Migraine or ? MS or just a twitchy eye.

[Udkas]

Hi there,
As most of you know I have migraines and Transverse Myelitis and TM can reoccur and can sometimes change over and be the beginning of MS.

Well my latest symptom I think is migraine but it is very annoying and I wonder as I am finding it very difficult to differentiate between migraine and "new attack" etc. The latest thing is underneath my eye is twitching most of the day that it makes my vision jumpy, like one of those old black and white movies that jump, flicky.  It is driving me insane and it won't go away, it is affecting my vision, I will have it for an hour or two then it will pass then it will come back for another hour etc., I have also had migraine, pins and needles in my feet, hands, burning in and around my bra strap, shooting nerve pains in my legs.  I am sure the whole lot is prob migraine but then sometimes I am not so sure.  Symptoms have been bad since I come out of hospital, can anesethetic do anything to you in regards to MS etc?

I thought perhaps my eye thing was tiredness, so I have had plenty of sleep but it is still there, but I must admit at the moment I feel tired too.  I am pleased to report my burning in my privates seems to have settled, but I am still uncertain if the dilatation has done the trick or if it is just neurological and gone away for a bit.

any thoughts welcome, I know that nervous conditions can cause twitching of lids etc. too and eyebrow this is the lower part of the eye, underneath where you would put eye liner.

Cheers,
Udkas

[jensequitur]

I think because of all the white matter in the head, that it's pretty common to have symptoms in that area.  It's #1 for me when it comes to recurring or existing symptoms.  My eyelid used to twitch on the right side, and it's twitched below the eye as well.  

[Deb61]

The pain of migraine occurs when excited brain cells trigger the trigeminal nerve to release chemicals that irritate and cause swelling of blood vessels on the surface of the brain. These swollen blood vessels send pain signals to the brainstem.  So, I think that MS and migraines are connected.  

I get migraines, too.  I found that after cutting out caffeine, that they are much better.  I still get them, but they aren't as frequent or severe.  

I also have the under the eye twitching symptom.  I don't know if there's connection with MS or not, but I have MS and I have had this twitching problem, too.  I have noticed that when some of other MS symptoms quietened down, the under the eye twitching thing did also.  I did have ON during this time period.  However, I haven't any idea about a connection with ON.  I really doubt it.  I also was having trouble with my eyes crossing--especially in the morning and in the evening.  Plus, everything was doubled.  It was so bad, that I was talking with the doctor about prisms for my glasses.  That symptom is gone, thankfully.

With MS, you get lots of weird symptoms like this. Eventually, you start questioning others to see if it's normal or not.  Can you believe that I had to ask someone if the eye crossing thing was normal?  I lived with the problem so long that I thought everyone's eyes crossed in the morning because they were just tired.

[Udkas]

Hi Jon,
I can imagine if you are not expecting a diagnosis and know very little about MS it would come as a big shock and then you would not be so prepared to ask the questions.  Most people on here seem to have had such a drawn out process for diagnosis that they have suspected it and researched it a bit before they have received it.

On this forum there are some very well written health pages, you click on the icon in the top right hand corner.  Most of these pages have been written by Quix who is a retired Pedeatrician (sorry I know I have spelt that wrong) who also is dealing with MS. The pages are easy to read and very informative.  

This forum is made up of people with Definate MS and people who have MS like symptoms (limbo landers) but it is a great place to gain info, share experiences and be honest and open without judgement.

Welcome, I am sorry that your neuro has no communication skills, they must miss that part out at neuro school!  But I am one of the lucky ones as mine is fantastic, but I hear that is a rare find.

Well I had best tootle off to work and Drs,

Cheers,
Udkas.

[JonGalt]

Unfortunatly I don't know much about MS and at my last appointment with my neuro when he said I definitly have MS I was off gaurd!  I didn't ask any questions, and the neuro having such high level of communication skills (ha ha) he didn't tell me anything except if the symptoms reoccur come back to see him.  All I really know is I have 3 leisions.  I am still in denial about the whole thing; however, I am starting to beleive possibly because I am recognizing symptoms more.  I just thought everyone had twitches, tingles, heavy feet, fatigue, depression, etc. :)

[Udkas]

Thanks for the reply,
I will talk to my GP about it all today as I am fed up, I plan to take some migraine meds and see how I go, I do suspect the eye thing is migraine but my nerves are up the wack anyway and I am so damn confused about my migraines and my symptoms!  Are my migraines just making my symptoms worse or are my symptoms migraine aura.

So Jon you have recently been diagnosed with MS?  Do you mind if I ask where your lesions are as my neuro says thoracic and brainstem for me and I get so much facial stuff as well as numbness etc.

By the way welcome to the MS forum, i find lately that I have been so confused that it's a good place for me to vent and think out loud and people care and listen and understand because they are experiencing the same.

Take care,
Thanks for the reply.  Any other opinions welcome.

[JonGalt]

My eye twitches constantly,  it's my bottom left eyelid.  It twitched for about 2 months and I attributed to caffiene, but giving up caffiene made no difference.  Then it just went away.   It comes back every once it a while but very infrequently now.  Sorry I am of no help, but hopefully it will go away soon, it was very annoying.

[saveone]

Udkas I have no idea, but I am going to bump this up.  The forum has been really busy.

Maybe someone will know something.

terry