I have Mixed Connective Tissue Disease, which encompasses lupus, RA, scleroderma and other illnesses. Plus, I was diagnosed with Crest Syndrome, and scoliosis of my spine. At first the doctors thought it was just lupus, but then fibromyalgia, now they are diagnosing me with those illnesses, listed above. My symptoms are the same as yours. I can't sleep, too much pressure from my mattress. My hands hurt all the time, even when trying to put one on top of the other, on my lap. I believe this is because scleroderma is stretching my skin so tightly, it also will thicken the walls of your organs. My feet hurt like yours, actually my entire body is in pain, extreme pain. So, I think you should ask your doctor about either fibromyalgia or Mixed Connective Tissue Disease. Now, there's one thing, don't let them just take one blood tests. Doctor written websites, like the Mayo Clinic and WebMD, will state that not all blood tests will come out positive for ANA results, which makes it hard for doctors to diagnose chronic pain patients. Some doctors will only take one blood test and let it go saying there's nothing wrong with you. Don't let them. Insists on more testing. If you can get an MRI. I couldn't because I am on a low disability income, and my doctor said it "would cost the taxpayers money," forgetting I am a taxpayer too! So, keep insisting you get tested many times.
I know exactly what you are going through, it has ruined my life, and what's worse, the DEA has decided to include honest patients, doctors and pharmacies, in their little "War on Drugs," so now we are all oppressed and not getting the medications, we need for a normal, pain free life. We are not drug abusers, we don't get high on our medications, for it is used only towards the pain. So, I hope you find a doctor who will still help you. Most of my doctors have disappeared, some have lost their licenses, trying to help honest patients.
I wrote a petition, to help the 100+million sufferers, of chronic pain, to get the word out, we are not drug abusers, we are in pain and we need help. Don't treat us like the smugglers, the dishonest sellers and the cartels. We have a right to live close to a normal life. Animals are treated more humanely than we are.
Please, for your sake and for everyone who is suffering some kind of pain, that won't go away, go to this link and sign my petition. Maybe the non-sufferers will stop judging us and will understand our extreme suffering.
Admin, please don't delete this link, it is not in competition with your site. It is only to help all of us, 100+millions of sufferers who are loosing their doctors and medications because of ignorant, non-suffering government officials and the DEA.
Here is that link, please join me, in case you end up like I am, or you have a loved one who will or is suffering.
http://petitions.moveon.org/sign/stop-the-judgement-of?source=c.em.cp&r_by=10582339
Thank you for reading my reply/post...
May God Bless you and help you...
Always
I was DX 17 years ago with MS, it wasn't confirmed with any testing, I haven't seen a neurolgist or any doc for it since. My symptoms weren't severe enough to seek medical help.
Since December when i passed out and hit my head I have had alot of symptoms, some minick Post Concussion Syndrome, many aren't.
I am seeing a new neurologist next week, hoping for some answers.The one I have been seeiing just tells me to up the Gabapentin... Grrrr
Frustrated
I have been experiencing total hand pain for a couple of years in episodes that last 10 days to two weeks and then subside. The pain reminds me of being a child and playing in the snow for a few hours then coming in and running warm water over my hands. It causes an aching that involves the entire appendage~bone, muscle skin, joints.... As well, I share your feet issue. By 4:00 or so I can hardly walk my feet and lower legs hurt so badly.
Sounds like we are in the right place for answers.
Do you have a Dx?