MS and Seizure Symptoms

[Demetrious98]

Hello, my name is Demetrious. If I were to explain it, I would say I am having symptoms of MS (multiple sclerosis). I had an MRI and it came back clear. I had an EEG and that came back with no abnormalities.

I have no idea when my symptoms started but it got extremely worse.

My symptoms are as follows:
Headache
Dizziness
Confusion
Fatigue
Tremors in hands mostly but do happen in legs, arms, shoulder, and neck.Head shakes too.
Numbness (hands, feet, lower leg)
Leg spasms
Hard to grip with hands
Weakness
Difficulty walking
Joint pain (hips, knees, ankles, wrists, fingers, toes)
Joint instability. Can’t support weight. (knees)
Occasional sleep paralysis
Wake up from not breathing
Cloudy vision
Blurred vision in mornings
Choking on liquids
Cold hands and feet
Frequent urination
Chest pain (maybe asthma related but it seems different than asthma)
Trouble retaining information!!
Can't remember names or faces or things that people say.

I may be having abnormal abscence seizures as well as regular abscence and myclonic I think?
Bright rooms are horrible for me. During my EEG, the strobe light went off and I was twitching. The whole day after that was absolutely horrible.

I have been tested negative for:
B12 deficiency
Limes desease twice
Mono twice
Red blood count twice
Thyroid (as I already have hypothyrodism)
Autoimmune desease panel
Arthritis
Diabetes

If it is helpful, the medications I am taking are:
Levothyroxine
Camrese
Concerta
Luvox
Qvar
Singulair

I have a family history of Parkinson's and heart problems. I do not know a lot about my family's history.

Please help me find answers! I am at college and I can barely go to class without feeling like I'll pass out. Thank you for any help.

And yes, I am seeing doctors but even they are puzzled. Going to a neurologist soon. I am absolutely desperate.

[Demetrious98]

Thank you everyone for your responses. I have been seeing a neurologist and he isn't worried at all that MRI's show that my spine is crooked. I have a chiropractor, a second neurologist, and a rheumatologist (who are all taking me much more seriously).

I went to see a cardiologist and he said that my chest pain is most likely caused by inflammation, as my numbers are a little high anyway. So good, no heart problems!

I had a skin biopsy and I am waiting the response (it's been two weeks so I should get it soon). That is checking for small fiber neuropathy. Also, I'm being checked for JRA by blood work and X-Ray's. The rheumatologist was so sure that I have that so let's see! The X-Rays show basically inconclusive for arthritis but I'm waiting for the blood work too.

I have been taking 1800mg of Gabapentin a day and it had been helpful. It hasn't fixed me up though. I have no symptoms of absence seizures at all (and I honestly think that I may have been experiencing that from exhaustion anyway). Also, any twitching that I was (and am now more often) experiencing was really just insane muscle twitching.

Also, for an update, my added symptoms from before are:
Daily nosebleeds (not so bad but some days are really awful. Today it was literally water falling for ten minutes).
Muscles spasms (extremely painful).
Colder hands and feet (they burn in lukewarm water).
Pain in my back so bad that it is extremely difficult to move sometimes
I had a lump in my left breast that turned out normal in an ultrasound but now have a different type of lump that is pea-sized and hard. Also very painful and bruised (I didn't bump into anything).
Any other symptoms from before are almost all the same but some may be less intense.

Also, to clear confusion, I am transgender. Female bodied but still a guy. Any health information for female bodied individuals apply to me.

As you can tell, I was very desperate in my last posts and I still am but I have to learn to be patient, as it does take years for some people to get diagnosed with whatever is making them chronically ill. It's already been over 6 months... Thank you for your help.

[MCBCON]

All such occurrences can result due to MS, but there are other health issues can be a cause.

[supermum_ms]

There are MS myths, untypical MS stories and cure stories still going around, if you stick to MS research, the Mcdonald diagnostic criteria, basic MS facts and information from reputable MS sites you'll more likely not get as worried....Honestly, there will be the rare few diagnosed MSers who were diagnosed on their abnormal clinical signs, objective diagnostic evidence of lesion damage as well as their other suggestive/consistent test evidence and not their MRI evidence, MS is often diagnosed on more than just the MRI evidence.

It is definitely not the norm or even remotely common these days for MRI's to not find any type of lesions anywhere and keep in mind your symptom list is too extensive, just the number of different types of symptoms and the wide spread symptom pattern you are experiencing is untypical of MS, and to be all happening in someone young, MS would be even more unlikely to be at the top of the potential causation list.

I highly recommend you try to keep open minded and not focus on there being a neurological causation at this stage, it genuinely might not turn out to be any of the neurological conditions your worried about, you'll have a much better idea of what it could be once you've seen the neurologist and had your clinical exam......if researching is causing you to worry, please consider taking a brake from looking up medical conditions until you know for sure what it is your dealing with, otherwise you could end up worrying about medical conditions that you do not have.....breath!

let us know how you get on at your neurologist appointment......JJ

[supermum_ms]

Hi and welcome,

Your still in your teens so it's unlikely to be PPMS, the average diagnostic age is in the 40-50 age group because PPMS causes a 'slow' disease progression and it usually takes decades before the accumulative affects become evident. Theoretically for your age you'd still be withing the age range of pediatric MS, even rarer than PPMS but the diagnostic rules of RRMS would still apply....

Your clear MRI and entire list of symptoms is suggesting that its unlikely to be due to a neurological condition like MS, MS literally means many scars and the symptoms are caused by those brain and or spinal cord lesions (scars). RRMS doesn't typically 'present' with so many different types of issues, your symptoms are generally all over, in all peripherals, unrelated to MS etc and when there isn't any lesions, understandably conditions like MS become very unlikely.....basically there's far too much going on, your symptoms and symptom pattern, lack of lesions etc is not consistent or suggestive of MS so neurological conditions like MS would unlikely be at the top of your possible causes list.

You have a preexisting condition of hypothyroidism which may be the underlying cause of your symptom list, there's some thing like 300 symptoms associated with hypothyroidism. The most common cause is autoimmune thyroiditis which is also called Hashimoto's thyroiditis see... here http://hypothyroidmom.com/300-hypothyroidism-symptoms-yes-really/ ....for one site with the list, there are other hypothyroid related sites with symptom lists....most will also mention all the medical conditions with hypothyroid issues and whilst MS is on the list, but please keep in mind that many conditions cause similar/same symptoms as MS because MS affects the central nervous system and if there isn't the objective diagnostic evidence of MS, it's genuinely unlikely to be related to neurological conditions like MS.

I would also think it's unlikely to be related to "abnormal abscence seizures as well as regular abscence and myclonic" ....if your EEG was normal and you did experience what your thinking is seizure related during the test..."During my EEG, the strobe light went off and I was twitching"  the EEG would of shown all the abnormal neural activity happening at that time, it shouldn't of been normal if what your experiencing is seizure related. That's not to say what your experiencing isn't happening, just that if you experienced it during the test and the test was normal it's unlikely neurologically caused...

Try not to get too worried about any specific condition at this stage, once you've had your neurological assessment you'll have a much better idea if anything is neurologically abnormal or not, if your clinical signs are normal (which they'll more likely be if your MRI didn't find anything) it's more likely something other than a neurological condition and all help your dr's work out whats going on, the working it out can take a long time and a lot of tests, so try to look after your mental health and breath....

Hope that helps.......JJ

[Demetrious98]

Hello! Thank you for your reply. I did do a lot of research and heard that there are patients with MS with a normal MRI so that's why I'm so worried. Also, during the EEG, I know there weren't any absences because she had me do this thing where she asked me for a color and I had to say purple every time. It felt like what they call the myoclonic where you jerk and some say that things are too deep in the brain to be detected sometimes. I obviously don't want to be having seizures or prove a point but I have no idea what's going on or how to fix it.

The reason why I am suspecting these absences is because friends would say thing that I never recall and I drop things and I can hear them but I can't understand what they are saying and I can't reply. Last night, I tried to get up but fell and apparently sat there in that state in my friend's arms for like 30 seconds and I don't remember it at all. I have to ask for names constantly and how I met the person because I  can't remember who they are.

And I do have Hashimoto's already. Could that be causing such horrible things even though my levels are perfect?

Thank you.