Memory

[ChickenLips]

Hi everyone,

Do any of you have memory loss?  For example you are talking and then all of a sudden the next word you were going to say has left you.  Or you are talking and feel like you are having a stroke, your mouth feels numb and like it is not forming words correctly?

[yorkieville]

Yes, I forget words, use the wrong words, can't remember names. I feel like I've lost my ability to carrry on a normal conversation.

Sheila

[teenyturner]

Oh my,  other people with the same problem.

Also does anybody forget how to talk at all?  I can be in the middle of a sentence and I feel as if I have an explosion in my head and then I can't talk.  This usually only lasts 30 secs to a minute but it's really scary.  I can think properly but I feel kind of disconnected, as if I'm paralyzed or something.

Sometimes I can just be talking and right in the middle of a sentence I forget what I'm talking about.  Embarrassing!

I have never mentioned this to my neurologist because I thought I was just a tiny bit nuts, but maybe I should.  What do you think is this likely to be part of a disease process?

I have an unnamed neuro disease with spinal demyelination and cerebellar degeneration.  This has been confirmed by numerous MRIs and abnormal CSF.

[supermum_ms]

Yes!!!!

I first realised i was in trouble when i couldn't name my husband and kids, my mind was blank, simply gone but i knew exactly who they were and could of described their individual personalities, everything about them to minute detail, with out a problem at all. Just their names wiped out of my memory bank, I'd had years of forgetting peoples names, people i known for years and couldn't easily find excuses for but like everything else I still found a way to excuse it all.

I simply couldn't find anything to excuse loosing my families names though, it was probably the first thing to truely scare me, I was in trouble, yep big trouble. lol here i was walking like a human string puppet and it wasn't enough for me to recognise that it was my brain causing all the problems, loosing that woke me up. You see i'd been verbally gifted all my life lol talking, words were my thing, really my thing and they vanished. I soon realised that it wasn't just names but all nouns were lost, how weird is that?

lol i remember focusing on everything i'd ever learnt about cude articulation and speach therapy, knowing something would work if i kept my cool and not try to force the outcome. I could look at something and in my head i could name it but if i tried to say it aloud I just got that blank void or a slurred stuttered garbled word. I thought i was doing a good job of covering it up, but i started to notice my families faces when ever i got stuck or slurred stuttered a word out, but they like me were pretending i was fine, when really i wasn't.

lol its now just one of those things that gets semi better and when in relapse simply worse again, of course getting too tired or too hot brings it out temperarily like everything else but at least it settles back to base line again. I believe this for me has been the biggest transition, acceptance if you will. Communication is important but its more than just being unable to speak that i'm loosing, its my brains ability to connect thoughts into words, connect to people, i sometimes loose the ability to think and i simply dont want that to continue ahhhh but it will and again i'll reinvent the wheel!

HUGS...........JJ  

[KarenNadine]

This happens to me a lot lately.  

Also the numb lips and tingly tongue as mentioned by firebaum.  I havent been dx yet either so I am just sitting in limboland all frustrated.

Take care
x

[johnniebear]

On a resent trip when I parked in the parking deck I took a picture at the elevator  of level I parked on.
We I was leaving I couldnt recall if I parked on the decline or incline..  And  i did this a second time on the same trip.  

When i Forgetting words on the phone ,  I always blame that on the phone and ask  the person to repeat it.  I can get away with that excuse.

Take
Johnniebear

[tamiami]

Yes, this is quite possibly the most embarassing symptom of all. I too feel stupid but those who know me understand that it is part of the disease. When I am speaking in a new public forum where there are those who don't know my situation I am quick to apologize and explain my disease. I just remind myself that there are a whole lot worse things that could happen to me....and I too am blessed with a husband who fills in the blanks for me.

[Mike_Shuswap]

Unfortunatly yes. My wife will just fill in the word for me if she's around, or if what I'm trying to say makes any sense to her.

I do a simple crossword puzzle almost every day, and often I find I know the answer, but can't seem to form the word in my mind. Usually it'll come to me a bit later, but often I have to ask my wife for help.

It is very frustrating.

Mike

[sllowe]

Yes! And, Yes! It's so embarrassing and aggrevating.

[firebaum06]

Words leave me all the time!! Its so..stupid!! For lack of a better word =P
I do get the numb lips and tip of tongue but usually does not affect my speech.
I have no dx yet, so not sure what I can blame it on...but..i so feel your frustration!
Have a happy day!
Amy

[tingletingle]

Yes, big time. Only a moment ago I had to hop up from my chair and take a shuffle around to try to think of the word that describes the buying of goods for businesses.... ah hah.. procurement. I just have to be patient that's all.

So, I guess you're in the club, unfortunately.

Blessings
Alex

[cjldb]

YES!!!!! Read my post in your "Work" topic. I am a teacher and I have done this in class while teaching...it's so frustrating!