Missing in Action...where are youuuu????

[Rena705]

Ok...I have put out APB's on people in the past but I started going through the member list today (boring Saturday) and WOW...are we ever missing some people!  I have compiled a list of a some that I recall although I am sure that I have missed more than a few being that I have not much of a memory.  The following are MIA and if they could kindly pop in and give us a general update on how they are doing, what they are doing, are they still in limboland or if they are diagnosed are they being treated with DMD's?  Some I am sure have left the forum because they either didn't get the message from Quix that they are not allowed to leave but other's I am sure have left because either they haven't gotten a diagnosis or they have and are doing great!  Either way I think it would be really nice to touch base with a few of the missing and I hope everyone agrees with me here...

The following are the missing that I recall so far...if you have any to add, go ahead...

Ray911
akCowboy
AmishErin
yrunml
ohwild
Turde_53
Farrahlicious
crswin
Shelljell
dancefanatic
cat1203
MrsAristotle
Oldroser
tonyad
funnyface69
margaretta
loverofdogs
av8rgirl
Charley123
RamsInfiniti
cleo77
Nerve_Wrecked
MrsMeunier
luverofrogs
Pinto440
challengecase
MCBCON
wingnut19
Jason732
gollie
willowwoman
verafromhongkong
grannyhotwheels
speechgeek
jazzyfizzle
spankyandrex
RIDDICK_777
cherby
...and many more but I will keep looking.  If anyone know something about these MIA's, please let us know will ya?  It just seems that some of these people have dropped out with no explanation and I hope that they are all well and even if they are they are still welcome to check in occasionally.  I look forward to hearing a few replies at least!   Are you aware that there are currently 783 members past and present on the MS Forum?  Considering I only posted 38 names...there are a lot of us out there isn't there...it's a little overwhelming and puts a HUGE lump in my throat!

Lots of Hugs,

Rena

[Rena705]

Hi and welcome back!  I am so glad to hear that the Copaxone is doing good things and I hope it continues to do so for you!  Please know that you are always welcome to pop in and say hi...it's good to hear some positives once in a while...makes the rest of us that are struggling believe that there is some hope out there!  I am sure I am not the only one that feels this way and thank you for coming in and saying hi!

Lots of Hugs,
Rena

[loverofdogs]

Hi Rena;  I'm  not missing, just not posting. I look at this site at least 4 times a week, just have not responded, i dont know why, i guess maybe i felt like I really did not have anything to add. I should not feel that why because i relate to so many of the posts. I went through 12 yrs of miss diagnoses before the dr.'s finally realized I had m.s. .  That was three years ago and five MRI's. The outcome was that yah, Ive had this disease a long time, I have about 15 lesions on my brain and several in the spine which is causing all kinds of fun.  I have   the same aches and pains, numbness, fatigue, bladder / bowel problems that  so many of you talk about. I can truly relate. I also have bulging disks in my lower spine, one hip higher that the other caused by the curvature of my spine and last year i was diagnosed with another autoimmune disease ; Interstitial Cystitis (which is disease of the bladder).  

The good news is that my last MRI showed no new damage, so the Copaxone that I have been taking the past two years must be doing it's job.  I really try to steer away from meds. only taking the Copaxone and sometimes vicodin for my back and leg pain.  

I wake up every day and thank god, as this could be worse.  I am still able to take care of myself, my dogs and my teenage son. I was taken off of work last December due to cognitive issues and other ms stuff. I am now on full disability and medicare/medicaid. It has been one heck of ride the past three years, lots of changes and stress with all the medical insurance, disability and the illness itself. I, like all of you have good days and bad. sometimes if feel like a complete idiot and other days i feel normal (just a little bit of an idiot.)  

I pray for all of you who are still waiting to find out what the heck is wrong. Dont ever give up.

[Rena705]

Hey Chick...sorry I didn't have your name on the list but out of 700 and some...I have a ways to go yet! he he..Good to hear from you though and I can well imagine that there is a bit of excitement around your house...let us know if burbanbaby is a boy or girl when the time comes will ya?  Hope you will continue to pop in from time to time...nice to know how our members are making out!

Lots of Hugs,

Rena

[burbanchick]

Not on the list, but have been MIA for a long time!  We're still here...both me and burbandude!  Busy as can be!  We are preparing for the arrival of burbanbaby in 2 months!  

Something about this group you can't stay away for long!  I'm sure all the MIA's will eventually find their way back!

~Chick

[sllowe]

Everyone is doing a great job reaching out, and I'm so glad to read these updates.

We'll have to keep this on the 1st page for a bit...

-Shell

[Rena705]

bump

[crswin]

Hi all,
I am still here, but have stepped away to deal with all of the medical mess that has happened over the summer.
Here is an update:
Well, my husband has gotten more understanding and realizes that he can't fix the unknown.  I am feeling better in terms of the dibilitating pain, but still have good and bad days.  Some days I just ache- my back, neck- you name it.  I get the shooting neck pains more often than I care to count in a day.  Sometimes it is a shooting pain- sometimes dull.  I have not been to the doc since the beginning of August, partly due to frusteration and lack of answers, but mostly due the the high cost of 'I don't know' and "wait and see" answers.  At my last appointment I was told that they will watch the spots on my brain and the bumps on my cspine.  They have not reached the level to solidify an MS diagnosis- if that is what this is.  They did not want to redo a spinal to see if the proteins in my fluid were still elevated as they were 6 years ago- thank goodness.  
I take ibuprophen ONLY and wait- it handles the pain or at least makes it tolerable.  At only 31 years old with a 16 month old daughter, I do not like to feel down.  I often find that I exceed my physical limitations and later regret it, but I just want to be pain free so badly that I keep on keeping on!  I really appreciate you checking in on me.  Today was really one of those days when I could use the support.

Thank you for thinking of me.  I think that God knew that I needed a boost today- thank you!
Crystal

[Rena705]

Well I just got an email from our friend crswin (Crystal) and she wants to let us know that she hasn't been to a dr. since the beginning of August due not only to frustration and lack of answers but also because of the high cost of "I don't know" and "wait and see".  She is controlling her pain somewhat with Ibuprofen and is trying to keep on keepin' on as she put it.  She is busy with her 16 month old baby.  She stated that she was having one of those days when she needed support and appreciated that I  checked in on her...she said, and I quote, "I think that God knew that I needed a boost today- thank you! "

So...I think the proof is in the pudding that it might be a good idea to try to look up a few of the silent members in our midst don't you?  I am going to keep but will not send any more notes until Tuesday...perhaps someone else would like to  help sending some messages??? Let me know if you think we should continue with this ok?>

Lots of Hugs,

Rena

[Rena705]

HEY HONEY...I CAN REMEMBER WHEN I JUST STARTED AND YOU WERE MY

MENTOR AND I SURE APPRECIATED THAT!  I THINK THAT THIS WON'T

HURT...ALTHOUGH A BIT OF WORK...I CAN SEND OUT 20 OR SO MESSAGES

EVERY DAY AND SEE WHAT COMES BACK.

I AM GLAD YOU HAVE CHECKED IN THOUGH HONEY...I KNEW YOU WERE NOT MISSING THOUGH...YER JEST ONE OF DEM LURKERS AIN'T YA?? TEE HEE

HUGS,
RENA

[young at heart]

I'M JUST CHECKING IN BEFORE I GET PUT ON THE MIA LIST.

I REMEMBER WHEN THIS FORUM STARTED AND THERE WAS ONLY 7 OR 8 OF US BOY HAVE WE GROWN.

HOPE ALL IS WELL WITH OUR MIA'S

T-LYNN

[Rena705]

Well I sent a message to JoeAnthony yesterday and he said " I am on Rebif now 3 times a week for my MS. It's been hard for me to really say I have MS. I'm working/driving and thing's r back on track for me. Now I just take my shots and live my life day by day,...I have no disablty's as of now and I feel fine ...and I hope it will stay this way for the rest of my life, but you never know with MS!"
He sends his best wishes to everyone and hopes everyone is well!

So that said, I think that sending messages might be a good idea???

However, how do you decide who to send to...there are 7hundred and some active and past members...do we just do the list of the ones that I have known since Nov. 07 or do we all take a bunch....have I opened a can or worms or what? hehe

Let me know what you think....I am going to start with Ray911 and end with dancefanatic and see what happens ok...I will let you know and we can take if from there ok?

Rena

[doni54]

Yes, what a great idea, Rena. I hope all of them are doing well and would love for them to come back to see us.  

Like Deb, I have been worried about legendary50.  I know she had to evacuate during IKE, hope they are okay.

doni

[sllowe]

My gosh! Yes! Most of the above members were quite regular in the past.

Any takers on breaking up the list into handfuls and sending notes to these members?  Incase they don't see this thread?

Just a thought, that way, they'd be alerted that we are thinking about them and hope they are well.

-Shell

[Rena705]

Yep...I have added them to the list.  

Rena

[Deb61]

I'm wondering about Legendary50.  The last we heard from her it was before Hurricane Ike and she lived just out of Galveston.  

I hope she's okay!!!!

Deb

[yorkieville]

Hi, Rena.

Add crystaly to the MIA list. She's from the United Kingdom and used to post often.

That is an awful lot of MIA's and it makes me worry if they are ok.

By the way, I think you are awesome to notice so many MIA's. It really touches my heart to know we are missed when we are not here.

So many weeks go by, when I am in too much pain to sit up and type, and it always helps me when I return and no one has forgotten me.

Hugs,
Sheila

[Rena705]

yep...how can you tell hehe...but I really would like to know the stories on these people...we get so involved with our members and then *poof* they are gone...where???

Hugs,
Rena

[Wobbly]

Wow...that's alot of people...

quiet weekend for you Rena??  

well.. I hope your doing well..

take care
wobbly