MS or Fibromyalgia

[melo1224]

I've been diag with Fibro for 15 years however my symptoms have changed over the years and my Rhuematologist just says Fibro, Fibro, Fibro without ever really looking or listening to what's new. Also Diag with Interstitital Cycitis of Bladder. Here's a brief list of things that make me say hmm.
1 - electric pain shooting around my very painful body
2 - Burning skin patches, usually the same couple of spots flare up and don't want to wear clothes to touch my skin
3- Constant pain in my right side at ribs, feels like pressure between ribs
4- Seems my coordination is getting worse, balance, motor skill etc
5- Recent Gallbladder scan showed my kidneys have cortical thinning but kidney speciliast says function is good and can't explain the scan
6- Recent Colon Biopsy found high rate of Eosinophils (white blood cell) I tested negative for Celiac so doctor isn't sure what the cause is.
7- Have alot of stomach pain and inflammation
8- My vision is dirty, alot of floaters and never seem like I see clearly
9 - Eye doc says my blood vessels look restricted, retina specialist says retina looked okay but agreed vessels were restricted
10 - Many visits to 4 different heart doctors due to palpations, missed beat and spells where I feel faint
11- Miscarriages, tumors on ovary
12- I don't get any headaches but when I do they are fierce, eyeballs hurt and can't stand to move them
So what do you guys think? Should I try to see a Neurologist?

[melo1224]

thx Pam
I appreciate that very much. I will read up on Lyme, I have not considered that yet. I have people in my family with MS so I just kind of assume with my issues that it's my logical choice. However I need to stay open minded. I've seen soo many doctors I honestly dread having more tests! I'm still trying to have a 2nd child so I have a lot of things on hold right now. Ugh...the stress of being in pain and no one really seems to understand. Thanks again..xo

[drsdonthelp]

hi melo,
I am not dx'd with neither, but am currently going through a Lyme dr. for some testing. I thought for sooo long that all of my symptoms were ms related, and they still could be, but, I followed my gut, and my symptoms and they led me to lyme disease. I am not dx'd with that either, so I am probably not much help here, but they are so alike, and the standard tests do not always show positive.

Like I said, I have been on a mad hunt for 3 almost 4 years now with no answer. My MRI's are clear, and they pretty much clear me for having MS, but my symptoms , by the way, all sound just like yours.. From what I have learned, is lyme can make you miscarry, the spirochetes (little critters) can form into cysts and hide out.  It's always a good idea to keep a good record of all of your symptoms and create a timeline. I have two different ones, 1) is all the neurological symptoms and 2) is the multisystem one for the Lyme doc. I have a neuro. for my seizures and now see a lyme doc.. I have kept them seperate in this diagnosing process. Its very hard, but it's what you have to do.

You are in my thoughts and I hope you get the right doc. to help you.
Pam :)