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MS Symptoms? Need advice

Hello! I'm a 36 y/o female that gave birth to my 3rd child 2.5 months ago. I am having a multitude of weird neurological symtpoms and need to know if anyone has had these symptoms before and can answer a few questions...
A month after giving birth I started having weird migrating headaches. Not too painful. They wouldn't last long. Then I had an episode of rt shoulder pain that lasted a week and went away. It was extremely painful and woke me up 6-7 x per night.
I then started feeling as if my head was not feeling right, as if it was harder to concentrate and I wasn't quite awake. This would come and go and lasts to this day although it's not every day. I get this with some bouts of feeling off balance.
One month ago I started feeling a strange tingling feeling that would start on my right hip and move to my knee and disappear. That happened a handful of times. Then the next day I had tingling down the back of my left leg and by the end of the day the tingling would extend to my ankle. The tingling was never like pins and I'm a 36 y/o female that gave birth to my 3rd child 2.5 months ago. I am having a multitude of weird neurological symtpoms and need to know if anyone has had these symptoms before and can answer a few questions...
A month after giving birth I started having weir driving headaches. Not too painful. They wouldn't last long. Then I had an episode of rt shoulder pain that lasted a week and went away. It was extremely painful an woke me up 6-7 x per night.
I then started feeling as if my head was not feeling right, as if it wa harder to concentrate. This would come and go and lasts to this day. It's not an every day thing but happens here and there almond with some bouts of feeling off balance.
One month ago I started feeling a strange tingling feeling that would start and my right hip and move to my knee and disappear. That happened a handful of times. Then the next day I had tingling down the back of my left leg and by the end of the day the tingling would extend to my ankle. The tingling was never like pins and needles but more like a weird chill thy passes through and stops.
About 3 weeks ago I started having a sunburnt feeling on my upper left shoulder, left arm and left back. That comes and goes as well and I also feel warm sensations randomly on my legs and spots on my arms. Especially when it's brushed up against something.
All over muscle twitching began around 3 weeks ago. They are everywhere esp. the legs. Twitching is always there and has not let up.
The weird tingling or chills occurs here and there, and even before I have a bowel movement I feel the chills in both buttocks and even sometimes down my left leg.
My left leg every few days feels heavy, maybe even weak but appears to have normal function. The neuro doc said my reflexes are not particularly good in my left foot but the neuro exam was 'normal'. My physical therapist says I am having weakness with my left big toe and moving my foot outwards.
When I get out if the shower it feels as though I still have water running down from my knees down and this lasts about a minute.
I had one neuro visit with a clean brain mri (1.5 tessla machine) , some basic metabolic tests and everything is clear even thyroid function. My next step is to ask for a spinal mri and I'm seeing another neuro doc and a lyme literate doc. I am concerned I have ms. With my symptoms, my age and the timing of this postpartum, I feel I fit into the ms profile.
Looking back, I had a couple episodes of tingling and migrating joint pain after a miscarriage a year and a half ago. I  also had burning on the bottom of one foot in July while I was pregnant. I know the joint pain from a year ago does not correlate with ms but my symptoms now seem to match more with an ms diagnosis. The neuro doc I just saw blew off the ms diagnosis due to a clean brain mri but did not order any additional tests.
I've had these symptoms now for a month and I'm very concerned as to what may be going on. Any advice? Does this sound like ms? needles but more like a weird chill thy passes through and stops.
About 3 weeks ago I started having a sunburnt feeling on my upper left shoulder, left arm and left back. That comes and goes as well and I also feel warm sensations randomly on my legs and spots on my arms. Especially when it's brushed up against something.
All over muscle twitching began around 3 weeks ago. They are everywhere esp. the legs. Twitching is always there and has not let up.
The weird tingling or chills occurs here and there, and even before I have a bowel movement I feel the chills in both buttocks and even sometimes down my left leg.
My left leg every few days feels heavy, maybe even weak but appears to have normal function. My right leg also now seems to be getting this weird weak/heavy maybe numb feeling as well. But to the touch I can feel everything and move normal.
When I get out if the shower it feels as though I still have water running down from my knees down and this lasts about a minute.
Tinnitus is also an issue an seeing floaters in my vision which the ophthalmologist said there is a floater but no other problem.

I had one neuro visit with a clean brain mri (1.5 tessla machine) , some basic metabolic tests and everything is clear even thyroid function. My next step is to ask for a spinal mri and I'm seeing another neuro doc and a lyme literate doc. I am concerned I have ms. I seem to fit that ms with my age and being so early postpartum.
Looking back, I had a couple episodes of tingling and migrating joint pain after a miscarriage a year and a half ago. I  also had burning on the bottom of one foot in July while I was pregnant. I know the joint pain from a year ago does not correlate with ms but my symptoms now seem to match more with an ms diagnosis. The neuro doc I just saw blew off the ms diagnosis due to a clean brain mri but did not order any additional tests.
I've had these symptoms now for a month and I'm very concerned as to what may be going on. Any advice? Does this sound like ms?
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987762 tn?1671273328
COMMUNITY LEADER
IF what you are experiencing at night are not common 'hypnagogic jerk' (sleep starts) and are instead something like 'nocturnal seizures' (epilepsy) then it could still possibly be due to sleep deprivation.

"Any form of epilepsy may occur during sleep, but some types of epilepsy are more likely to be restricted exclusively to sleep. These are sometimes called Nocturnal Seizures.

Some people have seizures occur only during sleep whilst others have both daytime and nocturnal seizures. Studies have shown that 10 - 45% of people with epilepsy have seizures that occur predominantly or exclusively during sleep or occur with sleep deprivation."
https://www.epilepsy.org.au/about-epilepsy/understanding-epilepsy/nocturnal-seizures-during-sleep

The way sleep studies differentiate between hypnagogic jerks from the nocturnal epileptic (myoclonic) jerks, are basically with hypnagogic jerks (sleep starts) they lack the brain wave spikes and there occurrence are basically at true sleep cycle onset .

It's not uncommon for people to have some concern, that they may be having some type of epileptic seizures, when they unexpectedly start experiencing being woken during the night by this very sudden and startling jerk. Which often includes a sudden dropping or falling feeling and may additionally include a rapid heart rate and or sweating but it truly is quite different to what happens with myoclonic jerks or nocturnal epileptic seizures.  

It would probably help to know that wide spread muscle twitching, doesn't normally evolve or turn into "partial simple seizures" at night, what you are experiencing is actually 'more likely' to be the more common sleep starts, due to being so sleep deprived and your current level of anxiety....

Cheers...........JJ        


Helpful - 0
Avatar universal
I had thought originally when I posted this that it really could be ms. It is evolving into something different- what exaclty I'm not sure. But my muscle twitching has turned into having partial simple seizures and jerks that wake me up from a dead sleep.

So now I'm scheduled for an EEG. I think a sleep study would help. The doc mentioned maybe epilepsy. But due to what?
Helpful - 0
667078 tn?1316000935
One of the most accurate exam for MS is the neurological exam. It is reflexes, pushing and pulling arms and legs, following the light with you eyes. I had MS before the MRI was invented. The neurologists all knew I had brain stem damage from my neurological exam.  There are over 30 non neurological MS mimics. When a person googles symptoms MS pops up a lot.

Alex
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
It's extremely unlikely that what you experience 'could be' a neurological condition like MS!

MS was originally quite unlikely because of the very inconsistent symptom pattern you describe but you additionally having no clinical evidence of any neurological abnormalities ie brain and spinal MRI's are both normal and your neuro exam was also normal, therefore logically neurological conditions like MS, would definitely be off your list of 'most likely' causation.

With your blood tests also coming up normal, you'd have to assume all the common explanations have also been ruled out too but something you may not have even considered though probably should be considering you are still extremely worried......

Could you have originally experienced some not unexpected physical changes due to giving birth but under the circumstances it was enough to effect your mental health and trigger your anxiety?

I am bringing this to your attention because what you describe, would not be inconsistent with conditions like health anxiety, this type of anxiety is often triggered by a medical related issue. As their thoughts and behaviours becomes more and more focused on the medical condition they are worried they may have, their symptoms rapidly multiply all over their body, as does their level of anxiety about their health etc

If this it is at all possible that your anxiety is a bigger issue than you are currently acknowledging or aware of, I would suggest you seriously consider discussing your anxiety with your doctor because anxiety will make anything worse than it needs to be if left to build and spin out of control....

Food for thought.........JJ

  

    
Helpful - 0
Avatar universal
Thank you very much for your input. The symptoms are all over the place, like you said, and very inconsistent. I never know what to expect.

Mri of the brain and spinal column are normal. Bloodwork normal so far. Being currently tested for lyme. Neuro exams normal.

The only things that seem to be more consistent are the muscle twitching which has never stopped. It only fluctuates getting better or worse. I even woke up with really bad twitches in my leg last night after being really hot and wet from sweating. It was so bad my whole foot was moving like crazy for 10 minutes then stopped. But since then the twitching is worse all over my body and I'm even twitching now on my nose!

The issue of having an "off" feeling in my head has gone on for a week straight now and does not get better with sleep. It's just become something that goes on and has not remitted. Just two month ago when it started it was coming and going. Still also getting really mild headaches sporadically around my head. This is all very disturbing and hard to deal with. Of course causing anxiety. So I'm having heart palpitations too.

So this does not sound like ms?? I get concerned because I have had a few episodes where my leg feels numb, but it's not numb at all to the touch. It happened a couple of times in my left leg lasted about a half hour then went away. Last week it happened in my rt leg.

Any thoughts? I'm so worried.
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
I personally don't believe MS would be the most likely explanation, something is definitely going on but from what you've mentioned it doesn't sound consistent with a neurological condition like MS.

Basically this all began 6 weeks ago which was a month after giving birth, starting with short lived mild migraines, and then for a week you experienced 'right' shoulder pain which ultimately stopped. Any day time cognitive fog and or fatigue would be fully expected, when the pain was waking you up 6-7 times a night and on top of that, you've also got a new born and two other children to raise.

I noticed inconsistency throughout your symptom pattern from this point on, when you mention one symptom and it's location on your body, it's short lived, happening a few times, coming and going, experienced for a day and gone the next etc these symptoms appear to get replaced by something else, change from unilateral to bilateral, in a completely different location, on the opposite side of your body, wide spread and or random........

One month ago:
Strange tingling or weird chill passes through and stops - Right hip travelled to knee. Changed the next day to Left leg (back) travelled to ankle. Changed from unilateral to bilateral, both buttocks and even sometimes down my left leg

Sunburnt or warmth - Left shoulder, back and arm. Changed to all peripheral limbs "randomly on my legs and spots on my arms"

Muscle twitching - All over the body, everywhere, but consistent since started 3 weeks ago.

I would suggest getting a spinal MRI and possibly peripheral nerve tests, i would think there 'could be' a spinal explanation, though i'm thinking structural considering that whilst you were pregnant you also had burning in one foot.  Burning sensation can be suggestive of nerve a issues, which could potentially have been due to the curvature of your spine during pregnancy and has been exacerbated as your body is readjusting post pregnancy.

Cheers..........JJ
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
Hi Sunshine and welcome,

I've split up your post for you....people with MS often have visual issues and find reading large blocks of text very difficult. Large text blocks will also effect the number of people who will be able to read through your story and respond, so if you slit up any future posts it would be appreciated. :D

"Hello! I'm a 36 y/o female that gave birth to my 3rd child 2.5 months ago. I am having a multitude of weird neurological symtpoms and need to know if anyone has had these symptoms before and can answer a few questions...

A month after giving birth I started having weird migrating headaches. Not too painful. They wouldn't last long. Then I had an episode of rt shoulder pain that lasted a week and went away. It was extremely painful and woke me up 6-7 x per night.

I then started feeling as if my head was not feeling right, as if it was harder to concentrate and I wasn't quite awake. This would come and go and lasts to this day although it's not every day. I get this with some bouts of feeling off balance.

One month ago I started feeling a strange tingling feeling that would start and my right hip and move to my knee and disappear. That happened a handful of times. Then the next day I had tingling down the back of my left leg and by the end of the day the tingling would extend to my ankle. The tingling was never like pins and needles but more like a weird chill thy passes through and stops.

About 3 weeks ago I started having a sunburnt feeling on my upper left shoulder, left arm and left back. That comes and goes as well and I also feel warm sensations randomly on my legs and spots on my arms. Especially when it's brushed up against something.

All over muscle twitching began around 3 weeks ago. They are everywhere esp. the legs. Twitching is always there and has not let up.
The weird tingling or chills occurs here and there, and even before I have a bowel movement I feel the chills in both buttocks and even sometimes down my left leg.

My left leg every few days feels heavy, maybe even weak but appears to have normal function. The neuro doc said my reflexes are not particularly good in my left foot but the neuro exam was 'normal'. My physical therapist says I am having weakness with my left big toe and moving my foot outwards.

When I get out if the shower it feels as though I still have water running down from my knees down and this lasts about a minute.

I had one neuro visit with a clean brain mri (1.5 tessla machine) , some basic metabolic tests and everything is clear even thyroid function. My next step is to ask for a spinal mri and I'm seeing another neuro doc and a lyme literate doc. I am concerned I have ms. With my symptoms, my age and the timing of this postpartum, I feel I fit into the ms profile.

Looking back, I had a couple episodes of tingling and migrating joint pain after a miscarriage a year and a half ago. I  also had burning on the bottom of one foot in July while I was pregnant. I know the joint pain from a year ago does not correlate with ms but my symptoms now seem to match more with an ms diagnosis. The neuro doc I just saw blew off the ms diagnosis due to a clean brain mri but did not order any additional tests.

I've had these symptoms now for a month and I'm very concerned as to what may be going on. Any advice? Does this sound like ms? needles but more like a weird chill thy passes through and stops. "

NOTE: I've removed all the duplicate paragraphs....

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