Stary - OH MY! Good for you to push through those walls to get your daughter what she needed. I hope all heals well, and she's back on her feet again - can't imagine.
Granny - oh yea, I'm up for a couple adult drinks!
Meg - let us know what's going on with that chest X-ray - I hope the pnemonia is gone~
DB! Oooh, though you are so tired this sounds like the perfect medicine for you, hub, and fustzy poodle, lol Be safe in your travels friend.
Congrats to you and baby boy - it sure does fly.
My update! I have to say personally, the well wishes, and support does matter from all of you! I spoke to someone who brought great perspective to my current situation. I'm working hard on keeping "parenting" and "mom" very much separate. When sh it hits the fan, it's easy to get it all jumbled together and from there your left in turmoil.
So, today is a brighter day for me :) Thank you all so much for all you gave me, and for all you give one another when we desperately need it most.
xoxoxo
-Shell
My big excitement for this week is that my youngest has his first day of Montessori this week. I can't believe he it! They grow up so quick!
I am still waiting to see some improvement after my round of solumedrol. I suppose I should call my neuro to give him an update.
Bright Blessings,
April
Sorry to hear of all the kid-related stress going on - Shell, Carol and Kristy. I couldn't handle it as well as you all seem to, hence why I didn't have any. I'd be a basket case for sure!
I'm still off work and though I'm still feelng the effects of my recent relapse, exhausted and uncomfortable most of the time, we have decided to go ahead with our trip to the east coast. My husband is in dire need of a break from work, and I'm in dire need of a change of scenery as these four walls are starting to close in on me. We are renting a car and traveling around Nova Scotia and PEI to visit various assorted friends and relatives. The thought of it is a little overwhelming to me but as he will be doing all the driving and as long as the car has AC, I will just have to deal and take it a day at a time. I haven't been back in 3 years and do look forward to seeing everyone. I won't be doing anything strenuous like the river rafting one friend suggested. I wouldn't mind sailing though, it the sea isn't too rough and if I'm having a good day. I'm always happiest when I'm near the ocean.
So this week will be spent getting organized, doing laundry, packing and getting the house ready for the dogsitter. It's not aso overwhelming when I do a little bit each day.
Gotta go calm the nerves of my standard poodle. She is fussing and fretting over the thunder. Feels like we're in for another downpour.
I am just going for a chest x-ray today..I am so sorry some of you dealing with your kids, that is the worst kind of pain ..
hugs , meg
Shell, forget the beer lets go straight for the hard stuff...hahaha... Kristi, I'm so sorry about your daughter... Nothing worse than seeing one of your kids in pain and you can't fix it... Saying prayers for you and her...
Carol
Well it's been about the most stressful and upsetting week I've ever experienced. My daughter had a horrible skateboard accident that broke her leg and ankle in 4 places. She had surgery last Thurs, the surgery took 2 x longer than they expected due to the damage. When she came to, she was screaming in pain. I saw the nurse give her at least 8 shots of Fentanyl and Morphine but nothing helped. The anesthesiologist finally came in and did a nerve block on her leg and she didn't feel anything.
When I took her home the next day her leg was still numb but by that night it came back to life and she was in absolute pain. I couldn't get the pain under control so I took her to the ER where the Dr treated her soo badly. He wouldn't give her pain meds. He kept saying to give her Oxycodone which I was doing at home and it wasn't working...
After 9 hrs in the ER, they finally found a med combination that worked with her pain. She was exhausted and I was literally Ill after it was over.
She gets her hard cast put on on Monday. My husband leaves today for 3 weeks and it's difficult to do these things by myself. It's hard to get her in her wheelchair and to her appts.
So, it's been a tough few weeks and hopefully we are past the hardest part.
I have court for my disability in 2 weeks and I am stressed about that. Just a lot going on right now..I would love for things to slow down.
Take care everyone!!
Kristi
Msibs,
Good luck with your appt. Wishing you well with the pump so you can get some relief!
Enjoy your family return :)
Bairdy, that vaca sounded awesome - I want one :)
Hope your brother gets in, Kell. I'll say an extra prayer.
PT Lisa-girl :) I know you made the best of it, thought they probably worked you over :(
Oji and Lu - send the east coast some of that cool air, would ya!
Granny - oh, my, wanna split a 12 pack, lol Seriously, I feel for ya. aaah
T-tingle! Dang! Order me up some of that decadence, and your so supportive to boot - all the more fab. Glad injections are going off w/out a hitch.
Thank you all much for your support, well wishes, and good thoughts. Need all the lift I can get right about now.
-Shell
Tomorrow I'm going with my brother to his oncology appt. We're still waiting to see if he can get in to the Mayo Clinic in Rochester, MN.
Later that day I have a follow-up visit with my neuro.
Besides these appts, I'll be working all week trying to learn new software tools for hydrological flattening with geographic information systems (GIS).
Carol & Shell I'll be sending good thoughts your way.
-Kelly
hi shell
got back from our weeks holiday in devon on sunday it was fab appart from having to use a wheelchair for first time it felt so strange being pushed by my wife lol
just getting over very bad hip and back pain iv had for five weeks thank god!!!! i could bearly walk more than ten yards
and today just had the assesor out for the final check before they get on with installing my stair lift ??
other than that back to normal exept for my children being on summer brake from school for another four weeks!!! god help us lol
hope you are all well as can be
regards bairdy
Shell and Granny...I'll be praying for both of you. It sounds like you have a lot of stress.
I just finished teaching summer school and it was nice not to get up for work this morning. I have been very lazy about my meds and other things. Trying to get myself to be more disciplined.
I'm glad that our heat wave seems to be over. I have lots to do at home and all I wanted to do during the hot spell was sleep.
Neuro visit today - saw the MS nurse and plotting some changes in my treatment plan. We;ll reevaluate it in a few months.
Tomorrow an MS lunch - the sponsor is novartis, who makes Gilenya. I'm curious to hear this talk since I don't know a lot about this first oral DMD.
In the afternoon I have a massage :-)
Lunch with a long time friend on Thursday.
I'm very thankful the weather has broken and the temps are quite a bit cooler for my final week off work. Back to the routine starting next Tuesday. :-(
Just more of the same here...Shell, I so understand about the young folk out there... Dealing with a pretty stressful situations in my home right now that I would really appreciate a few prayers for...
My 17 yr old son is fixing to be a daddy... The due date is the 21st of this month... Sarah (the mommy to be) is a wonderful young lady who will be starting her first year of college in January...
My son is starting his junior year of high school... He is very emotional about everything and I've quit asking if there together or not any more because I usually get yelled at if I do ask...
Sarah is at our house almost every day... She doesn't have a close relationship with her mother so she comes to me for all the pregnancy advice and the stressful part is she also comes to me for advice about my son...
This puts me in a very awkward situation... One day they love each other, the next day they hate each other, and the final day they are best friends having a baby together... Both are so very immature...
Any way I'm sorry about talking your ear off but I needed to talk to someone about it... It's driving me nuts trying to make both sides happy and still so concerned about my grand-baby that's coming very soon...
Please say a prayer for these kids and for me...
Carol
Just a relaxing week at work. I'm settling into my new daily morning routine of injecting and very pleased that the sting has subsided from a hive of bees to now just one bee.
The big news is that my wife is going away on Friday for her twice yearly decadent long weekend with her 7 girlfriends. The preparations are always huge - dieting for the last month, hairdresser, nails, makeup, new clothes, sunglasses, waxing, the works! Then, they spend the long weekend eating and drinking the most delicious, gorgeous foods that money can buy, staying in luxury apartments with amazing views of the beautiful countryside and talking non stop. I once turned up briefly and witnessed an unbelievable amount of noise and colour eminating from their group. It was like each girl was talking all at once with a glass in hand. Recession? Good times aplenty!
Blessings
Alex
My girls come back today, they have been with their dad for weeks so I'm very excited.
Having a drug pump put in sometime in the coming months because of back injury, appointment about that this week.
New nephew keeps trying to leave the oven even though he isn't baked through yet so I'm on sister- watch.
Otherwise its all about avoiding the heat. Hope everyone has a good week.
Making an appointment with PT. Exciting eh?
Hey, when things become emotionally overwhelming, that you can't seem to use your own coping mechanisms to get through it, then it is time to go see a doc who can help you through it.
I do know you will get through it -- we always do no matter how bad it seems.
Lisa