Aa
MS?
Hello - I'm 52, but my symptoms started when I was 24 .
At that time I would get a "rug burn" sensation on a small area on my lower leg that would spread/move that by the end of the day would be up around my inner thigh. Pushing on it caused no pain, but rubbing on it would feel like a burn.
I would get these about every 3 months or so.
Here over the past few years, I now get these sensations that will start on my inner thigh and then move toward my peri-area, or on my right side and work toward my spine - those are the worst because when they come along, it also feels as if it will go into my ribs!
These typically will last a few days, but here lately have been lasting up to weeks. I am now experiencing moderate malaise - week and heavy feeling.
Also - these mostly happen on my right side. I have had 2 occasions when it was bilateral lower legs and one time on my left underarm.
All MRI's are negative, LP was negative, labs all negative, only positive decline was nerve conduction study.
I was placed on Neurontin... which has helped slow down the intensity, but my neurologist has discharged me because he has no clue.
He feels it may be MS, but is hesitant to diagnose me with it.
I need help, this is really starting to scare me.
Also, tonight my granddaughter was tickling my back with a feather and I noticed that my whole right side was super sensitive my muscles would bunch up in my lower cleft of my back and create an indent when she would run the feather down my right side or from my left side over my spine (electrical sensations) to my right side.....
What the heck!!
Any ideas?
At that time I would get a "rug burn" sensation on a small area on my lower leg that would spread/move that by the end of the day would be up around my inner thigh. Pushing on it caused no pain, but rubbing on it would feel like a burn.
I would get these about every 3 months or so.
Here over the past few years, I now get these sensations that will start on my inner thigh and then move toward my peri-area, or on my right side and work toward my spine - those are the worst because when they come along, it also feels as if it will go into my ribs!
These typically will last a few days, but here lately have been lasting up to weeks. I am now experiencing moderate malaise - week and heavy feeling.
Also - these mostly happen on my right side. I have had 2 occasions when it was bilateral lower legs and one time on my left underarm.
All MRI's are negative, LP was negative, labs all negative, only positive decline was nerve conduction study.
I was placed on Neurontin... which has helped slow down the intensity, but my neurologist has discharged me because he has no clue.
He feels it may be MS, but is hesitant to diagnose me with it.
I need help, this is really starting to scare me.
Also, tonight my granddaughter was tickling my back with a feather and I noticed that my whole right side was super sensitive my muscles would bunch up in my lower cleft of my back and create an indent when she would run the feather down my right side or from my left side over my spine (electrical sensations) to my right side.....
What the heck!!
Any ideas?
Hi TL - Welcome to our group.
The sensation you describe doesn't sound MSish to me. MS attacks individual locations in the central nervous system, rather than the CNS as a whole. Because these attacks are at specific locations the symptoms they cause tend not to move around.
For example I have neuropathic pain in my left foot. It doesn't move up my leg, nor does it sometimes effect my right foot. If your neuro is throwing his hands up, I think you should dismiss him :-) As ALex suggested, see if you can find an MS specialist if you want to rule it in or out.
Kyle
The sensation you describe doesn't sound MSish to me. MS attacks individual locations in the central nervous system, rather than the CNS as a whole. Because these attacks are at specific locations the symptoms they cause tend not to move around.
For example I have neuropathic pain in my left foot. It doesn't move up my leg, nor does it sometimes effect my right foot. If your neuro is throwing his hands up, I think you should dismiss him :-) As ALex suggested, see if you can find an MS specialist if you want to rule it in or out.
Kyle
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
