I did the last one on.

I don't know whether to pray nothing new shows up, or pray that something shows up.  I feel sick to the tummy (nerves) even thinking about going for this.....  I will schedule the repeat MRI for next week, after Easter.

Please pray that there are some conclusive answers soon.  I don't feel like I can keep going on with this.....  if nothing shows up I think I should give up and forget the whole thing, and just accept that all this is just my personal ideosyncracy!

Take care all.

Sally

[essdipity]

Okay, Bubu. Now for a pickanick basket.

~

[Momzilla]

OK.  I'm a little slower than the average bear sometimes.  But, now I think I've got it!

Thanks,

*

[essdipity]

The tremor thing is confusing, as terms are used differently depending on who's doing the talking or writing. The way I understand it (could be wrong--gasp!), intention tremors can be essential. If you hold out your arm to do something and it shakes, that's intention. If there is no sinister cause for this, then maybe the tremor is essential, if there is, that's another kettle of fish. I don't think the resting kind are essential. That is often associated with Parkinsons .Maybe with MS too, if there is a cerebellar problem.

~

[Momzilla]

Hey, Sally!

It sounds like Dr. Mike is hanging in with you for the long haul.  (That's your endo, right?)  That's great.  Just wish he'd hurry up.  And like ess said, it's time for you to show him what you've learned and prod him a little.  You so wanted to speak up -- you should!  I have a hard time doing that myself, but we MUST do it if we're ever going to climb out of Limboland.

It sounds like the info you got came from a good source, but it doesn't sound right to me.  I always thought a tremor with purposeful movement was an INTENTION tremor.  essential tremor was more associated with being at rest, holding your arms out, etc.  My last doc also thought I had POSTURAL tremor, which throws more confusion into the mix.  I'm going to check on "We Move."  It tackles all those disorders pretty well for laymen.  I'm not saying you're wrong, it is just confusing me.

Anyway -- hang in there, Sally!  Hang tight!

Zilla*

[Super_sally888]

Thanks Ess.  I looked up essential tremors & put a description below.  That will be a good topic for the permanent pages.

I don't think this is what I have. For me it happens at rest.  Like when I am typing if I stop typing I notice my hands are shaking.  If I holld my hands out straight there is also tremor.  Sometimes worse than others - like worse if I am in a stressful situation, if I am excited, or after exercise.  It doesn't affect my voice.  I can sing without any tremor. Sometimes it feels like my whole body has a small tremor. Not distressing, just strange. It started along with my episode last year.

"Tremor is involuntary trembling in part of the body. Essential tremor is associated with purposeful movement (e.g., holding a glass to drink, shaving, writing, buttoning a shirt). It occurs most often in the hands and head and also may affect the arms, voice box (larynx), trunk, and legs.

Essential tremor is caused by abnormalities in areas of the brain that control movement and does not occur as the result of disease (e.g., Parkinson's disease). It usually does not result in serious complications."

[essdipity]

You're always so cheerful and upbeat, and now it's time for us to try to cheer you. Keep plugging at finding answers! Why can't you tell your endo that the neuros didn't do their job? I'm not suggesting you say they are incompetent jerks, though they well may be. That wouldn't get you anywhere. Instead, find a tactful way of saying you have learned what thorough neuro exams should be like and that you haven't had one. If you do this soon, you could start by saying you've been thinking over the outcome of your recent appointment and have questions, etc., etc.

As to your tremors, are you sure they aren't simply the essential variety? That happens surprisingly often. I have them, and have had since I was 20. I am also hypothyroid (controlled). My neuro says my tremors have nothing to do with my MS. That makes a lot of sense because I sure haven't had MS symptoms since then.

Anyway, take a deep breath and try again. Of course you will be in our hearts and prayers.

ess