Thanks, my friends. I've tried the tonic water, Moke, ewwwwwwwwwww........it is awful!!! Just couldn't take much of that taste!!! I guess it's the quinine?
I've got plans for seeing a dr when we get all done with all this with Beth. If I can't find a way to get the MRI, I'm at least going to ask for meds for the spasms and the fatigue. All she can say is NO!!
Praying for all of you to be spasm free and feeling good!! Have a great weekend!!!
Great to hear from you penn, I've been missing you!!!
Love & Hugs
doni
Hon, with all that you have going on right now, I don't imagine that it is helping with your spasms. You are stressed and that added stress will probably make the spasms worse. I too get them but not as severe as the rest of you and my daddy had spoken to the ER doc about them (he was supposed to be there for himself, sheesh Dad's) he suggested I try to drink Tonic Water daily to see if that would help. It tastes yucky, blechy, gross but I have been doing it and I think it has helped. Just a thought.
Praying you get some relief soon hon,
Your batty friend
Moki
Hi, doni.
Sweetie, I'm sorry you're suffering with spasms. I get them and they are miserable...until I began taking 2 MG of Diazepam (generic Valium) every 6 hours round the clock.
Do you think your doctor would prescribe it?
Hugs,
Sheila
I so sorry to hear you've joined tha spaz party. Mine too have been unbearable lately - I feel like a giant walking boulder much of time and still have horrible spasms that last a long time too. I take baclofen 4X a day. It may sound like it doesn't work, but my doc took me off at one point and it was MUCH worse.
Mine occur in different areas too, sometimes at once, sometimes a few minutes apart. My legs "roll" from muscle to adjacent muscle nearly all around the leg. Lasts quite long. It doesn't make sense to me eother - just wanted you to know you're not alone.
I'm never sure of the whole accurate terminology thing (you'd think I could keep it straight since its my primary PIA). Do you have any appts coming up? I keep joking that I wil be limber as a minx next Thursday for my appt with the dyskinesia doc! Or they'll cancel again and I'll go postal, lol!
If he can do so without me whacking him (mine hurt to touch much of the time too) and I can stand the pain of touch, my DH will rub Icy Hot on it, then we'll wrap it in a heating pad. This process hurts very much due to the touching, but it cuts the duration and recovery down a good bit.
Sorry can't be very helpful, but you'r ein my prayers as always. Be well, my friend.
Hugs between spasms,
Penn
I'm so sorry your having a rough time. I know exactly what your talking about. My spasms like to change spots throughout the day but it prefers my left side. I do get spasms in my right leg but nothing compared to the left.Sometimes the muscle will be so stiff, it will look like I'm flexing my muscle. It constantly stays in that flexed state.
Are you on any medication for your spasms? If not, you really need to be. I get some relief from Baclofen. It is a CNS muscle relaxer. It takes away the muscle spasms and relieves the spasticity.
I would call your doctor if this keeps up. It's no fun being in pain.