MS and Myelomalacia

[StephanieGhosh]

I am a 45 yr old woman who was diagnosed 3.5 years ago with severe Fibromyalgia and Multiple Sclerosis. At that time, I had a C-Spine MRI which showed a small demyelinating lesion.  Nothing else was noted.

A few months ago, I started having sensations in my right leg and foot, severe pain around my rib cage, upper back pain, constant neck pain, etc.  My neurologist had another C-Spine MRI done a few weeks ago.  The lesion has remained stable, but the report shows progressive myelmalacia.  The actual verbiage was "Progressive central linear cord signal abnormality and degenerative changes consistent with progressive myelomalacia when compared to prior study."  There was mentioned in the report that there was "linear symmetric abnormal cord signal and loss of cord bulk, likely secondary to chronic myelomalacia due to multilevel spondylosis...'.

Has anyone here have any experience with Myelomalacia?  What treatments are you doing?

Thanks for any information you can provide!!! :)

[Katrob56]

I was diagnosed in 2016. My neurosurgeon that diagnosed me said he knew very little about Myelomalacia and sent me to a Neurosurgeon at Duke. He thinks I have an old injury. My spinal cord at C4-C5 is 6 cm in diameter. He did posterior laminectomy with multi fusion c-4-c-7. My symptoms returned in two months. When I called back the PA said to give it a year to 18 months for the nerves to settle. I have an appointment in May. So far no one has told me how fast Myelomalacia or pro gresses. I, like you am a little anxious about this.

[Katrob56]

I was diagnosed in 2016. My neurosurgeon that diagnosed me said he knew very little about Myelomalacia and sent me to a Neurosurgeon at Duke. He thinks I have an old injury. My spinal cord at C4-C5 is 6 cm in diameter. He did posterior laminectomy with multi fusion c-4-c-7. My symptoms returned in two months. When I called back the PA said to give it a year to 18 months for the nerves to settle. I have an appointment in May. So far no one has told me how fast Myelomalacia or pro gresses. I, like you am a little anxious about this.

[Momzilla]

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