MY MARATHON OF DR. APPTS. WENT WELL

[young at heart]

I POSTED EARLIER THIS WEEK ABOUT THROWING IN THE TOWEL WITH ALL THE MEDS AND SO FORTH.

I SEEN MY PAIN DR. FIRST, WHAT AN AWESOME MAN.HE CAME INTO THE ROOM AND SHOOK MY HAND,HUGGED ME AND STATED HE AND HIS PARTNER WASN'T GONNA PUT ME THROUGH NO MORE HECK,BUT HE USED THE ACTUAL WORD.

WE TALKED FOR ABOUT 45 MINUTES AND HE WILL NOT DO THE RADIOFREQUENCY ABLASTATION ON THE RIGHT SIDE LUMBAR.THATS WHERE THE STEEL RODS ARE.HE SAID THERE'S DEFINATE SPASTICITY IN THE LEFT LEG AND DOES NOT WANT TO ELICIT THE RIGHT LEG SPASTICITY.

HE FEELS MY NEURO HAS EVERYTHING CONTROLLED BY MY MEDS. I ASK ABOUT TAPERING OFF THE MEDS AND HE STATED IN HIS PROFESSIONAL OPINION ,THAT AT THIS TIME IT WOULD NOT BE A BENIFIT,ITS TO MUCH OF A HEALTH RISK.

HE SAID HE COULD UNDERSTAND WHY I WOULD WANT TO TAPER OFF OF THEM,BUT WITH THE ADHESIVE ARACHNOIDITIS AND HAVING MS, THE SPASMS ARE CHRONIC AT THIS POINT DO TO THE AA BEING INFLAMED(BASICALLY IT FLAIRS UP JUST LIKE A MS ATTACK).

HE WANTS ME TO WAIT UNTIL THE AA CALMS DOWN AND THEN GIVE IT A TRY BUT VERY SLOWLY AND WITH CAUTION.

I ASK HIM ABOUT A TENS UNIT FOR THE SPASMS,HE SAID MANY MS PATIENTS HAVE GOTTEN RELEIF WITH A TENS UNIT,SO HE WROTE THE SCRIPT OUT FOR IT.

HE FEELS THAT HE HAS DONE ALL HE CAN AND HAS RELEASED ME BACK TO MY NEURO,BUT IF I FEEL MY NEURO IS NOT CONTROLLING THE PAIN THEN TO CALL HIM.I WISH ALL DRS. HAD HIS GENTLE NATURE.

I SEEN MY REHABILATATION DR. SHE AGREED WITH THE PAIN DR. ON THE MEDS, WE DISCUSSED MY LEG WEEKNESS AND THE ATROPHY,I EXPLAINED THAT I DON'T SIT AROUND AND SO FORTH.THE ATROPHY IS BECAUSE I HAVE TO USE THE LEG BRACES ,INORDER TO STAND UP RIGHT AND WALK.SHE'S NOW CONCERNED ABOUT THE LEFT LEG SWINGING OUT WARD, BUT DOESN'T WANT TO GO WITH A FULL LEFT LEG BRACE YET.

SHE WANTS ME TO GO TO PHYSICAL THERAPY AGAIN FOR A WHILE,I EXPLAINED THAT ALL THEY WANNA WORK ON IS BALANCE AND IT'S USELESS BECAUSE THEY DON'T FOLLOW THE DRS.SCRIPT.SHE WROTE IT OUT VERY DETAILED AND SAID IF THEY DON'T FOLLOW IT,JUST CALL HER. SO WE'LL GIVE IT A TRY.

THE REST OF THE DRS AGREED ABOUT THE MEDS,SO FOR NOW I GUESS I WILL STICK WITH THEM AND WAIT FOR THE INFLAMATION TO LEAVE.

THE APPOINTMENTS WERE VERY PRODUCTIVE AND I GOT THE CHANCE TO DISCUSS EVERYTHING FOR A CHANGE.SOMETIMES MY APPOINTMENTS GET RUSHED AND NOT EVERYTHING GETS SOLVED.

I JUST HAVE TO SEE MY MS SPECIALIST AT 4 TODAY,MY NEURO USUALLY TAKES CARE OF EVERYTHING BUT THE REBIF.IT'S BEEN A WHILE SINCE I HAVE SEEN MY MS SPECIALIST.---SHAME ON ME---.

SO IT'S BEEN A BUSY DAY BUT MY DRS. GOT TO HEAR MY IMPUT.I'M SO GLAD THAT IS DONE.

GOTTA GET SOMETHING TO EAT AND LEAVE FOR THE NEXT APPOINTMENT

T-LYNN

[young at heart]

YOUR ALL SUCH SWEETHEARTS,

I AM VERY FORTUNATE TO HAVE BEEN ABLE TO PUT THIS AWESOME TEAM TOGETHER.

WHAT IS GREAT IS THEY ALL CORRELATE WITH EACH OTHER AND ALL REPORTS GO BACK TO MY GP.

AT THIS POINT THE MEDS MUST STAY,BUT SOMEDAY I HOPE TO TAPER OFF THEM.ALL THE DRS. STATED THEY ARE THE MOST POWERFUL AVAILABLE TO TREAT THE SPASMS.

DILAUDID IS USUALLY USED IN A HOSPITAL SETTING,NOT PRESCRIBED OFTEN FOR HOME USE.

MS SPECIALIST APPOINTMENT WENT GREAT ALSO,I TALKED WITH HIM FOR OVER AN HOUR.

I WILL MAKE A SEPERATE POST ON THAT TOMORROW.

YOU  GUYS ARE GREAT

T-LYNN

[Lulu54]

GOOD FOR YOU TO HAVE A GOOD DAY - AT LEAST I'M HOPING YOUR FINAL APPOINTMENT WENT WELL TOO.  YOU SOUND SO MUCH BETTER THAN THE LAST POST I HAD READ - ISN'T IT AMAZING HOW FAR SIMPLE KINDNESS FROM A DOCTOR WILL CARRY US?

MY BEST TO YOU,
LULU

[Fluffysmom]

WOW, WHAT A PRODUCTIVE DAY!  

AND HOW GREAT THAT IT STARTED OUT WITH THE WONDERFULLY GENTLE AND CARING PAIN DOC, THEN KEPT GOING WITH EVERYONE AGREEING WITH HIM.  

AND THEN YOUR REHAB DOC MAKING SURE THE PHYSICAL THERAPISTS KNOW EXACTLY WHAT TO BE WORKING ON WITH YOU.

IT HELPS SO MUCH TO NOT BE RUSHED, TO FEEL LIKE YOU WERE HEARD AND UNDERSTOOD AND GETTING SOMETHING ACCOMPISHED.

I HOPE YOUR MS SPECIALIST APPT. IS AS GOOD IF NOT BETTER.

HUGS,

KATHY

[doni54]

HEY GAL, SOUNDS LIKE YOU HAD A PRODUCTIVE MORNING.  I REALLY AM GLAD.

YOU HAVE BEEN THROUGH SO MUCH IN THE TIME I'VE KNOWN YOU, IT IS TIME
YOU CATCH A BREAK.  

GOOD LUCK WITH THE EXERCISES, MAYBE THEY WILL FOLLOW THE DRS SCRIPT THIS TIME.

LET US KNOW WHAT THE MS SPECIALIST HAS TO SAY.

SENDING YOU HUGS AND PRAYERS.

LOVE
DONI

[monotreme]

HI  T-LYNN,
  
    I AM SO HAPPY THAT THE DOCTORS WERE NICE TO YOU AND HAVE YOUR

BEST INTEREST IN MIND.  YOU DESERVE THAT.  I AM ALSO GLAD THAT YOU

DECIDED TO STAY ON THE MEDS FOR NOW TOO.  I THINK OF YOU OFTEN AND

ALL THE HELP AND SUPPORT YOU HAVE ALWAYS GIVEN CRAIG AND I.  TAKE

CARE AND PLEASE KEEP IN TOUCH.  

ELAINE

[spastic]

HEY SWEETIE, I AM WITH RENA ON YOU STAYING ON YOUR MEDS.  I JUST DONT

WANT YOU TO BE IN ANYMORE PAIN.  I HAVE A TENS UNIT AND I LOVE IT.  

MAKE SURE WHEN THEY SET YOU UP FOR THE MACHINE, ASK FOR A BOX OF

CLEANING WIPES, IT KIND OF LEAVES THE SKIN A LITTLE STICKY BUT MAKES

THE ELECTRODE PADS STICK LONGER AND BETTER.  I GET ALL MY SUPPLIES

THROUGH EMPI, THEY HAVE AWESOME CUSTOMER SERVICE.  I REALLY HOPE

THE TENS UNIT WILL HELP YOU.  JUST DON'T PUT IT ON TEN AND SEE WHAT

HAPPENS....:)  

LOVE YA,

ADA

[Rena705]

WOW...SOUNDS AS THOUGH YOU HAVE ALL YOUR PROVERBIAL DUCKS IN A ROW AND I AM SOOO HAPPY FOR YOU!!!

YOU HAVE BEEN THROUGH SO MUCH BUT ACTUALLY I AM GLAD THAT THEY ADVISED YOU TO STAY ON THOSE MEDS...IF THEY DO TAKE DOWN THE INFLAMMATION ODDS ARE YOUR PAIN IS GOING SUBSIDE SOME (AT LEAST WE HOPE SO)!!

I AM HAPPY FOR YOU THAT YOU HAVE DOCTORS THAT ARE TAKING YOU SERIOUSLY AND SINCERELY SEEM TO WANT TO ENSURE THAT YOU ARE COMFORTABLE...LET'S HOPE THAT THIS CONTINUES AND THEY CAN GET YOU FEELING BETTER SOON OK?

LOTS OF HUGS,
RENA