Mitoxantrone

Anyone had Mitoxantrone as part of their treatment? if so how well did it work?

[sllowe]

Hi Suzie,

Only thing I know about it is that it's not used for RRMS.  Only person I can think of who is experienced is 'funmonkeytoes.' Though I've not seen her but and I hope she is ok.  I'll hit her up her up and see how she is making out.

ttys,
shell  

[meme56]

My son is currently on mitoxantrone treatment. He has had approx. 6 rounds of it so far. They also give it to him in conjunction with prednisone. HE goes every 3 months to an infusion center to have it administered. It is done through IV's and so far other than a little nausea, which they give him meds for he has done pretty well on it. HE hasn't had an exasperbation in 16 months. He normally has one about every 8 months, so we thinks this is really good. The last one he had was so bad he had to be carried to the hospital in an ambulance, because he couldn't stand up or walk at all. Through 3 weeks of rehab and the mioxantrone treatments and prednisone he is now walking again even without a walker most of the time. We had tried other treatments and none of them had worked. Denny is 34 and totally disabled at this point. The problem is he will only be able to get 3 to 4 more treatments and we don't know what we will do at that point. So I guess we are in a wait and see after this.

[Suzie9]

Thank you for your replies.

meme56, Do you know how much your son gets of mitoxantrone at each session? Also, does his neuro intend to have him back on his previous treatment such has rebif or Avonex when his treatment with Mitoxantrone is finished?