MY GP visit.. interesting...

[Wobbly]

I went to see my GP and he said well, it looks like we are even closer to MS Dx now...he received a copy of the Radiologist report I had last month...the MS Specialist will not give me a Dx yet as my LP and VEP are neg.  

He said it should be Dx but he can't give me it.. so I am now booked to see a Neuro Opthomologist next week and a MS Rehab person regarding my Leg not working right.. they hope this will give her some more info.

I don't have my hope up for any answers to my symptoms but the Amantadine is helping me with Fatigue.  I'm feeling better that way.  I also seem to have more balance now then before?? Not sure if its the meds or just because I'm feeling better at the moment.  I'm only taking one pill in the morning right now, if I take two I get way to confused and zoned out.  My husband says he notices a difference.  

I'll keep on searching, but realize that I might not get a Dxs at all and I'm glad the Dr is giving me some meds for pain and fatigue... hope everyone is well

take care
wobbly
undx

[Lulu54]

Hi wobbly,
I sure am glad to hear someone is listening to you - even if this doctor can't give you a dx, now you have more reassurance this is not a figment of your imagination.  

If you can at least be treated for the pain and fatigue, that is better than nothing - I'm glad you see it as a positivie.  You're going to get that dx one of these days....

Lulu

[sllowe]

Can you bring the McDonald criteria dx chart with you to the next appt. and ask the Dr. to highlight line by line with his findings in there? Clearly you don't need the LP and VEP to flag inorder to fit the criteria.

I'm sorry Wobbly, sorry for expressing frustration during a time where they are helping you get around better w/meds and PT.  I don't want to add fuel - It's just, I'm pulling for you so hard, and like you, want you treated treated for this disease. And, they are still dragging their feet.

((((hugs)))
shell

[kelbel3078]

I pray that you get answers soon.  I am in limbo myself and I know how frustrating it is.  It is bitter sweet.  You don't want something serious to be wrong with you, but you want a dx so that you can treat it and get on with your life.  

Good luck!

[PatHC]

Keep the faith you will get there very soon my friend, and we are all here for you.

Love
Pat
x

[Fluffysmom]

Hi there, I'm glad you're getting some relief from the pain and fatigue, and dizziness too.  

My GP also finally believes I have MS, sort of, and wants me to get treated, and sent my new MS neuro a referral letter stating that.  I'll just have to wait and see.

I'm kind of with Shell; you don't need a positive LP and VEP to get diagnosed!  Hopefully the neuro-opthalmologist and MS rehab person will have input that will sway the MS specialist in the right direction.

Hugs,

Kathy

[Wobbly]

thanks for the replies.. I see we all are in agreement with this and hope that one of these tests...or other specialists will find more answers..

I'll keep you updated too

take care
wobbly
undx

[uk2]

Great to hear they are treating you and your feeling better still cant understand why no dx but maybe these other appointments may give some more info.

take care sam

[ShadowsSister]

Hi There !!! Gosh I hope you can get more answers ASAP. It sounds like maybe your GP is on the right track. Could he possibly send you to a Neurosurgeon? I am asking because that was who gave me the DX 23 years ago. My Internist sent me to a Neurosurgeon he was the one who ordered all my test including the MRI. I just have NO FAITH in Neurologist,, if there are any of them reading this post, I'm sorry, I just haven't found a good one. and that isn't from the lack of trying.
Know that I am Praying for you Daily and sending you love filled hugs daily also
{{{~!~}}}