Monica, it sounds like your neurologist is not serving you well at all. You deserve an explanation for memory loss and for the Sjogren's antibodies. I know neurologists can't explain everything, but it sounds like she's given up too easily and is not dealing with your issues.
I don't think the doctor's MS forum is taking questions anymore, and hasn't for a long time (as far as I know).
I can't figure out how to post on the Dr forum, can you help me?
Thank you everyone very much. Nancy, I probably didn't explain my situation well due to my cognitive difficulties. I had MRI, then LP to "rule out" MS which was "negative" except sky high sjogren's antibodies. Now the neurologist states nothing is wrong. She says there can be other causes for the spots on MRI, but I have NONe of the other potential causes and she can't answer why i have the spots then. I also asked since the spots represent white matter changes, could those changes be causing my memory loss even if not due to MS and she said no. I will get a second opinion, but will probably have to pay out of pocket according to my insurance.
Just to add my voice to the choir--second opinion!! from a different neurologist. If that first one didn't want to do any follow-up with an abnormal MRI, that seems VERY unusual. They should always do at least one follow-up. Memory loss is a serious thing. Have you had neuropsychological testing?
Good luck and keep us posted.
Nancy
that should be good luck and not goog luck. :-)
Many people here went through one, two, three and even more neuros before finding one who could see the big picture. I would move on for the next opinion.
Your MRI sounds like it needs to be looked at again - the areas mentioned can be prime hot spots for MS.
goog luck, Lulu
I agree with obtaining a second opinion. I did just this and each one of them has a completely different opinion. (Weird, being that they study the same thing in school, lol!) There are plenty of other tests that could and maybe should be ran.
Your MRI indicates that you still need a workup to eliminate MS as a diagnosis, or Sjogren's. Is the neurologist your regular doctor, or just somebody you were referred to? I would seek a second opinion - make sure you have your MRI results, blood tests and films.