I think I am in need of more opinions and encouragement. It's possible the encouragement is more of what I seek! :)
I'm in what you all call "limbo land" with no diagnosis, though my body and my heart tell me SOMETHING is definitely going on. This is the only place I feel truly understood- as you all know, it's terribly frustrating when you know something is wrong and you are dismissed by doctors and the people in your life have a hard time understanding why you are tired or there's some physical something going on all the time...even though the doctors can't find anything wrong.
It can make even the strongest person feel a little crazy.
I'm divorced. My 12 year old daughter spends half her time at my house and half at her dad's house, who just remarried. Apparently my daughter told her stepmom how much I sleep and was told that I am depressed. I work so hard to be physically the best I can be for my kids, but my lifestyle has positively changed over the last two years. The fatigue is terrible. But I'm not depressed. I don't WANT to sleep all the time... my body is just SO exhausted some days....you might be able to relate.
Anyways, I'm trying to stay focused on getting a diagnosis. I have requested a copy of my medical records to look at myself and I'm currently waiting on a referral for a second opinion with a university neurology department.
In the meantime, I have a few questions about my most recent symptoms. I had surgery in November for incontinence- had a bladder suspension. It seemed to have been effective at first. About a month ago I started feeling like I had an infection...like I had to pee all the time. But I didn't have an infection. It has continued- I feel like I have to go almost all the time.... I go very frequently, especially at night and it hurts, especially at night, like the pain you feel when you are holding it (except I just went). Twice in the past several days I've had the incontinence again, I would call it stress... while running or laughing but lost urine, which is what the surgery was supposed to have corrected. :(
And since I have absolutely no shame anymore :) I had a rectocele too....I'm noticing it seems like I really am not aware when I need to have bowel movement. When I go in the bathroom to have one, I am not always aware that I am going to have one when I go in... I don't recall that being normal in the past... is it??
Do these things sound neurological to you "experts"??