I am a 40 yr old female who was just diagnosed with "probable MS." A month ago my left eye felt odd and I lost some vision - it continued this way for 3 days and then the right side of my face went numb. The ER took an MRI and I had 7 lesions indicative of MS. I had iv steroids for 5 dyas. The right side of my face healed, but the left eye remains a problem. The neuro says I have nystagmus and extensive nerve damage. I am constantly dizzy, off balance and my vision is not good. I can't drive. I am going to a neuro ophthalmologist within the month by am trying to find out info before going. Is this nystagmus reversible? Will it heal? Will it get worse? Is there anything they can do to help with the constant motionsickness feeling? At first they told me it might get better in 2 months (it has been one), but now they say it might never get better. What are the percentage of people in which the acquired nystagmys gets better? Thanks for any info.
I am sorry to hear about your symptoms. I have read it can take 6 months or even a year for healing from an attack before you should be set that your symptoms are permanent.
I do believe I read recently that Quix posted about improvement with her nystagmus. I too have nystagmus, but not very severe. Do the Dr's think your balance issues and dizziness is from the nystagmus?? You can have these as seperate issues.
You are in a confusing place right now, but this forum has many answers. There are health pages in the upper right corner with tons of info about lesions and if they can heal, how long it may take and more.
Hi, Thank you for your question. Multiple sclerosis arises due to inflammation of myelin sheath (Brain & Spinal Cord) after injury or inflammation (infection/trauma) that leads to demyelination. Common symptoms related to MS are fatigue, cognitive impairment, visual (nystagmus, diplopia), impaired sensation (parasthesia), muscular weakness, bowel & urinary incontinence. Unfortunately, there is no permanent cure although symptomatic relief could be provided with steroids, plasmapheresis, interferons and neuro-rehabilitation. For nystagmus, medical treatments like gabapentin and baclofen that can suppress nystagmus are useful. Additionally, injection of botulinum toxin, contact lenses, electrical stimulation over the forehead, and acupuncture to the neck muscles has been reported to reduce nystagmus and improve vision in some patients. Please consult a neurologist for a better insight of your situation. Hope it helps.
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