MS Hug

[Deb61]

Can the MS hug cause death?  When I saw the Oprah show with Montel Williams, Dr. Oz mentioned that the leading causes of death in MS were suicide (which sounds very likely) and the MS hug were the leading causes of death.  Is this true?  If not can you die from MS?  I will certainly pay more attention to those chest pains if this is the case.  Not worried, just would like to know to make sure I get myself the proper care . . .

Don't throw rotten tomatoes if you all have discussed this topic earlier . . . I've looked around on the forum and didn't find anything.

Deb

[anon07072023]

Have you been to a neurologist and do you have a diagnosis of MS?  Maybe they can run an MRI on you, on your spine if they haven't already.  If you have MS, then they can start disease modifying drugs, so you have less disability in the future.  

You should definitely talk to your doctor about all of this, especially if you are still having problems.

Also, this is a very old thread on this forum.  You could post a brand new question, because I don't know how many people are still watching this thread.  

-Kelly

[ohbrittany1]

Also, to add to my post, it stayed active in my throat and upper thoracic spine for 3 days.. and slowed down.. but i still have a lot of difficulty swallowing. and difficulty breathing and moving around. i'm extremely weak, especially my arms and legs (worse from my knees down)...

[ohbrittany1]

I recently had an attack, and i thought it was my thyroid acting up, but clearly after reading this article and reading up on the myclonus and myoclonic seizures i was diagnosed with last october and the low lying cerebellar tonsil as well, i'm realizing that it is MS. and the attack i had is exactly like the "MS Hug" but when i had the attack it went from my neck to waistline and then all the way up and to my throat and all the way back down to my waistline again... i'm really scared about this.. i'm doing my best to stay calm being as whenever i get really upset or anxious my throat starts to enlarge (which is where it decided to reside when it calmed down)...
Also, i have been having these same seizures (myoclonic seizures) since i was 16 years old, but they've been getting progressivly worse, and the attack "MS Hug" i had on Aug 25th, 2011 i believe, was the worst its ever been... when it calmed down i couldnt walk and i felt and looked like i had MS.. and i stuttered as well.. and i've never stuttered that severly before.. it wasnt until last october when i was hospitalized for a week and diagnosed with myoclonus and myoclonic seizures that i started stuttering a little bit and getting confusion...
anybody have these symptoms? any hope?

[jujuminx]

This is an old thread. May I suggest you start a new one with your question?  I think you will get some responses.

Julie

[MamaSpenz]

I experienced my first MS hug yesterday. I was feeling fatigued with the house cleaning (daily thing nothing unusual), when I sat down at the computer... When my phone rang I jumped up to grab it and it hit me so hard, my brain went blank, i don't even remember the full phone conversation, it felt like so much pressure around my chest my heart was going to explode out of my throat/mouth. It was excruciating, i couldn'/t breathe, or talk. When I sat down I felt disoriented almost like my brain wasn't working properly, I thought I was having a heart attack! My mother drove me to the hospital as I had both of my little girls with me alone at home. After a CT scan, EKG, cardiac enzyme tests etc. Heart issues were ruled out, I was sent home with a pain-pill prescription and the theory that it as a "MS HUG". My lungs feel raspy (chest x-ray was normal :ruled out bronchial spasms), My chest and back muscles are sore (excruciating pain in shoulder blades as well yest.) And I'm completely exhausted physically and emotionally, can anyone relate to this experience?? What is YOUR opinion? MS HUG?? Does this mean I have more lesions??? I see my neurologist monday (have to travel an hour away)...Please help- my email is ***@**** with any questions/support/comments etc! Thanks!

[jensequitur]

Mine have never been all the way around.  They were usually centered in the esophagus, and only within the last year have they started to try and go around.

Jumpinjiminy - you're quite welcome!  Try hot tea or coffee too - if I start having one, I'll take a Flexaril and have a hot cuppa joe.