MS Relaspe

My question is: What does it mean when you have Fatigue, Cognitive and Twitching at night almost every day for three years? Is my MS Bad or is it typical to have these problems daily, year after year with worse days or weeks and then gets a little bit better?

Let me give you some backgroud on my MS


I got Diagnosed with MS two years ago. I had an episode of Optical Neuritis and my eye doctor ordered an MRI for that afternoon. Well the MRI Tech immediatly knew I had MS, I had over 20 Liension on my Brain, so she told me to stay there and called my GP and told him, who then told me over the phone nd told me to come to the office so we could talk about what that meant. Before this I was VERY Fatigued, for about three months, I had no energy to work or do anything, I was laidoff, thank God, so I just slept all day and night basically. I would try to do things, small things like laundry but it just wore me out... then the Eye thing happened.

So for the past two years I feel like I have been fighting MS, I had the eye episode 9-09 took steriods via IV and them predizone and my was back to normal in about 3 weeks. I chose a MS specialist and had a meeting with him and he did all the "normal" MS test and then did a whole bunch of other test to see exactly where I was on all aspects, and they came out pretty good I was about a 3 of the "scale". So I picked a Medicine - Rebif in November. This is how the next year went..February Episode, Steroids better, June Episode, Steroids, Better, Septmeber, Episode,Steroids, better. At this time I changed Medicine to Tysabri. The first six months I felt GREAT, Normal, I was so excited. Then on month 7 I started to have Fatigue, and get a sinus infection, which would turn into Broncitus, I would get a little bit better then get the infusion get sick again, get better, infusion sick on and on. OF course I was getting more Tired and having Congitive issues during all this. I really did not think that these two "problems"  meant that I was having an episode. Doc took me off of Tysabri for July to let me body heal from all the Colds, adn Bronc. which it did. But In July I was getting REAL Tired and my Memory was getting real bad and I also started to Twitch at night, so my husband informed me. I took the Tysabri on Aug 4th saw MS doc on Aug 10th, who took me off it all together. WE both agreed that if I am having all these episodes (found out that the Fatique, Memory and Twitching) were indeed Episodes that Tysabri is not working. I did not think that these were episode, just part of having  MS, guess because I had had them for 3 years now and about 5 years before I got diagnosed. We are going to see if I have a "Major" Episode in the next three months. He is trying to see what happens to me to see if I have Progressive Relasping MS. I am praying for a Major episode, I do NOT want to have PRMS which I was told there is NO medicine you can take that will help you, you just keep getting worse. Please Help Me Understand what is going on with my MS AND WHAT IT ALL MEANS

[grannyhotwheels]

I think your doctor is doing the right thing.... Just bare with him and try hang tuff... I know this is hard... I have PPMS and it really ***** not having meds that help... Some doctors will go ahead and give the meds any way....

Together my doctor and I chose not to go this route but instead treat the symptoms... My MS has progressed quite a lot but I still have good days too... It's really something you have to discuss together... I would go ahead and wait the 3 months then go from there...

I wish you the best and please keep us informed on how you are doing...

I'll be praying,
Carol