MS DR. JUST CALLED

HELLO ALL,
MY MS SPECIALIST JUST CALLED WITH MY NEW
MRI REPORT, HE GAVE ME A DEFINETE MS DIAGANOSIS.
NO CHANGED SINCE LAST MRI.
NO MORE POSSIBLES.  NOW IT'S HITTING ME HARD.
I WAS NOT BELEAVING IT, TILL I HEARD IT FROM HIM.
SORRY HAVE TO GO NOW,
HOPE ALL ARE WELL HERE TODAY.

[sllowe]

Hi Kit,

It is tough, actually hearing it.  I don't know what to say, just that I've just read this and hope a little time with the news leaves you with some acceptance.  It's something I struggled with it too. . .

I wish you well,

SL

[pins_n_needles]

I am new to this forum, and still in diagnosis limbo, but my heart goes out to you. Hang in there and have a good cry. I know you will find support from the people on this list.
Jami

[kitten o]

THANK YOU, CAN'T STOP CRYING. NOW WHAT?
I GUESS I WILL READ ON, IN MY MS FOR DUMMIES.
I AM GLAD YOU  ARE HERE FOR ME, I THINK I WILL
HAVE ALOT MORE QUESTIONS.
KITT

[Momzilla]

HI, KITT~

I'M SORRY.  WE'RE HERE.

THINKING OF YOU,

ZILLA*

[pins_n_needles]

I wish I could give you a big hug. And some chocolate. And maybe some trashy magazines or mindless television (don't know you well enough to know what kind of diversion is best!). Just know that I am on the other side of the country and crying with you. You WILL get through this.

[6-paq]

KITTEN,

I'M SORRY FOR THE OFFICIAL DIAGNOSIS.  I JUST WISH THAT NO ONE HAD THIS DARNED DISEASE AND JUST HAD SOMETHING THAT IS EASILY CURABLE!!

HAVE A GOOD CRY.  WE'RE ALL CRYING WITH YOU!  

WHAT ARE HIS PLANS FOR TREATMENT NOW?  WERE YOU ON COPAXONE BEFORE?

TAKE CARE KITT AND PLEASE REMEMBER THAT WE'RE ALL HERE FOR YOU!!

PAT

[Michela11]

Kitten, my heart goes out to you and I'm crying with you. I know exactly we're you at. I am imagining a big hug and sending it to you. Do look after yourself right now, I know it's a very difficult time.

Michelle

[sllowe]

Now what is right on the money!  WHAT is very unknown.  From a fellow "figure it out and fix it if it's wrong" gal, to you and many of our others, it's going to be a life-long stretch and lifestyle change.

I received a talk from someone (who happens to be a Dr.) told me that it was a race, but not one that I would be sprinting to the finish line for.  It was one that I just had to stay in.  He put it so elegantly, I wish I could remember the very words to tell you and our forum.  

What I got out of it, was simply "pace."  All you can do is pace yourself. . . Pace get through the day, pace, be steady and get through your week, pace and try to be calm to get through your symptoms, and most of all and more importantly, pray for strength.

We are with you, and it's going to be okay.  Cry and get it all out, just don't stay there in that place for too long . . ..

Thinking of you,
SL

[pennst8r]

I AM BOTH SADDENED AND HAPPY FOR YOU. SAD THAT YOU HAVE MS, BUT GLAD THAT YOU FINALLY HAVE A DEFINITIVE ANSWER. CRY ALL YOU NEED TO, THEN YOU'LL ADJUST AND GET ON WITH THE TREATMENT. BOTH OF MY SISTERS HAVE MS AND BOTH ARE DOING QUITE WELL WITH THEIR RESPECTIVE TREATMENTS. IT WILL TAKE SOME TIME, BUT YOU WILL FIND PEACE IN KNOWING, AND DEALING WITH, YOUR MS. YOU NOW KNOW WHAT IT IS YOU ARE FIGHTING - THAT'S HALF THE BATTLE. WE ARE HERE FOR YOU WHILE YOU FIGHT.

TAKE CARE AND GOD BLESS.

PENN

[doni54]

I agree with everyone else and want you to know we are all here for you.  Take care of yourself and just take everything one day at a time.

Lots of love & (((((hugs)))))
doni

[Super_sally888]

Hi Kitten,

So sorry about your news.  Definitely is a blow to know for sure and now you have to get used to the whole idea.  BUT now you also have something definite to treat. Treatment does offer a lot of hope.

There is a whole spectrum of how MS affects people.  For some people with MS you wouldn't even know they have it (it does go into remission) for others there will be moderate problems that don't affect their lives too much, and others there will be big adjustments.

You don't know which category you fall into or how it will progress, or even if it will progress.  But keep your spirits up (after you mourn the loss of your previous self), this will go a good way towards coping.....

And remember we are all here for you all along the way.... to vent, or cry, or laugh and share frustrations AND acheivements.

Take care sweetie.  It feels really bad now, but the initial shock will pass and you will deal with it.

Love and hugs and cheers

Sally

[monotreme]

I am very sorry about your diagnosis.  But at least you have answers and will get some treatment.  Don't stay crying too long.  You have a lot of life to  enjoy.  
Craig

[floridamom2]

I am so sorry for your sadness but I am also glad that you finally have an answer and eventually a plan for treatment.  I will be praying for you!
Kristin

[SuStark]

Kitten,

Welcome to this very exclusive club!

When I read that there are only about 400,00 people in the US with MS, I was shocked. And to think that I was picked to be one of them - WOW! I must be very special.

Seriously, when I was diagnosed just a few weeks ago, I was strangely relieved. Of all of the scary things that my symptoms could have been related to, MS seems like the best of the worst. When my neurologist said "it's not a tumor nor lymphoma" I could have kissed him. When he told me that I can delay the time between relapses by taking drugs, I was very excited. I guess in the weeks between tests I was dreading the very worst and this diagnosis wasn't all that scary.

Don't let the people you decide to tell drag you down. To be diagnosed now, in 2007 - we really are very lucky. Research and medicine have come a long way in the last 15 years and I know that we will see huge strides in the treatment (and perhaps a cure) of MS. My doctor tells me that oral drugs are at most 5 years off - that's huge!

Don't be sad, Kitten! You are the same person you were last year, the year before that and ten years before that. Whenever I get a little mopey I think about Arnold Schwareneger in the movie "Kindergarten Cop." He is a police officer pretending to be a kindergarten teacher. In one scene he has a horrible headache and he tells the class. One little girl says "maybe you have a brain tumor" and he says "it's NOT A TUMOR!" in his Arnold way. It always makes me laugh and I think "heck, this is just MS - it's NOT A TUMOR!" It only works if you think it with an Austrian, Arnold accent.

Best of luck to you and write any time!

Susan

[needanswers54]

WE ARE WITH YOU IN THOUGHT AND PRAYER!  

I am so glad you now know for sure and will have the opportunity to move forward.  The diagnosis does not change you from who you were last week, except that you are now wiser and more capable than before you knew.

I hope the darkness will soon pass.  God bless you...

[needanswers54]

Sorry, my brain is playing tricks on me, tonight.

WE ARE WITH YOU IN THOUGHT AND PRAYER!  

I am so glad you now know for sure and will have the opportunity to move forward.  The diagnosis does not change you from who you were last week, except that you are now wiser and more capable than before you knew.

I hope the darkness will soon pass.  God bless you...